Growing Through Fanconi: Case & Nova

01/21/2026

We went ahead and rescheduled Case’s surgery next week for next month. We don’t want to risk it with the weather they are calling for. It’s now scheduled for February 24th🩵🩵

01/18/2026

Update on Miss Nova, her thyroid level was still too high. We are going to try out a thyroid med and recheck in 4-6 weeks. They are hopeful that it will solve some of her other issues as well. Thyroid problems are seen a lot in FA patients, so hopefully we are on the right path now🩵🩵

01/15/2026

Nova is heading up to Cincinnati for appointments tomorrow. They are rechecking her thyroid. Hopefully it has came down even more than last time. We will update tomorrow🩵🩵

01/15/2026

Can anyone tell me by chance how the roads are going up to Cincinnati?? We live in south central Kentucky.

01/14/2026

FA is hard, emotional, and lifelong, but we are strong, resilient, and courageous🩵🩵

01/14/2026

Look at that hair growth it was really coming in! Now seems like he has to get hair cuts every other day🥹🥹

❤️

01/08/2026

Case was approved for surgery and got his last 4 shots until he can get his live vaccines. He’s bruised and not happy but I’m so glad we are done with that for a minute🩵🩵

01/03/2026

A little update..Case’s tonsil and adenoid surgery is scheduled for the 27th and we will have to stay over night. Nova has some appointments coming up to check her thyroid again on the 16th. Fingers crossed crossed and prayers that everything goes good with both kiddos🩵🩵

12/19/2025

Oh I just love them🥰

12/17/2025

We changed our name but same page! Just thought this would be more fitting❤️

10/10/2025

Last year and this years school pictures🥺🥺

09/25/2025

Case and Nova are participating in a fundraiser at school this year and it’s can be done all online! They are really excited about this and we know money is short for everyone but I promised them I would try.

Case’s link: https://afgfundraising.com/student/?student_id=86wxj

Nova’s link: https://afgfundraising.com/student/?student_id=fkvyr