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One Waddle at a Time- Wesley's Fight

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One Waddle at a Time- Wesley's Fight

Follow along with us!

Wesley might be a little duckling, but this duck's got wings! 🎗️
Here we will be posting his journey with childhood cancer, metastatic neuroblastoma, in updates posted to this page.

03/13/2026

Just a lil update on Wes:

He is still having fevers.
We weaned off the fluids to see if he can do any intake by himself.
We need to go 24 hrs without fever.
His hemoglobin was too low, so tonight will be another transfusion.
We had platelets done Wednesday, but they’re coming down low again, so probably will need platelets by tm night.

That being said, we’re probably not looking at discharge until after the weekend most likely.

Also, wanted to shout out josh. He’s been phenomenal help during this, being able to be here soothes my anxiety, and he’s just always holding down the fort.
I’m not sure we could do this without him being here, and bubba has really just bonded so well with his daddy, and he’s the first person he runs to when he’s scared or sad🥺🤎

03/12/2026

Please pray for Wes!!!
We got home this afternoon and he’s been having low grade fevers today while at his appt. His doctor thought we’d be ok riding it out at home but Wes has different plans and we took his temp and he’s 103.8.
They’re going to keep us, this I’m sure of per protocols.
I’m really worried and he’s not acting so energetic, his body is compensating for the fever.
Headed back to shands now, administered dose of Tylenol.

03/11/2026

Had our lab appt this morning, and it’s been a busy, different kind of day!

Wes still has the chest rattle going on from him being sick almost 2 weeks ago, although we were hopeful that this would’ve been resolved by his chemo 5 neutropenic phase.
We want to confirm this isn’t pneumonia or turning into it, so we did have to get chest x rays. Waiting on those results.

We got prelims for his bloodwork back and platelets were LOW, so were in the infusion center waiting on platelets to get here, so we can start the transfusion.

Wes got his premeds for this and our nurse offered us warm blankets, before his Benadryl (premed for one time having a reaction to platelets), and he passed OUT finally.
Before even the Benadryl😅😂

Hoping we’re able to go home!

03/04/2026

Got to see a familiar face this morning to kickoff chemo FIVE… (one of joshes well loved fire chiefs for his station)

We’re more than halfway done with chemotherapy.

We technically didn’t make counts this morning, his platelets were at 63, when they like them to be at 75.
Also, his ANC was at 730 when it needs to be at 750.

His team and us decided it was close enough, and that we’d go ahead and move forward with treatment.
This may cause a delay in recovery for next chemo.
You don’t want too much time in between chemo so the presumed leftover cancer cells don’t have time to metastasize and mutate, so this seemed the best option.

We have 3 days of chemo, so should get to go home by Friday afternoon.

02/26/2026

My burrito baby🤎

Pray for our household as Evie and Wes are fighting some kind of cold.

We have an appointment tomorrow for labs and a recheck to make sure he doesn’t need blood or platelets.
I am thinking we may end up readmitted due to his symptoms.

02/24/2026

We are on the way home finally!

This stay has been a harder stay for us; unknown cause for the fevers, 5 nosebleeds, counts are ZERO.
We got loaded up with platelets and blood last night to hopefully boost his counts up to get his system started for next chemo on March 4th.
We go Friday to recheck and make sure we don’t need anymore transfusions.

Overall, it was rough, and we miss our evie girl too.

Having to leave at a split second at 3am, is difficult. Every time, I feel so bad for evie.
And bubba is always looking for her🥺

We’re happy to be going home and please just keep him in your thoughts and prayers for count recovery for chemo.

02/21/2026

At shands, spiked a fever late last night and just wasn’t acting like himself all yesterday afternoon. Per protocol, we do the rocephin, and a bolus.
Waiting for his counts to come back. Hopefully, no stay.
Will update more when I can☺️

02/18/2026

You, my son, are worth it all.
You’re worth every sleepless night.
Every tear that tracks down my cheeks.
Every nightmare that scares me awake.
Every drive, every appointment, every hospital stay.
Every cent to our name.
Everything.
You’re worth everything.

02/16/2026

Hey guys, real quick!

I want to clarify something.

We got the bone scan done for cycle 4, halfway through our treatment. It back clean.
While this is good news, all it means is that during treatment nothing has grown enough to see on a CT.
It almost wasn’t even done, because chances were, we wouldn’t see anything even if it’s there. There’s only a certain amount of growth you can detect on a CT scan, but the big scan which is way more accurate is called the MIBG scan, which will be done with bone marrow after our last cycle.

This is good news, but does not suggest we are cancer free yet.
We also had labs drawn too, and will update with those once we hear from oncology.

We’re doing good so far, chemo 4 is a little harder for his little body. Nausea is a battle and eating has been hit or miss.

Something also worth mentioning is that today is international childhood cancer awareness day🎗️

02/13/2026

Repping our valentines bamboo while stopping to get… that’s right! A CAKEPOP!

Last round of chemo due at 1pm. So hopefully will be home later today!

Did the CT scan yesterday, results came back as clear meaning nothing seen.
We will confirm with another MIBG scan and bone marrow at the end of treatment.

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