Team Maddie Strong - Fighting together

Team Maddie Strong - Fighting together Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Team Maddie Strong - Fighting together, Medical and health, Grand Rapids, MI.

NEW ACCOUNT.HER OLD ACCT WAS HACKED.Maddie was diagnosed with a rare form of brain/spine cancer.She also has a rare genetic mutation they can’t diagnois along with LiFraumeni.Her sister Avah was also diagnoised with LiFraumeni and one they can’t diagnois.

Thank you for all the continued prayers love and support ! It means so much to us 🥹❤️ One day at a time !! One minute at...
02/20/2026

Thank you for all the continued prayers love and support ! It means so much to us 🥹❤️ One day at a time !! One minute at a time . Have had a lot of people ask what we need or to post Hunters wishlist for his birthday on the 28th so I will post it in the comments. We need All the prayers love and support !! Anything will help at this point .. life is hard but I’m blessed with the most beautiful strong bad brave kids . Madison is having shunt pain again last night and it seems to be every other day right now . I will be making another phone call to her drs . They still haven’t responded to me . I feel like I’m going now where . Hunter needs me to so trying to be here for everyone is so hard 😭 Hunters temp today is 101 and we got it to 100 earlier . Fingers crossed that we are going in the right direction . I want my happy energetic son back 😭 please share our page and let’s get all the support we can get !!! Thank you 🙏

We need these in our life
02/20/2026

We need these in our life

Still battling fevers … 😭 this mama is exhausted mentally and physically!! I’m not sure how much more I can take . Life ...
02/19/2026

Still battling fevers … 😭 this mama is exhausted mentally and physically!! I’m not sure how much more I can take . Life just seems to be so hard but I will continue to fight for my babies . I will never give up!! Madison keeps having shunt pain and I have called her drs and still waiting to hear back . So much anxiety so much stress … I just hear all the time Don’t worry about things you can’t control !!! Can’t someone just let me vent and just listen instead of saying that . I wish I could just stop !! But I can’t .. I am a mom and I have been doing this for over 15 years. It never gets easy .. it’s always there !! I will advocate and fight for my babies as long as I’m breathing. Trying to take one minute at a time . Today is the 19th and Hunter will be turning 11 on the 28th . I have nothing planned , nothing for him and honestly I don’t think I will. When I say life is hard I mean on all levels 😭 I wanted to make his day special and so much is constantly going on. I feel we never get a break . But we have a lot to be grateful for we have each other and right now we have a roof over our heads and some food . It’s tight but we are getting by . If anyone would like to help make Hunters bday special let me know . He loves cards and I think it would help so much. He also did put a wishlist together before Christmas and if you would like that let me know . Not much time to do much but I’m trying my best . Being a mom is hard but I wouldn’t change it . My babies are my everything ❤️please continue to pray for us . Thank you from the bottom of my heart ❤️

My poor dude !!! Not sure what’s going on other than very high fevers 🥵 bad joint pain and headaches . Went and had labs...
02/18/2026

My poor dude !!! Not sure what’s going on other than very high fevers 🥵 bad joint pain and headaches . Went and had labs drawn he’s normally really good but today he almost passed out 😭and also had to get an X-ray of his chest . He’s miserable 😭 up all night and this mama is exhausted . Trying to manage life is so hard when you add everything else into it . One day it should I say one minute at a time 😭 I did Manage to get him to eat popsicles and a couple bites of toast. Trying to keep him hydrated but these fevers are high . I really hope we don’t have to go into the Er. Keep us in your prayers !! Madison will go in on March 3 for ultrasound , labs and clinic . These spots on her liver have me so worried . I’m a mess with everything!! Life is so hard sometimes and no money is not helping. Missed a couple days of work for Hunter and I know he needs me but I need money too. But being a mom comes first and always will. Thank ypu for all your continued prayers live and support for our family ❤️we love you all

My Valentine’s Day gifts from my babies ❤️💕🥹I love them so much .. they are my everything ❤️ Had to pick up my dude from...
02/17/2026

My Valentine’s Day gifts from my babies ❤️💕🥹I love them so much .. they are my everything ❤️ Had to pick up my dude from school had a temp and brought him straight to the dr. He was seen last week for his asthma and had some wheezing and now he has some crackling in his lungs . So on an antibiotic and lots of rest . We have been doing so well with avoiding any bugs that have been going around !! Fingers crossed that shaver this is goes away asap!! My poor dude . I think I jinxed ourselves when the dr said last week we haven’t seen the kiddos in for anything besides physicals since April last year . Well now two visits in less than a week with Hunter . Also got Madison’s next set of ultrasounds scheduled for March 3. She will have that done along with clinic . Please continue to pray for our family . We need all the support we can get !!! Things are really tough right now . 😭

HAPPY VALENTINES DAY ❣️💕Valentine’s Day through the years and now … 🥹 These kids get me through it all. I am truly bless...
02/14/2026

HAPPY VALENTINES DAY ❣️💕
Valentine’s Day through the years and now … 🥹 These kids get me through it all. I am truly blessed with these 3💗They will always be my Valentine ❤️I hope anyone has a wonderful day . Hug your loved ones tight ❤️🤗 Remember today is a gift 💝 ❤️

Target therapy for Avah and I this week after some errands and appointments… she had some money she wanted to spend so s...
02/13/2026

Target therapy for Avah and I this week after some errands and appointments… she had some money she wanted to spend so she found a shirt on the clearance rack ❤️ she’s my little shopper . Hunter and Madison stayed home watching movies . Madison is still having pain on her shunt side off and on. Waiting to hear back from her drs . Hunters asthma is not great so lots of rest and lots of movie time . Today I wasn’t feeling well , I really think all the stress is eating me alive 😭 so many things going on and when you add the daily stuff to it all . It’s so overwhelming 😭 Plus I ended up back at the vein dr and my last procedure didn’t take so I will have to have it again in 4-5 months or less depending on how it looks. Trying to stay positive and pray is all we can do at this point . Life is definitely hard but we are strong and all we can do is take one day at a time. We have Hunters 11th birthday on the 28th so going to try and make his birthday special. He deserves a day all about him . I want to say thank you for all the love, prayers and support . We appreciate it all so much. It means so much to us ❤️ ❤️

Had Hunters drs appointment today … heard some wheezing so he is being put on a different inhaler for his asthma and som...
02/11/2026

Had Hunters drs appointment today … heard some wheezing so he is being put on a different inhaler for his asthma and some antibiotics just for a precautionary. He turns 11 on the 28th and he would like to have a Roblox theme . I can’t believe my baby will be 11 🥹 he deserve the best birthday !! So many things going on lately and he needs a day to celebrate him !! We will be getting ahold of his cardiologist soon to get all his tests scheduled . Since he had Kawasaki disease he has a chance of having some major heart problems as side effects of it . So he will be going through a huge range of tests to check . I also talked with the pediatrician about Madison and we will be getting a second opinion for her . These spots she has are very concerning and my gut feeling isn’t liking the whole watch and wait . So she is making a referral for another Neurosurgeon for her at Mott’s . Hopefully we can get some answers on all her pain she’s having . I will also be making another phone call to her oncologist too . I need some more answers . Please continue to pray for our family .

Happy Monday … today is the only day we don’t have any drs appointments. But we did have the kids school conferences and...
02/10/2026

Happy Monday … today is the only day we don’t have any drs appointments. But we did have the kids school conferences and they are all doing so good !Maddie will be getting some work done tomorrow to get her couple grades up since she has missed some things since being out for all her appointments. But overall they are all doing so good . I’m so proud of them . Their teachers have all good things to say 🥰 They work hard and they try their best . With all they go through , they continue to try their best and never give up. They always have smiles on their face at school and you would never know what they go through. These kids are so strong and brave !!! They inspire me so much . They are my world 🥰 I am taking Hunter to the Dr tomorrow to get him checked out . Madison is having pain again on her shunt side so I will be contacting her team tomorrow to see what’s next for her . So many things to monitor and watch for on all 3 . Things get so hard , but all we can do is take one day at time and trust in their team . Please share , follow and like her pages on here and Facebook. All the support is needed . We need all the positive vibes and prayers we can get. We are stronger together.

Had another busy week … lots of appointments and ended it with The Glow Party with Hunter for the mother and son party. ...
02/08/2026

Had another busy week … lots of appointments and ended it with The Glow Party with Hunter for the mother and son party. We had fun but ended up leaving early . Hunter had been having with his asthma . Which I think it is but not 100 percent sure . He says his chest hurts and he’s been having to use his Inhaler a lot more. I will be contacting his Dr this week. He does go back in to see his cardiologist in the next month or so for all his testing . He had Kawaski disease a few years back and can cause heart problems. So he will have a bunch of tests done coming up. I’m hoping and praying that he doesn’t have any issues . But with all these recent stuff I’m a little worried. But we will just take one day at a time . Madison will have her tests and Avah will have her as well in the next couple months . Busy with lots of appointments and tests . So please keep sending us positive vibes and prayers . We need them !! We appreciate it so very much . Follow , share and like this page and if you have facebook go over and do it there too !! Thank you 🎗️❤️

It's been a week of appointments and one awesome Valentine's party for Hunter ❤️! Madison and I are pros at hospital vis...
02/06/2026

It's been a week of appointments and one awesome Valentine's party for Hunter ❤️! Madison and I are pros at hospital visits, car washes, and finding joy in between 😉. Her unbreakable spirit amazes me daily. We're taking it one day at a time, focusing on making memories. Madison's ongoing pain and upcoming tests have us staying vigilant. Your love and support give us strength -

Address

Grand Rapids, MI
49508

Website

https://www.amazon.com/hz/wishlist/ls/82B06UQ9PDK4?ref_=wl_share, https://www.am

Alerts

Be the first to know and let us send you an email when Team Maddie Strong - Fighting together posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Team Maddie Strong - Fighting together:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category