Sickle Cell Disease Association of America, Inc.

11/16/2025

November is National Family Caregivers Month! 👨‍👩‍👦

Thank you to the caregivers who support family members with sickle cell disease. From attending appointments to managing medication to providing emotional and physical support, we appreciate all that you do.

11/15/2025

📣 Your response is needed! Our newest survey is live.

In designing a clinical trial, it is important to develop and capture outcomes of specific endpoints (goals) to establish whether or not a new therapy is beneficial to and/or desired by a person living with sickle cell disease (SCD).

Pain has been a traditional endpoint used to make that determination. However, we understand there are other SCD complications that should be taken into consideration as endpoints, such as sleep deprivation or fatigue. This survey will help SCDAA guide the development of research protocols that more accurately reflect the needs of the sickle cell community. Share your thoughts: https://bit.ly/4i6NFHa

11/14/2025

Strong. Courageous. EmPOWERed.🙌

The 53rd Annual National Convention in Rosemont, Illinois, was a huge success! Thank you to everyone who joined us and helped make this event possible. See our community in action: https://flic.kr/s/aHBqjCAnH8

Want to show off your convention pride? Commemorative shirts are now available! Short sleeve t-shirts, sweatshirts, pull-over hoodies and zip hoodies are for sale. All proceeds benefit SCDAA. Order here: https://scdaaconvention.printful.me/

11/13/2025

11/13/2025

November is Gratitude Month here at SCDAA — and we’re dedicating it to you. 🫶

Your support powers our mission, advocacy and hope for families impacted by sickle cell disease across the country. Because gratitude isn’t just a feeling — it’s action. From all of us at SCDAA, thank you!

Check out some of the highlights from the past year and see our community in action!

11/11/2025

Today is Veterans Day, a time to remember and honor all who have served or are actively serving our country. Thank you, veterans!

11/10/2025

Your participation in clinical trials helps researchers develop new sickle cell treatments and gives you access to breakthrough treatments before they are available to the public. Our Clinical Trial Finder offers a comprehensive list of local research opportunities for warriors. To find a clinical trial near you, visit: https://buff.ly/D7wYAsJ

11/09/2025

Make a difference for someone living with sickle cell disease by donating blood. Your generous blood donation helps ensure that sickle cell warriors receive the lifesaving transfusions they depend on to alleviate pain and reduce complications. Donate today: https://buff.ly/73fWUIZ

11/08/2025

Sign up for the SCDAA and MedicAlert pilot program to streamline your care in the emergency room. When you are a participant, all you need to do during a sickle cell crisis is present your Smart Medical ID Card to the emergency room staff, who can then easily access the information they need to start your treatment. Learn more and register today: https://buff.ly/V1cLohm

11/07/2025

Today marks the end of International Stress Awareness Week, an important reminder to have open conversations about mental health, particularly when managing the challenges associated with sickle cell disease. Joining a support group and dedicating time for self-care are just a couple of proactive steps highlighted in our mental health toolkit. Learn more: https://buff.ly/TDckuiZ

11/06/2025

Sign up for our weekly e-newsletter to get all the latest news from SCDAA and updates affecting our warriors! Connect with the sickle cell community and support a future where every warrior receives the care they deserve. Sign up here: https://buff.ly/467rMFE