National Organization of Vascular Anomalies (NOVA)

National Organization of Vascular Anomalies (NOVA) patient and family support and education reps for hemangioma, vascular malformation & related syndromes, 501c3a organization. www.novanews.org

12/09/2022
12/09/2022

Hemangiomas, or infantile hemangiomas, are noncancerous growths of blood vessels. They’re the most common growths or tumors in children. They usually grow for a period of time and then subside without treatment.

They don’t cause problems in most infants. However, some hemangiomas may open and bleed or ulcerate. This may be painful. Depending on their size and location, they may be disfiguring. Additionally, they may occur with other central nervous system or spine abnormalities.

The growths may also occur with other internal hemangiomas. These affect internal organs such as:

the liver
other parts of the gastrointestinal system
the brain
organs of the respiratory system
Hemangiomas that affect organs usually don’t cause problems.

05/03/2022
Happy New Year
01/01/2022

Happy New Year

11/30/2021

Tuesday with NOVA. The donation to
NOVA is a raise of $30 or other $ on a
Facebook Fundraiser. NOVA will send the
birthmark pins for a donation.
Email at hall.karla.nova@gmail.com or donate
on

NOVA Needs your support. NOVA is a charitable organization and is eligible for tax deductible donation as a 501c3a tax exempt corporation. EIN 56-2054522. As an all volunteer organization 100% of your donations go towards operating costs.

Vascular anomalies are abnormalities or disorders of the vascular system, either in veins or arteries. Vascular anomalie...
09/01/2021

Vascular anomalies are abnormalities or disorders of the vascular system, either in veins or arteries. Vascular anomalies are classified as either a vascular tumor or a vascular malformation. Blood is pumped through the body in tube-like structures called blood vessels. These vessels form a network.

A hemangioma (he-man-jee-O-muh) is a bright red birthmark that shows up at birth or in the first or second week of life....
09/01/2021

A hemangioma (he-man-jee-O-muh) is a bright red birthmark that shows up at birth or in the first or second week of life. It looks like a rubbery bump and is made up of extra blood vessels in the skin.

Learn more about the causes and treatment of this red mark on the skin of babies that fades over time.

07/10/2021

A 5-year-old from Ethiopia who underwent a 12-hour surgery in New York last month is breathing easier after doctors removed a life-threatening growth from her face and neck.

07/10/2021

“Background
PIK3CA-related disorders include vascular malformations and overgrowth of various tissues that are caused by postzygotic, somatic variants in the gene encoding phosphatidylinositol-3-kinase (PI3K) catalytic subunit alpha. These mutations result in activation of the PI3K/AKT/mTOR signaling pathway. The goals of this review are to provide education on the underlying mechanism of disease for this group of rare conditions and to summarize recent advancements in the understanding of, as well as current and emerging treatment options for PIK3CA-related disorders.”

https://ojrd.biomedcentral.com/articles/10.1186/s13023-021-01929-8

“A hemangioma (he-man-jee-O-muh) is a bright red birthmark that shows up at birth or in the first or second week of life...
06/29/2021

“A hemangioma (he-man-jee-O-muh) is a bright red birthmark that shows up at birth or in the first or second week of life. It looks like a rubbery bump and is made up of extra blood vessels in the skin.
A hemangioma can occur anywhere on the body, but most commonly appears on the face, scalp, chest or back. Treatment for a baby's hemangioma (infantile hemangioma) usually isn't needed as it fades over time. A child who has this condition during infancy usually has little visible trace of the growth by age 10. You may want to consider treatment if a hemangioma interferes with seeing, breathing or other functions.”
Mayo Clinic

Learn more about the causes and treatment of this red mark on the skin of babies that fades over time.

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PO Box 38216
Greensboro, NC
27438

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Hemangioma andVascular Malformations

In 1994 my second child was born with a large hemangioma located in her diaper area. The hemangioma ulcerated, bleed and caused significant pain. All we were told by local physicians was to, “leave it alone it would go away.” After months of searching for a physician that could treat my daughter we finally found a physician with a great deal of experience in the diagnosis and treatment of infantile hemangioma. He referred us to a physician in our state that he had worked with and in ONE out patient procedure our daughters pain and suffering ended. Today my daughter is a healthy young woman who has a passion for working with children. As a result of the lengthy search for a treatment for my daughter we networked with several other families and started a support group called Hemangioma Newsline. We changed our name to be more inclusive of all types of vascular anomalies and are currently under federal ADBA (Also Doing Business As) known at the National Organization of Vascular Anomalies. NOVA is one of the few organizations that provides information and assistance to individuals and families affected by hemangioma and vascular malformations. For more information on how NOVA may assist you email us a hall.karla.nova@gmail.com. NOVA is a 501c3 organization, all donations are tax deductible. www.novanews.org