The Migraine Diva

10/09/2023

I can’t get out of bed. The exhaustion from it all has me in a crippling flare.

The results of the gastric emptying study came back normal immediately after it was completed on Thursday. I still have no clue what’s going on.

No answers AGAIN. I’ve been in a seriously dark place since then.

I don’t want to deal with any of this anymore. I just don’t.

I’m forever stuck in pain with way too many pain disorders.

The ability to eat has been compromised for almost five months, losing weight as a result and having horrible fatigue.

I don’t want any of this. I didn’t ask for it. How am I supposed to be resilient while jumping through hoops without an end in sight?

I’m sad, frustrated, angry, lonely, exhausted, anxious, depleted, empty.

This life and body cause more pain and anguish than joy and happiness.

I know it’s not my fault but it still feels like a punishment.

10/05/2023

ReMMiD

Click Therapeutics, Inc.cruiting for a clinical trial to test investigational mobile apps designed to prevent migraines. This fully virtual study lasts about 19 weeks, and you will be asked to complete online surveys, attend remote calls, and use a study app daily. About 558 participants will be enrolled in this study. Some basic requirements:

• Live in the US
• Diagnosed with migraine for 1 year or more
• Use 1 or more prescription medications to manage migraine
• Not currently taking a CGRP

To read more information and see if you are eligible, please click here: https://clickstudy.info/advocacy

10/05/2023

Nothing like having a yummy breakfast at 7:30 in the morning, lol.

I’m undergoing a to measure the time it takes for food to empty out of my stomach. The study will help determine whether I have , a condition where the stomach takes longer than normal to empty.

This test takes four hours. After eating, the radiologist took images of my abdomen to watch the movement of the radioactive tracer in the scrambled eggs through my stomach.

More images will be taken one, two, and four hours after ingesting the tracer.

The results of the upper endoscopy and colonoscopy were normal leaving me with no answers.

I’m currently down 21 pounds without trying to lose weight and am still dealing with feeling full after a few bites of food, nausea, bloating, abdominal pain, and loss of appetite.

I truly do not want another health issue but I desperately need a diagnosis so I can finally know what’s going on.

Let’s see if test number eight yields results.

08/28/2023

It was so great being with my beautiful family in Tampa.

We always have a good time, share lots of laughs, eat great food, and most of all, we love the heck out of each other!

Case in point: my daddy is comforting me in the second picture after I took my meds. Just being able to be daddy’s little girl in the flesh, in real-time, felt like being wrapped in the world’s best security blanket.

I miss you guys so much! ❤️❤️❤️❤️

- Best Auntie ever and 2ⁿᵈ mom!
crooks.16 - Strongest woman I know and my superwoman momma!

- The sweetest, kindest, and purest human being on the plant and my sissy.
denise.x - My BFF from the womb and ride or die daughter.

08/26/2023

GI UPDATE:

For anyone just now following my GI saga, for the last year, but mainly since May, I have been having debilitating GI issues.

My symptoms are nausea, stomach and intestinal cramping, diarrhea, vomiting, the inability to eat, and weight loss.

I have undergone the following tests with normal results:

✔︎ H. Pylori breath test
✔︎ Salmonella, Shiga toxins, shigella culture, and parasitic stool culture
✔︎ Allergy testing
✔︎ CT of the abdomen and pelvic area

On Tuesday, I had an or (Esophagogastroduodenoscopy) and . Biopsies were taken of the antrum and fundus (in the stomach) due to erythema or redness in the lining of the duodenum, colon, and re**um.

could indicate that an underlying condition or irritation has caused inflammation, which has increased blood flow to the mucosa and made it red.

of the colon was seen.

The ampulla, a small reservoir where the common bile and pancreatic duct meet that collects bile and pancreatic juices, is prominent.

This possible blockage could explain the nausea, vomiting, abdominal pain, and weight loss if the ampulla obstructs the biliary or pancreatic duct.

It will take three weeks to get the results of the biopsies back. Early Friday morning, I had a horrible episode of diarrhea and vomiting simultaneously. I hate it.

This waiting game while I still have these symptoms is exhausting and exacerbates the and I experience daily.

I can’t wait to get some answers.

08/21/2023

Part one of three tests to determine what is going on with my GI tract was completed this morning.

testing for food and environmental allergens all came back negative.

Part two is tonight – I’m scheduled for an abdomen and pelvis CT.

Part three is an upper endoscopy and colonoscopy tomorrow afternoon.

I am still unable to eat most foods without stomach upset, nausea, and getting full almost immediately.

I have been following a low diet for the past two weeks, which has been somewhat helpful but I’m still not eating like I would like to.

All of this sucks and I’m exhausted.

08/09/2023

Portrait of a Black Queen and her daughters.

06/26/2023

In this enlightening 5th episode of the , host Roger Legtenberg ⚛ sits down with Jaime Michele Sanders, aka 'The Migraine Diva'.

Join this impactful conversation as they delve into , in disorders, and potential counter strategies! 🔊

Hear from Jaime about her personal journey with , her unyielding efforts to eradicate healthcare disparities, and medical gaslighting while navigating the .

Don't miss this interesting discussion on pressing issues in healthcare and what role can plan towards a future devoid of .

Listen to this episode from Patients on the Move on Spotify. In this enlightening 5th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Jaime Sanders, aka 'The Migraine Diva'. Join this impactful conversation as they delve into medical gaslighting, stigmas in migraine...

06/01/2023

Kickoff with Stronger than Migraines and enter to win this bundle of products valued at over $100. The rules are easy!

✨ Follow and The Migraine Diva

✨ Like and share with friends

✨ Tag 3 people

Contest ends June 15ᵗʰ at 11:59 PM EST.

𝐎𝐏𝐄𝐍 𝐓𝐎 𝐔.𝐒. 𝐑𝐄𝐒𝐈𝐃𝐄𝐍𝐓𝐒 𝐎𝐍𝐋𝐘 𝟏𝟖+ 𝐚𝐧𝐝 𝐎𝐋𝐃𝐄𝐑

Winner will receive these products:

🎁Headache Relief Hat
🎁Vertigo Ease
🎁 Electrolyte Drops
🎁 Nausea Relief Inhaler
🎁 Migraine Stick (Regular + Extra Strength)
🎁 Pain Block Roll-on

𝙎𝙖𝙫𝙚 15% 𝙨𝙩𝙤𝙧𝙚𝙬𝙞𝙙𝙚 𝙩𝙝𝙧𝙤𝙪𝙜𝙝𝙤𝙪𝙩 𝙅𝙪𝙣𝙚 𝙬𝙞𝙩𝙝 𝙙𝙞𝙨𝙘𝙤𝙪𝙣𝙩 𝙘𝙤𝙙𝙚 𝘿𝙄𝙑𝘼15 𝙖𝙩 𝙘𝙝𝙚𝙘𝙠𝙤𝙪𝙩 - https://buff.ly/3OO5jCz

05/01/2023

Jaime Sanders of The Migraine Diva always felt internalized blame for not controlling her . She was exhausted from continually being disappointed by her prescribed medications not working. That was until a neurologist said her migraine might be medication resistant. He validated that it was a complication of the disease – not her – that was at fault for still having chronic migraine episodes. Despite numerous therapies and lifestyle modifications,she has yet to break the 15-year pain cycle she is in. In her latest article for Healthgrades, Jaime writes about what it is like to have and the treatment program she is about to embark on. Read more: https://bit.ly/3UR00mZ

04/23/2023

Staying comfy with my poncho made by the one and only - my momma and my Coalition for Headache and Migraine Patients blanket during my stay at Jefferson Health.

It’s important to have comforts from home when in typically uncomfortable places. But the care team is amazing and making my stay as comfy as possible!

04/20/2023

Hi guys. It looks like I’ll be discharged next Tuesday however our flight to go back to Virginia is on Sunday.

If anyone is able to contribute to help us extend our stay we’d be extremely grateful for the support and help.

I love you all!