Anxiety Zebra

03/17/2026

Y'all get the whinging version of me today

My hope may not be dead, but it's been jumped in a dark alley by a new medication and beaten bloody. Please hold while it decided whether to get back up again...

03/17/2026

EDS and other chronic illnesses aren't just exhausting. They put your sense of hope through a meat grinder.

Every new medication that puts you into a flare. Every test that doesn't provide answers. Every time a friend decides you're too much.

Not only does it eat at your physical strength, but at the light of your spirit that is your fuel to endure

03/15/2026

To anyone that needs to near it:
Getting your therapist to break face and go "OH GODS NO! WHY??!!" and look at you in horror is not, in fact, an achievement

02/25/2026

So, I've got a virus and have been hacking up mucus balls out of my lungs for a few days.

It's been great.

My mast cells.... in their INFINITE WISDOM have confidently discovered the root cause for this viral infection.

They are beyond questions and have been attacking the apparent cause with ferocity.

Want to know the OBVIOUS cause of my viral suffering?

Are you ready? Cause I wasn't.

The second skin from the new tattoo. I took it off two days ago. They all just now decided it's public enemy no.1

Yep.

Delayed reaction and all. The second skin is now a scary enemy and they must save my skin from where it touched. By attacking my skin. Of course.

I hate MCAS 😒

02/18/2026

"It became so much more than just a cool ring splint project, it was empathy, compassion, and healing cast in metal."

I'm finally able to release photos the incredible thing that is the Celestial Eye Ring Splint by Lumecluster. The two of us worked for the past year making sure this unique splint with vibes of armor was as functional as it was beautiful and comfortable.

Both of us have a blog feature on a behind the scenes of their creation

02/18/2026

A New Adjustable EDS Ring Splint
Or, A Journey Guided by a Phoenix Spirit Over the past year, an incredible bit of collaboration has been brewing. On the surface, it presents as the culmination of being able to release a new EDS ring splint. This is an exciting enough announcement, but allow me to take you behind the scenes of what went into the development of this splint...

Or, A Journey Guided by a Phoenix Spirit Over the past year, an incredible bit of collaboration has been brewing. On the surface, it presents as the culmination of being able to release a new EDS r…

02/18/2026

A New Adjustable EDS Ring Splint

Or, A Journey Guided by a Phoenix Spirit Over the past year, an incredible bit of collaboration has been brewing. On the surface, it presents as the culmination of being able to release a new EDS ring splint. This is an exciting enough announcement, but allow me to take you behind the scenes of what went into the development of this splint...

02/16/2026

"You do not have to be me in order for us to fight alongside each other. I do not have to be you to recognize that our wars are the same. What we must do is commit ourselves to some future that can include each other and to work toward that future with the particular strengths of our individual identities. And in order for us to do this, we must allow each other our differences at the same time as we recognize our sameness." ― Audre Lorde, Sister Outsider

02/16/2026

Writing up the ring splint release for the 17th: I know we call it burnout. But it's become such a pop-psychology term I feel it's lost a lot significance when it comes up. It has become a synonym for just needing to take a quick vacation to be able to bounce back. This was akin to scraping a polished bowl and hoping there's still somehow an essence of cake frosting left to sustain yourself on. To top it off, the frosting originally in the bowl wasn't even the good kind in the first place. It was artificial banana that wasn't blended enough so it's all gritty and unpleasant.

02/13/2026

Something special is coming soon! Relevant to the exciting news, is a previous blog and my experience with ring splints from Silver Ring Splint Company

I have been using my Silver Ring Splints for over 5 years now. This year, I had to add 8 more to my collection as my hands continue to degrade. I deeply appreciate their support as I have reached a…

02/12/2026

6 days away.... so close....

02/11/2026

Zebra Anecdotes: First Time?

New somatic therapist: And now, take up your width. Stretch your arms to the side

Me: 😒 *starts wiggling left shoulder*

Therapist: 😶 move how you feel you need to move 🤔

Me: *continues to wiggle and focus*

Therapist: 🤨 Notice the chair supporting your back.... you don't have to use your hands?

Me: Oh no, I'm trying to get my shoulder back in place

Therapist: 😶 Take your time

Me: *active focus on subluxation reduction. Finally feel it slip back in* phew! That's back now. Sorry about that.

Therapist: Are you okay to continue? Do you need to do anything else?

Me: 😁 Nope! We're all good now.

Therapist: What caused that?

Me: 🤷🏽‍♀️ From how sore it was? Probably partly out most of the day. Could have just moved wrong. Slept wrong. Picked something up and the muscles moved in just the wrong way. It wasn't out the whole way, just enough that I noticed when I tried to open it the whole way. But we're good now.

Therapist: 🤨 Are you sure?

Me: Yep! Just a minor wiggle one.

Therapist: 🤨

We continue and later we talk about how it impacts my capacity and what that looks like. It was not an uncomfortable interaction aside from my personal shoulder discomfort. Just felt it was also worthy of noting.