01/02/2025
We will be sharing more soon if you would like to get involved with us. This is a major setback to our community. Also, follow Smashing Walnuts
Our kids LOST 3 important bills in the Senate, Give Kids A Chance Act, Creating Hope Act, & Accelerating Access to Care Act. No Federal Funding was needed! We need to ask Congress to make it the 1st order of business. Our childhood cancer community is devastated. This is a setback for kids everywhere! We need your help. Please share this, spread the word and get involved.
What happened? Today, the Creating Hope, pediatric priority review voucher program lost in the Senate and has expired for the first time in 12 years. There will be no incentives for companies to develop drugs expressly for kids with cancer and other life threatening illnesses."
The Give Kids a Chance Act, which had 235 House cosponsors, and passed. It did not pass in the Senate, now, there’s no opportunity for companies to do studies in combination cancer drugs for kids.
The Accelerating Access for Care Act lost in the Senate. Kids on Medicaid or CHIP with cancer who need life saving treatments not available to them in their home state may not be able to get it from another state.
Today begins a new Congress and we will start all over. Please help get attention and awareness by spreading the word by sharing this with all your social media, FaceBook, Instagram, and LinkedIn. What else can you do? Call and write you Congressman/woman and each of your Senators. It's easy ( https://4sqclobberscancer.com/on-capital-hill/contact-your-legislators/ ). Make it personal, tell them why it's important to you, but please be respectful. If you already have a X (twitter) account and would be able to use it to help, PLEASE click here: https://4sqclobberscancer.com/reference/fix-it-4-kids-posts-for-x-twitter/