Commonwealth Council on Developmental Disabilities

Commonwealth Council on Developmental Disabilities CCDD is a governor appointed council that consists of people with disabilities & family members.

CCDD is a dynamic mix of people with unique backgrounds & experiences. Members include 16 governor-appointed individuals with developmental disabilities and family members of individuals with DD, as well as representatives from major state agencies that serve people with DD.

All of the national and state talk about paid family caregivers is spreading a lot of misinformation! Please check out t...
04/22/2026

All of the national and state talk about paid family caregivers is spreading a lot of misinformation! Please check out this document for education and then to share with others the truth about why some families cannot function without waiver funding!
https://docs.google.com/document/d/1qZGUJno-kDpPjKmm3xlsmyrYl8oCz0-2ZM_VzpXefH4/mobilebasic?fbclid=IwZnRzaARTJiVleHRuA2FlbQIxMABzcnRjBmFwcF9pZAwzNTA2ODU1MzE3MjgAAR7LpfEkw_JuLOs54QcFqqfxiI6bt-dawu2HAvEDsU3LSOx7eD4x4RJfteBQ0g_aem_GSZOJJAnXAgSkiylgTBMYA

How to Explain Paid Family Caregivers Message 1: This is Not a Left or Right Issue • Challenge: Discussions around Medicaid often get stuck in political echo chambers. Allowing children and adults access to their services and family members access to these jobs is popular and bipartisan. • Avo.....

We are proud of our partners who do such good work!
04/22/2026

We are proud of our partners who do such good work!

To our community,

My name is Amanda Mobley, and I have the privilege of serving as Executive Director at CAL. Every day, our work is guided by a simple but important mission: supporting individuals with disabilities in living independently and fully participating in their communities.

At CAL, our focus has always been on the people we serve. Across Kentucky and throughout the country, Centers for Independent Living provide core services designed to empower individuals with disabilities, while also offering additional programs that meet the unique needs of local communities. For many, these services have been life-changing—opening doors to employment, housing opportunities, benefits navigation, and connections to vital community resources.

We also recognize that accountability matters. Organizations like ours operate under strict federal and state guidelines, including regular audits and oversight, to ensure transparency and responsible use of resources. Just as importantly, we remain committed to listening, learning, and improving.

Advocacy is another cornerstone of this work. For decades, CAL and our partners have worked alongside the disability community to advance meaningful change—whether that’s improving access, expanding services, or supporting policies that strengthen independent living. This work doesn’t happen in isolation; it happens through collaboration, persistence, and the voices of the people we serve.

We are incredibly proud of the impact that has been made, but we also know there is always more to do.

Constructive conversation is essential to progress. We welcome those conversations and encourage anyone with questions, concerns, or ideas to connect with us.

Our door is always open.

— Amanda Mobley
Executive Director, Center for Accessible Living
Alt Text: A map of KY showing 3 CIL's and the coverage of each one.

04/20/2026

Attention nonprofits in the Ashland and Morehead area: KNN is coming to see you on May 11 at 10 a.m. - 12:30 p.m! Join us to connect with your nonprofit colleagues and learn more about a potential new advocacy alliance of nonprofits for the region.

KNN's FREE Regional Forum provides you with an opportunity to discuss the latest issues and opportunities facing the sector, including federal, state, and local public policy issues; connect with other nonprofit leaders; and share what’s impacting your organization and community. Plus, if you are interested in learning more about a potential regional coalition for the Morehead/Ashland region (including surrounding counties), you're invited to stay after the forum for this discussion.

To view the agenda and register, visit https://heyor.ca/Vu4Vvy.

04/20/2026

UPDATE: Please note the event time is 2pm ET. The time on the image is incorrect.

Webinar Announcement:

Topic: Cross-System Strategies to Support Children with Complex Behavioral Health Conditions
Date: May 20, 2026
Time: 2 pm ET
Location(s): Zoom
Link to register: https://us02web.zoom.us/meeting/register/mmc5ek9nTn6KvPihem4ozQ #/registration

Speakers:
Nancy Thaler, Project Lead
Stacey Nanemaker, Director of Cross-System Strategies, NASDDS

Facilitator:
Beth Stalvey, Executive Director, Texas DD Council

Children with complex behavioral health needs — and their families — face real barriers to getting effective help. This presentation unpacks the science of brain development to explain why dysregulated behavior happens, how it affects healthy growth, and how the brain's natural plasticity opens doors to real, lasting change.

This presentation is the product of a two-year project funded by the Department of Health and Human Services through the NASDDDS Link Center. The Link Center partners include NASMHPD, NASHIA, NADD.

04/17/2026

Employment First Council is looking for a disability representative! The vacancy is appointed by the Governor. If you are interested or know someone who is, please email Nanci Howard, nanci.howard@ky.gov, and she can answer any questions and tell you how to proceed.

Deadline to register is April 23rd!
04/13/2026

Deadline to register is April 23rd!

Registration is closing soon for our Florence Caregiver Summit (May 8–9).

This isn’t a vendor fair.
You won’t be walking booth to booth wondering who’s trying to sell you something.

✔ Hear from self-advocates
✔ Learn practical behavior and sensory strategies
✔ Connect with resource partners who are there to help - not promote paid services

If you’ve been thinking about coming, this is your reminder.

Registration closes April 23

Register Now! 👉 tinyurl.com/FLORENCE2026

For info on speakers, resource roundtables, schedules and more, check out our Caregiver Summit Dashboard
👉 tinyurl.com/CGDashboard2026

04/13/2026
04/09/2026

AI can support caregivers and extend the caregiving workforce. The ACL Caregiver AI Prize Challenge includes two Phase 1 tracks:

• Track 1: AI tools that support caregivers at home and in the community
• Track 2: AI tools that extend the Direct Care Workforce by improving efficiency and reducing administrative burden

Intent to Apply deadline: April 15, 2026, at 5:00 p.m. ET. To participate, email CaregiverAI@acl.hhs.gov with:

• Your team's name and primary contact
• The track you’re applying for
• A brief description of your proposed AI solution (500 words max)

Learn more and start preparing today: https://acl.gov/news-and-events/announcements/acl-launches-phase-1-caregiver-ai-prize-competition

Address

1024 Capital Center Drive
Frankfort, KY
40601

Opening Hours

Monday 8am - 4:30pm
Tuesday 8am - 4:30pm
Wednesday 8am - 4:30pm
Thursday 8am - 4:30pm
Friday 8am - 4:30pm

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CCDD is a dynamic mix of people with unique backgrounds & experiences. Members include 16 governor-appointed individuals with developmental disabilities and family members of individuals with DD, as well as representatives from major state agencies that serve people with DD.