Journey of Hope Kidney Foundation, Inc.

10/09/2021

This bothers me. What are your thoughts?

https://www.foxnews.com/media/leilani-lutali-kidney-transplant-laura-ingraham-unvaccinated-donor-covid-19?cmpid=fb_fnc&fbclid=IwAR132l91UfJd-QlVFc20hzsKX4Ptp-Xn0HMnrwNF6KLqWT59TpWFzm4A1WQ

An unvaccinated Colorado woman with stage 5 renal failure joined "The Ingraham Angle" Thursday to discuss how she was denied a kidney transplant due to her vaccination status.

02/10/2018

Get the Facts on Kidney Disease

Found on Google from tarrantnephrology.com

04/13/2016

This study is currently seeking participants. The purpose of this study is to evaluate the safety of repeated TP10 dosing in pediatric and adult patients with C3G and to evaluate the activity of TP10 in pediatric and adult patients with C3G, as measured by the proportion of patients with normalization of serum C3, serum C3 breakdown products, or alternative pathway (AP) complement activity.

https://clinicaltrials.gov/ct2/show/NCT02302755?term=Dense+deposit+diseases&rank=5

Treatment Period: All patients will be enrolled through the University of Iowa. This study will follow a patient-specific TP10 dose-escalation scheme during the Induction Period and subsequent dose adjustments based on complement levels during the Maintenance Period

03/17/2016

This is a wonderful story.

Doctors expected Robert Phillips kidney transplant to give him another 2 years to live back in 1963. It gave him 54. Phillips’ donor kidney lasted longer than any other known in the world, except for those involving identical twins. Phillips died in December 2014 at the age of 88.

“When he passed away, the amazing thing was, his heart was bad, things were bad, he was not in any pain and his kidney was still in good condition,” said Phillips’ niece, Beverly Ange, who took care of him in his final years.

http://www.fredericksburg.com/features/health_living/colonial-beach-man-was-longest-lived-in-world-with-donated/article_946a491f-f1ca-5a23-a109-732f749a2284.html?mode=jqm

http://www.fredericksburg.com/features/health_living/colonial-beach-man-was-longest-lived-in-world-with-donated/article_946a491f-f1ca-5a23-a109-732f749a2284.html?mode=jqm

03/17/2016

There is hope!

Kathleen Hart, underwent a kidney transplant in December 1973. The organ was expected to last for just five years, but she stunned experts by living with it for eight times as long.

Read more: http://www.dailymail.co.uk/news/article-2532883/Grandmother-one-Britains-longest-surviving-transplant-patients-living-donated-kidney-40-years.html
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Kathleen Hart, 70, from West Yorkshire, underwent a kidney transplant in December 1973, with the organ expected to last for just five years.

02/28/2015

C3 glomerulopathy (C3G) defines a group of very rare renal diseases in which dysregulation of the alternative and terminal complement pathways plays a pivotal pathogenic role. Dysregulation is driven by genetic and/or acquired defects, with
interindividual variability giving rise to two broad subtypes of C3G-dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Patient evaluation should include genetic testing and biomarker profiling of complement activity.

http://www.healthcare.uiowa.edu/kidneeds/C3G%20Sem%20Throm%20and%20Hemo.pdf

02/28/2015

I think this is a test you can have done to see if you have genetic markers (factor H mutation for DDD).

http://www.ncbi.nlm.nih.gov/gtr/tests/503164/

Clinical test for Atypical hemolytic-uremic syndrome 1 offered by Laboratory for Molecular Diagnostics

02/28/2015

More trails for MPGN. This study is currently recruiting participants.

https://clinicaltrials.gov/ct2/show/NCT02093533?cond=%22membranoproliferative+glomerulonephritis+type+II%22+OR+%22Glomerulonephritis%2C+Membranoproliferative%22&rank=5

Membranoproliferative glomerulonephritis (MPGN) is the third or fourth leading cause of end stage renal disease among the primary glomerulonephritis. Hyperactivation of the alternative complement pathway and familial forms for all types of MPGN have been reported suggesting that genetic abnormalitie…

12/27/2013

http://clinicaltrials.gov/ct2/show/NCT01791686?term=Dense+Deposit+Disease&rank=1

This study is evaluating the study drug (CDX-1135) in patients with dense deposit disease (DDD). The objective is to evaluate the safety and activity of repeated doses of CDX-1135 in pediatric and adult patients with DDD. After screening, eligible patients will be entered into the Induction Period.…

10/19/2012

Peritoneal Dialysis at home. Usually 8 hours during the day or at night.

10/19/2012

Peritoneal Dialysis

10/19/2012

Great news for patients with Dense Deposit Disease! After 15 years of research sponsored by Kidneeds, the FDA has approved drug trials for the first drug ever specifically targeted to treat dense deposit disease. The drug is called CDX-1135 and the University of Iowa is seeking 5 patients for the clinical trial. For more information, you can go to kidneeds website at www.healthcare.uiowa.ed/kidneeds.
Let's pray that this works!