Thriving with Scleroderma

11/23/2025

Researchers join us on December 12 for our Global Webinar on Advances in Scleroderma Research! 🔬

Https://us02web.zoom.us/webinar/register/WN_iDU4djYRT12sdizRYzyq3w

We're bringing together experts from around the world to share the latest breakthroughs in understanding and treating scleroderma.

Register today and be part of a global community striving for progress!

11/23/2025

A MULTICENTRE, European randomised controlled trial has found that a structured, high-intensity exercise programme significantly reduces pain and fatigue in people living with systemic sclerosis (SSc). The study, involving 170 participants across six centres, offers some of the strongest evidence to date that targeted physical activity can provide meaningful symptomatic relief alongside usual care.

A 12-week exercise programme reduced pain and fatigue in systemic sclerosis. Learn how high-intensity training could reduce symptoms.

11/21/2025

Unplugging is the best connection.🤗
See you soon🌻

11/21/2025

If you or someone you love is battling chronic pain, autoimmune disease, arthritis, or neurodegenerative illness… this episode could change everything.

This week, I sit down with **Dr. Chris Rogers**, one of the nation’s leading regenerative medicine physicians, for the most eye-opening stem cell conversation we’ve had yet.

We’re diving deep into the *new science, new clinical applications, and new hope* surrounding stem cell therapy in 2025 — far beyond what most people have heard.

*🌟 The Newest Breakthroughs in Stem Cell Therapy 2025*

Cutting-edge applications for *autoimmune diseases* like rheumatoid arthritis & lupus
Promising research in *multiple sclerosis, Parkinson’s, and Alzheimer’s*
How stem cells may help modulate inflammation and immune overactivity
The expanding role of stem cells in *anti-aging and cellular repair*
New data on stem cell use for *heart disease, lung disease, and long-COVID*
How stem cells may improve *gut health and chronic inflammation*

*🦴 Orthopedic & Musculoskeletal Advancements*

New evidence on knee arthritis & cartilage preservation
Stem cell treatment for rotator cuff, tendon tears, and chronic back pain
Combining PRP + stem cells for stronger, longer-lasting results
Why some stem cell injections work — and why other clinics fail patients
How to prepare your body BEFORE treatment to boost outcomes

This is one of the most *important, uplifting, and hope-filled* conversations we’ve ever had on the Move Without Limits Podcast.

**Premiering THIS THURSDAY, Nov. 20 at 9am PT / 12PM ET. If you or someone you love is battling chronic pain, autoimmune disease, arthritis, or neurodegener...

11/21/2025

Explore ways to support your emotional well-being by learning about professional mental health support, as well as self-care modalities and how to incorporate them into your routine. This webinar was developed in collaboration with the National Scleroderma Foundation and features Mary Rose Murray Carey, LCSW (HSS Social Work Manager) and Baptiste Nicolas, LCSW (HSS Senior Social Worker, Rheumatology).

Explore ways to support your emotional well-being by learning about professional mental health support, as well as self-care modalities and how to incorporat...

11/21/2025

Patients with autoimmune rheumatic diseases, such as scleroderma, may walk into your office and look healthy and happy on the surface. Beneath this facade, however, patients experience suffering and debilitating symptoms. But could commonalities help you diagnose these patients earlier and begin more targeted treatment approaches? Dr. Elizabeth Volkmann discloses new findings from her studies aiming to characterize the GI tract and the role of the microbiome in autoimmune diseases with Dr. Jennifer Caudle.

Host: Jennifer Caudle, DO Guest: Elizabeth Volkmann, MD, MS Patients with autoimmune rheumatic diseases, such as scleroderma, may walk into your offi...

11/21/2025

In this powerful video, Grace shares her journey of being diagnosed with juvenile scleroderma at just eight years old—and how growing up with this complex autoimmune disease has shaped her life, her family, and her future.

Together with the Pour Family, Jeep Jamboree is raising money for the SRF! Join them in supporting research for a cure: https://support.srfcur...​

Thank you to Jeep Jamboree for creating this video and sharing it with the SRF.

In this powerful video, Grace shares her journey of being diagnosed with juvenile scleroderma at just eight years old—and how growing up with this complex au...

11/20/2025

The Insighters® platform matches you with paid research opportunities that are tailored to your insights. We make it easier for you to be at the forefront of the industry.

11/20/2025

🇳🇱 - Leny, ‘model in beeld’ 2018

Leny heeft naast sclerodermie ook andere auto-immuunaandoeningen en draagt daar dagelijks de gevolgen van. Door haar medicatie heeft ze regelmatig infecties aan o.a. haar longen en holtes. “Ik vond het geweldig om mee te doen met de fotoshoot in 2018. Prachtig fotoboek! Het was een dag met een gouden randje. Je herkent op zo’n dag veel van jezelf in anderen. Ook de gesprekken met lotgenoten waren heel fijn.

Hopelijk komt er meer bekendheid over Sclerodermie en gaat Scleroderma Framed de wereld over. In mijn omgeving zijn er weinig mensen die weten wat Sclerodermie inhoudt”

Scleroderma framed is voor mij: strijdvaardig, liefdevol en positief”

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🇬🇧 - Leny, Model in the Spotlight, 2018

I am Leny, married and I have a son and two grandchildren.

I used to work as an executive secretary, but am on disability since 2004 as a result of my systemic sclerosis and other autoimmune diseases.

Being part of the 2018 photoshoot was a fantastic experience! I would describe Scleroderma Framed as “go-getters”, “loving”, and “positive”.

11/20/2025

Let your story of strength help guide the National Scleroderma Foundation.

Together, we can ensure we’re advancing research, providing compassionate support and education, and raising awareness about scleroderma.

We're now accepting applications to join the Board of Directors!

Applications are due February 2, 2026.

Learn more and apply here: https://scleroderma.wiki/ScleroBOD

11/20/2025

Sara Othon Foundation 4th Annual Trap Shooting Event: Looking for one team (4 Shooters)if you know anyone who’s interested please reach out.

11/20/2025

Talking stink about someone with mental health challenges is never a good look!

Remember, if you don't have anything nice to say, don't say anything at all!

Kindness matters🤗 Show Aloha!🌺