Team Maddie Strong - Fighting together

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Team Maddie Strong - Fighting together

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NEW ACCOUNT.HER OLD ACCT WAS HACKED.Maddie was diagnosed with a rare form of brain/spine cancer.She also has a rare genetic mutation they can’t diagnois along with LiFraumeni.Her sister Avah was also diagnoised with LiFraumeni and one they can’t diagnois.

12/25/2025

We want to wish you all a very Merry Christmas 🎁Enjoy your time with family and friends and make those memories. Thinking of you all ❤️ Remember to take those pictures and cherish every single moment. Time is precious .
We have had a busy week full of procedures and appointments. Both girls had their wellness checks yesterday and Avah is just under 5’3 inches tall and Madison is just under 5ft. Madison is been feeling ok well until today . We went to my sisters for dinner and she got up and went to the bathroom . I went and checked on her and she was just in there crying . This breaks my heart so much 💔 She is having some pain again and she is just taking all this so hard . It’s definitely taking a toll on her . She’s sick of the pain and not knowing what’s going on. I’m hoping for some answers soon. I have to make some phone calls again and try and get some answers . Also have to call and talk to her insurance they denied to pay for her last inpatient stay at the hospital 😭 I’m not sure why they wouldn’t pay it . I just know I can’t pay it , I’m already struggling with debt of so many things . Medical bills add up and then when you add up all the other unplanned and daily life expenses 😭😬 I just can’t , single mom life is hard . Life is hard but these kids keep me going. They are my world . I’m trying my best to jeep us afloat but it’s definitely getting harder to do . But all we can do is take one day at a time or even one minute at a time . Remember today is a gift . Cherish every single moment .
Merry Christmas to you all . We love you and appreciate you all so very much . Your prayers , love and support are everything.

12/23/2025

Happy Monday 🎄 It’s almost Christmas 🎅🏻 and the kids are enjoying their break already . Avah and Hunter were up by 930 and Madison was up at 11am . She has been so exhausted and her body definitely needs the rest. I was up and out of the house for another leg/vein procedure that took over an hour. Wrapped from the ankle up to my hip until tomorrow then compression socks/thigh highs or leggings for the next week or so. Elevate when seated , walk and baby aspirin. I’m hoping this is the last one but we will see. Having some discomfort tonight though. 😥 We did get some Christmas cards today 🎄 Thank you so much Lynn for our cards , the kids were so excited . They love getting mail 🥰 We got a couple more cards the other day and we love it so much . Thanks to everyone that had sent a card . We appreciate so much . It makes our day especially with all that we have been going through . It brightens our day more than you know. Avah and Maddie also had gotten a gift from Someone that choose to remain anonymous ❤️ so that will be wrapped and placed under the tree 🌲 Thank you for making this Christmas special. These kids go through so much on a daily basis and especially this time of year is hard for a lot of people . There is a lot of stressors in a daily life but when you add all the medical stuff on top of it all it just makes it all that much harder . But with all the support , prayers and love from you all it has helped so much ❤️ Christmas is in 3 days and I’m definitely trying to make it special for the kids . They still believe in all things Christmas 🎅🏻 🧝and I’m taking it all in . Our Elf Buddy now has a friend named Chip and they have been up to mischief 😉 the kids are loving it ☺️ Madison still isn’t 💯 into Christmas and it’s been so hard on this mamas heart 💔 she won’t say much about what she wants etc . It just breaks my 💔 She has made a wishlist for her bday and so for Christmas she went on and took some off and that’s about all she did . She’s not one to ask for things and she has been through so much . I think she’s just over it all 😭 which I don’t blame her . Avah and Hunter have definitely been feeling it too. All we can do is make memories and take one day at a time . Life is so precious ❤️and Family is everything. We still have messages about asking if you can do anything and honestly I don’t know . I am one not to ask for anything but if you feel like doing something Pray and send positive vibes . Continue posting comments and sending messages . We read them all 🥰 if you feel like sending a card we would love it . Just message me 💌 if you would like to send something I will post their wishlists below 👇 and if you would like to help us in another way . We do have Venmo , PayPal or Cash App which I will post 👇as well .
Please don’t feel like you need to do anything !! I’m just posting bc we have had several messages.
Please continue to share , post and comment . We love you all so much ❤️
# ❤️

Maddie’s wishlist

https://www.amazon.com/hz/wishlist/ls/3NT9BYGP8VPLY?ref_=wl_share

Avahs wishlist

https://www.amazon.com/hz/wishlist/ls/P3U9IVPSSGIT?ref_=wl_share

Hunters wishlist

https://www.amazon.com/hz/wishlist/ls/82B06UQ9PDK4?ref_=wl_share

Mommy’s list

https://www.amazon.com/hz/wishlist/ls/1KSLN9N585L53?ref_=wl_share

https://cash.app/$TracyPagel42

https://venmo.com/u/Tracy-HovingaPagel

https://www.paypal.me/TeamMaddieStrong

12/20/2025

Being home is priceless 🙏 Buddy and Chip made the kids an Apple Watch 😆 The little things that matter and I’m just trying to keep the spirit alive . We really need laughter and lots of time together right now . It’s so hard on everyone . Trying to recover from the hospital is so hard , it literally takes so much out of us. I’m mentally and physically exhausted.
Madison still had a headache with some stomach pain that always ends up being on her left side (shunt side ) not sure what’s going on . The drs can’t give me answers to why or what’s causing it . The spot next to her shunt in her brain is still unknown. All I can do is what her and monitor her symptoms and wait for her follow ups and hopefully no more visits to the hospital 🙏It’s very frustrating !!
Now the kids are on break for the holidays so we are going to just take one day at a time . We get a lot of messages about if we need anything etc. I’m not one to ask but anything would help right now . Everyday is a struggle . But all we can do is take one day at a time or even one minute . Prayers and positive vibes are always needed Thank you for all your continued love , prayers and support.

12/18/2025

We finally got home around 5pm … we are both exhausted. Time for something to eat and a movie ❤️ Avah and Hunter gave us both hugs and boy did I need those hugs and I love you’s. These days are so tough and not on just Maddie but the whole family . We never know what’s in store for us . All we can do is take one day at a time or even one minute at a time most days . I would like to say thank you to everyone that has reached out to me , sent positive vibes and prayers to our family. It is needed more than you know . I have had a few messages about sending cards etc to Madison and the family . If you would like to I can send you our address . Just send me a message . Also a few messages about us having a Wishlist I can also send those to you as well. Please know that we appreciate all your support so much . Life is full of so many ups and downs and in betweens . This has been a very hard journey and unfortunately it doesn’t end for Madison . Madison is very strong and brave , she will never give up nad I won’t either !!!!

12/18/2025

Well .. her optical nerves are stable meaning there is no change to them since her last set of pictures a couple months ago. Madison gets checked every 5-6 months due to her having optical atrophy. Today the pictures she show us that she doesn’t have papilla edema which tells us that the don’t think her shunt is malfunctioning. Her headaches are better today and so with that being said we are being discharged . We will continue to monitor at home and have a follow up with neurology. We will see neurosurgery in a couple months and we will be contacting oncology since we still have no answers to the spot we are seeing next to her shunt in her brain. No one seems to know what it is , which is very frustrating. I feel like we weren’t heard today and it’s very difficult trying to advocate for Madison . But all we can do now is get home , rest and see Avah and Hunter . Take one day at a time , pray and watch . I feel like all I do is survive . Survival mode is all I know and it’s getting harder and harder 😭 This takes so much out of me emotionally and physically and for Madison . It never gets easier and because she is so complex there is never an easy answer to any of it . But all I can do is trust God and keep the faith . Madison is the strongest girl and I know she will never stop fighting and either will I . Madison has been having a very hard time lately and this has definitely made things a lot harder . So please continue to pray for her and our family . This puts so much on Avah and Hunter as well. This time of year is so hard … but I know we can get through anything. We have been fighting for 15 years .. Madison’s whole life has been nothing but a fight to live . No child should have to endure any of this . 😭 So if you see Madison , Avah and Hunter please say something to them even if it’s just a smile . We need all the kindness, positivity and prayers right now . Thank you for being here with us. We love you all .

12/18/2025

At ophthalmology to check her eyes … we are ruling out that it’s her shunt . We are checking her eyes for Papilledema. Madison is a tricky case when it comes to anything with her shunt and medical conditions. So we will see what they say . All her tests as far as viral infections like Covid the flu etc is all negative . Which ruled out all of that . So now we just see what this Dr says . She will have a bunch of pictures of her eyes done to see how things are . She does have optical atrophy so we already come in and get checked every 6 months and the last appointment was stable . So we will see . Thank you for all your prayers and support .

12/18/2025

We are going to try and rest now … it’s almost 4am 🙏🎗️ this floor brings back so many things 😭 this is so hard . But she is in good hands , we will see what today brings . Thank you for all the continued support. Team Maddie strong 💪

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Grand Rapids, MI
49508

Website

https://www.paypal.me/TeamMaddieStrong, https://www.amazon.com/hz/wishlist/ls/82B06UQ9PDK4?ref_=wl_share, https://www.am

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