PA Tourette Syndrome Alliance

02/11/2026

Do you want to learn more about Medical Assistance/Medicaid? There are a couple upcoming Lunch & Learn sessions being put on by The Special Needs Consortium and PA Health Law Project.

SNC PA Health Law Project Lunch and Learn
Time: Feb 12, 2026 12:00 PM Eastern Time (US and Canada)
Join Zoom Meeting
https://zoom.us/j/91908771964?pwd=3CcqhP0GoQ0Qzhhf5wc3LoAPcNeUPA.1
Meeting ID: 919 0877 1964 Passcode: 513108
Additional joining details at
https://zoom.us/meetings/91908771964/invitations?signature=8hVQHPY6u9Ytx371CoqyUwUl0ylowed4iXykrLs1q8

02/06/2026

Fifteen year old Skyler Kozen and his family recently hosted a basket fundraiser at a local community event as his service project! They raised over $1000 to donate to PATSA and spread awareness of Tourette while doing so! Thank you to Skyler and his family!

02/06/2026

This international movie is coming to the USA!

It’s finally happening. 🔥 The long-awaited by Kirk Jones opens nationwide April 24! Mark your calendars - this spring is locked in.

02/03/2026

Legislative Committee Update:

Governor Shapiro spoke in a joint House & Senate session today on his 2026-2027 budget.

I'm happy to report that Tourettes has been included in the preliminary proposal for the full $159,000.

While this is good we are hoping to finally be brought on a level playing field with many of the other disabilities line items we are grouped with as we are lagging greatly.

I encourage all families to please sign up for our 2026 Advocacy Day at the Capital on March 24th 8:30-3 in the Main Rotunda.

Legislators love to hear directly from students and children about how they are affected both in school and at home while learning how PATSA has directly impacted them for the better.

If you can't make Harrisburg please reach out to Jeffrey Mason at: jcmason412patsa@gmail.com as we have a program to meet with your legislators in the district office.

Thanks
Jeffrey C Mason
Legislative Chair

01/29/2026

Feel free to share this with your school! Upcoming FREE webinars for Educators and Nurses. Three choices of times available. Feb 16th and Feb 18th. Read more and register here: https://patsainc.org/resources-and-support/support-for-schools/

01/23/2026

One of our board members, Jordan Galing, is holding a fundraiser for PATSA on April 18, 2026! See the info in the image:

01/22/2026

Read about this fella from Michigan who runs his own cafe and has TS:

Dylan Larson bought a small restaurant in Michigan at just 18 years old. Now 21, he runs Rare Earth Goods Café in Ishpeming completely alone. He takes every order, cooks every meal, washes every dish, and manages the books, including taxes. When he gets sick, the café simply closes until he recove...

01/19/2026

🚨 NEW RESEARCH ALERT 🚨

A new article published in Neurology sheds light on how s*x differences impact diagnosis, lived experiences, and health outcomes in Tourette syndrome and chronic tic disorders.

🧠 What does this study highlight?
Based on data from a large international sample, the authors found that:
• Females with Tourette syndrome are less likely to receive a clinical diagnosis
• They often experience later diagnosis and longer delays between symptom onset and diagnosis
• These differences may contribute to unmet needs and disparities in care

📊 Understanding how s*x and gender influence tic disorders is essential to improving early recognition, accurate diagnosis, and equitable support worldwide.

🔗 Read the full article here:
https://www.neurology.org/doi/full/10.1212/WNL.0000000000210249

At TTAG, we are committed to sharing research that helps drive awareness, equity, and better care for the global Tourette community.

💬 Join the conversation and help spread evidence-based knowledge.

01/19/2026