Mason On A Mission

03/11/2026

Don't forget to sign up to help earn money for the Spina Bifida clinic!

Make sure to put Mason's name!
Each bit of feedback you give, generates $1.60 for the Spina Bifida Association of Kentucky! You can answer as many as you want up to 75 in total. To make it go faster, only answer the ones with the red *. You can do them in less than a minute!
Don't forget to put Mason's name in there so it shows he's earned money for his team!

03/10/2026

This was the first time Mason used this thing. It is not ours but I'm hoping to get Mason something like this.

03/08/2026

I love the work they do because it's great for eye and hand coordination. He's not there a full day yet but I'm told he's always doing a bunch of works. They love how curious and eager he is!

03/05/2026

Make sure to put Mason's name!
Each bit of feedback you give, generates $1.60 for the Spina Bifida Association of Kentucky! You can answer as many as you want up to 75 in total. To make it go faster, only answer the ones with the red *. You can do them in less than a minute!
Don't forget to put Mason's name in there so it shows he's earned money for his team!

03/01/2026

This wasn't available when I had Mason but I also more then likely didn't qualify for the fetal surgery anyway. If I did, I don't think it would have worked for our family. I would have spent 10+ weeks in Cincinnati. They're the closest to us that offers fetal surgery.
https://www.newscientist.com/article/2517249-stem-cell-patch-reverses-brain-damage-in-fetuses-with-spina-bifida/?fbclid=IwdGRjcAQO1zNjbGNrBA7Vv2V4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHktlxvb4IVWJzSMvXKR3dq3WIIPGQRQXX6X3JlTiSNI8lqJv4JnGHVwtNE3m_aem_00nliyl53Prr3OCHdaHX_Q

The congenital condition spina bifida is often treated surgically in the womb, but many children still go on to have mobility issues. The addition of a patch made up of stem cells from donated placentas could improve their long-term outcomes

02/26/2026

Mason's studio responsibility for the week is cleaning the tables and he was finishing it up when I got there to pick him up. The week before he went into the hospital, he was picking trash up off the floor.

02/25/2026

Mason had PT today and he hasn't done this in a long time. He used to hate it but I'm hoping he'll like it more now and start doing it again. She said that he was doing a lot of walking before I came in but I was impressed with what I saw!

02/24/2026

Mason was so excited to learn that he was going to his big boy studio the whole time starting today! One of the lessons he did today is called cylinder blocks. He did at least 8 lessons today, too! Such a hardworking little man. School wore him out and he was out of it when we picked his brother's up.

02/22/2026

I kept Mason home from school on Friday because that's too big of a week to go back to such an exciting and energy filled day. I knew he would need the rest and I was right. He climbed up on the couch and went to sleep and that is something this little guy does not do. He's still tired but he's building strength back up from not moving for 4 days. He is back to being loud, laughing, and smiling, though. That's most important to us.

02/20/2026

We busted out of there at 4 today!! We were loaded down! The doctors said that the amount of bacterial growth in his urine was not significant but they were just going to treat him as if it was the UTI causing everything. His fever was high, he was dehydrated, and had a moderate amount of inflammation. All of the other tests they did were negative and said it could have been something viral causing the fever to be as high as it was. He's happy that he got to suck his thumb for the first time since Monday and he'll be able to sleep on his belly for the first time tonight, too. We were loaded down but I managed just fine 😊 He needed to celebrate his discharge with a coffee! I'm just glad he's better and we're home.

02/18/2026

They're keeping him another night. His urine culture didn't grow anything. Pretty much everything else is negative. His potassium was slightly low so they have some in his IV bag. He's finally resting for once since Monday. He's been too terrified to talk, move, smile, laugh... Too terrified to be Mason 😭 They are going to run more tests on him to see if they can find the cause of the crazy fever he's had since Sunday. He has been fever free since last night but it just keep fluctuating to no fever to fever. They may take him off the IV once he wakes up and hopefully eats and drinks more.

02/17/2026

Mason got a fever Sunday morning some time and just hasn't been acting like himself since. I had an appointment for him today to be seen at his pediatrician for a suspected UTI but he looked so bad that I didn't want to wait so I brought him in Monday night. They did the shunt series, an IV, urine sample, and swab to check for other illnesses. They have him on fluids and Rocephin because it does show he has a UTI. It shows inflammation and some other things are a little out of whack because he's dehydrated. This should just be an observation and should be coming home later today.