Growing Through Fanconi: Case & Nova

04/07/2026

April is Head and Neck Cancer Awareness Month 🧬

For people with Fanconi anemia, head and neck cancer is one of the most serious health risks faced, often developing at much younger ages than in the general population.

Because of this community, progress is happening:

• Research to better understand why these cancers develop
• Early detection initiatives to identify cancer sooner
• Education for dentists and clinicians
• Resources for individuals and families with FA

Learn how the FA community is advancing cancer prevention and care:
https://fanconi.org/cancer-consortium/

04/07/2026

Update on Case’s T & A surgery.. We had to reschedule again due to him having the flu🤦🏻‍♀️🤦🏻‍♀️ he can’t have the surgery for up to 6 weeks after testing positive. This time we rescheduled for May hoping with him being out of school he won’t be sick. This is our 3rd time rescheduling. Hopefully we will be able to make it next time. All and all both kids are back to being healthy this week and doing good now💙💙

03/25/2026

11 year check up and pre op, where has time gone🥺🥺 our boy is 4ft 8in tall and almost 97lbs he’s came such a long way in his 11 years of life. From a 5lb 3oz little baby who has battled more in his life than most and I’m so proud of the amazing kid he is💙

02/24/2026

Case got up this morning not feeling great. Surgery is being rescheduled since he has a cough and congestion. Miss Nova has flu b and we are hoping this isn’t the start of him having it. So far he’s tested negative.

02/24/2026

Getting stuff packed up for Bub’s surgery tomorrow. It’s always nerve wracking when we are doing something like this. Prayers everything goes great. We will be staying overnight in Cincinnati and should be back home some time Wednesday.

01/21/2026

We went ahead and rescheduled Case’s surgery next week for next month. We don’t want to risk it with the weather they are calling for. It’s now scheduled for February 24th🩵🩵

01/18/2026

Update on Miss Nova, her thyroid level was still too high. We are going to try out a thyroid med and recheck in 4-6 weeks. They are hopeful that it will solve some of her other issues as well. Thyroid problems are seen a lot in FA patients, so hopefully we are on the right path now🩵🩵

01/15/2026

Nova is heading up to Cincinnati for appointments tomorrow. They are rechecking her thyroid. Hopefully it has came down even more than last time. We will update tomorrow🩵🩵

01/15/2026

Can anyone tell me by chance how the roads are going up to Cincinnati?? We live in south central Kentucky.

01/14/2026

FA is hard, emotional, and lifelong, but we are strong, resilient, and courageous🩵🩵

01/14/2026

Look at that hair growth it was really coming in! Now seems like he has to get hair cuts every other day🥹🥹

❤️

01/08/2026

Case was approved for surgery and got his last 4 shots until he can get his live vaccines. He’s bruised and not happy but I’m so glad we are done with that for a minute🩵🩵