Clara Lemarr Foundation

Clara Lemarr Foundation To spread awareness Ehler's Danlos syndrome, Postural Orthostatic Syncope, and Mast Cell Activation to educate and fight for a cure for the "Zebra" disease.

We work with families on school plans that help our Zebra Children. We are officially approved by the IRS as a 501(c)3 non-for-profit organization. The organization was founded because the founder Clara Lemarr was diagnosed with Ehler's-Danlos Syndrome and she wanted an avenue available to help other people navigate through this disorder. It's a difficult road, and there are not many options. There is not much research being done and the disease is not well known. We need to change this so that children diagnosed have more options than just "palliative care". They deserve the option of finding a cure. The collagen in their body is not produced correctly, its a genetic disorder and EDS literally affects every system throughout their bodies.

11/03/2025

Living with hEDS means finding little things that make a big difference 💪 Which of these products helps you the most with your pain or daily symptoms? Share your must-haves below and let’s help each other out 💜

07/26/2025
Congrats William! We are so proud of you for battling through the battle to make your dreams come true.
03/28/2025

Congrats William!

We are so proud of you for battling through the battle to make your dreams come true.

C2C DRAFT ALERT I William Lemarr

We are excited to introduce William Lemarr, an elite skating defender playing out of Owatonna, MN from the Minnesota Made Under Armor AA team and the Owatonna Huskies Association team.

Will's advanced skating skills and speed, mixed with his high hockey IQ make him a beast as a defense player protecting his goalie and turning the puck around for his team make him an asset to his team.

Will is 12 years old and shoots left.

His work and dedication over the last few years have raised him to higher levels on and off the ice. When he is not on the ice with his team, he is often found practicing drills in his driveway on rollerblades or working towards crushing the summer shot challenge numbers with an impressive 40,000+ shots. You will never see Will without a hockey stick nearby.

This drive helped him to be one of the top defense scorers for his group for the season on his association team and was the overall top Summer Shot Challenge winner with an impressive 43,000+ practice shots over the summer. He will continue to grow and impress those around him.

Congratulations and welcome aboard, Will!

🔸🔸🔸🔸🔸🔸🔸🔸🔸🔸

Is your player ready to join the next generation of hockey stars?

Explore the elite opportunities Coast 2 Coast has to offer:

🔸Showcase Teams:

Compete in premier tournaments across North America and Europe.

🔸Skill Development & ID Prospect Camps:

Designed for birth years 2009–2017, these camps are the ultimate way to accelerate growth.

🔸Coast 2 Coast International Cup:

Be part of our world-class tournament this June in Kelowna, BC. for birth years 2011-2016.

🔥 Elevate your game.

Accelerate your development.

Click the link in our bio or the links below to apply today, and we’ll be in touch with more details!

Showcase Teams

👉 bit.ly/C2Celiteteams2025

Coast 2 Coast Player Development

👉 www.coast2coastpd.com





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Fredericksburg, VA
56085

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