Sickle Cell Disease Association of America, Inc.

Sickle Cell Disease Association of America, Inc. The Official page of the National Sickle Cell Disease Association of America, Inc.
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What SCDAA does:

* Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.

* Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.

* Organize and/or participate in national and regional educational conferences.

* Develop and promote the implementation of service programs that will be in the best interest of the affected population.

* Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.

* Assist in the organization and development of local chapters.

* Provide ongoing technical assistance to members and other interested groups or organizations.

* Encourage adequate support for research activities leading to improved treatment and eventual cure.

Our next   shines a light on the life and legacy of the "father of sickle cell disease" - Dr. Roland B. Scott. Dr. Scott...
02/15/2026

Our next shines a light on the life and legacy of the "father of sickle cell disease" - Dr. Roland B. Scott. Dr. Scott's groundbreaking research and dedication to patients during a time of intense discrimination paved the way for progress in SCD treatment.

Dr. Scott was born in 1909 and graduated with his medical degree from Howard University in 1934. He spent the majority of his career in the pediatrics department of Howard University. During this time, he began to notice the high number of African American children in the emergency room experiencing sickle cell symptoms and complications.

Dr. Scott was a trained allergist, but he switched his focus to help improve treatment for this misunderstood disease. A compassionate pediatrician, Dr. Scott held office hours in the evenings during which he would see African American children and families who were discriminated against and denied access to medical treatment.

Dr. Scott would go on to publish hundreds of articles on sickle cell disease during his time at Howard University. Although he did not specialize in hematology, in 1948 Dr. Scott published a paper on the sickling of red blood cells in newborns. This paper established a better understanding of sickle cell disease and laid the groundwork for newborn screening as we know it today.

In addition to being a dedicated researcher, Dr. Scott was a fierce advocate for sickle cell disease. His advocacy played a large role in the federal government’s passing of the Sickle Cell Anemia Control Act of 1971, which ensured nationwide funding for SCD research and treatment.

In 1972, Dr. Scott founded the Howard University Center for Sickle Cell Disease, which continues to conduct research and provide care to sickle cell patients today. He passed away in 2002. Dr. Scott’s work and advocacy changed the landscape for sickle cell disease, and we owe so much of our capability to treat and understand sickle cell to his efforts.

02/13/2026

that today is World Anemia Awareness Day? 🩸

Sickle cell disease is also called sickle cell anemia, but what is anemia exactly? Learn more from Dr. Lewis Hsu (AKA Dr. "Seuss"), pediatric hematologist and SCDAA board member.

Exciting news: SCDAA's 2025 Impact Report is out now! 🎉2025 was a year like no other. Discover our impact, learn more ab...
02/12/2026

Exciting news: SCDAA's 2025 Impact Report is out now! 🎉

2025 was a year like no other. Discover our impact, learn more about our events and initiatives and reflect on the progress we made together in our Impact Report.

Read more ➡️ sicklecelldisease.org/impact-report

🗣️ Sickle cell disease is considered rare. Its impact is not.More than 100,000 people live with sickle cell disease in t...
02/11/2026

🗣️ Sickle cell disease is considered rare. Its impact is not.

More than 100,000 people live with sickle cell disease in the United States, and nearly 500,000 are impacted when families, caregivers and trait carriers are included.

That’s why this year we’re focusing on a distinction that matters: Sickle cell is a disease. Not a people.

All February long, during Rare Disease Month, we’re raising awareness and support for the work that happens every day to serve the sickle cell community.

Support SCDAA by making a gift today ➡️ https://bit.ly/SCDAA_Rare2026

It’s not too late to join us for our upcoming SCDAA Community Health Worker (CHW) Training! Our signature spring course ...
02/08/2026

It’s not too late to join us for our upcoming SCDAA Community Health Worker (CHW) Training!

Our signature spring course begins on March 2. Learn everything you need to know to become a CHW while deepening your sickle cell knowledge.

Learn more and apply ➡️ https://buff.ly/GZa0qFA

Our first Black History Month   this year features Dr. Angella D. Ferguson, a pediatrician and SCD pioneer who recently ...
02/06/2026

Our first Black History Month this year features Dr. Angella D. Ferguson, a pediatrician and SCD pioneer who recently passed away at the age of 100.

Dr. Ferguson was born in 1925 and received her bachelor’s and medical degrees from Howard University. After graduation, she began work as a medical researcher at Howard University’s School of Medicine, where she aimed to gather data correlating the height and weight of children with age.

While completing this research, she discovered that a large number of African American children suffered from sickle cell disease, which, at the time, was a fairly unknown condition. She changed gears and committed her time to understanding how the disease presents itself in children. In doing so, she became one of the first researchers to dedicate her studies to sickle cell.

Dr. Ferguson’s research had lasting impacts on how sickle cell is diagnosed and treated. She developed a blood test to diagnose the disease in infants, and her test is the standard in most states to this day. Thanks to her research, we better understand which symptoms to look for in children and can start treating sickle cell earlier.

Dr. Ferguson passed away on January 6, 2026. We send our condolences to her family and friends and extend our deepest appreciation for her steadfast commitment to our community.

SCDAA is proud to present our new and improved website to the community! We encourage you to spend some time browsing th...
02/05/2026

SCDAA is proud to present our new and improved website to the community! We encourage you to spend some time browsing through the enhanced content. Major updates include:
▪️New SCDAA member organization finder designed to help you quickly identify your closest member org.
▪️Updated resources for warriors/caregivers and providers.
▪️New information on sickle cell disease, sickle cell trait and the differences between the two.
▪️Enhanced Clinical Trial Finder with a hover and click glossary enabled, helping you to better understand your search results.
▪️Expanded history section, where you can learn about the origins of SCDAA and the major events that have brought us where we are today.
▪️And more!

Take a look ➡️ https://sicklecelldisease.org

Exciting news! 🎉 Today, the House of Representatives passed a package of bills providing funding for government programs...
02/03/2026

Exciting news! 🎉 Today, the House of Representatives passed a package of bills providing funding for government programs for fiscal year (FY) 2026, which runs through September 30, 2026. The President is expected to quickly sign the bill into law. All three federal sickle cell disease programs were maintained with the same funding levels as years prior, and the package includes other SCDAA priorities. Read more ➡️ https://sicklecelldisease.org/advocacy/congress-passes-government-funding-bill-with-big-wins-for-the-scd-community/

Happy Black History Month! Join us over the next few weeks to learn more about notable Black physicians and researchers ...
02/02/2026

Happy Black History Month! Join us over the next few weeks to learn more about notable Black physicians and researchers who helped advance the treatment of sickle cell disease.

SCDAA, in partnership with Cayenne Wellness Center, is excited to present “Being a Radical CHW” as part of SCDAA’s P.O.W...
01/29/2026

SCDAA, in partnership with Cayenne Wellness Center, is excited to present “Being a Radical CHW” as part of SCDAA’s P.O.W.E.R. ECHO Community Health Worker (CHW) training webinars. This series of five, free, one-hour trainings will be hosted by Jolene Swain, MSW, director of practicum education, co-principal investigator for the Minority Male Mentoring Program (M3) and UNAM academic lead at California State University Northridge Department of Social Work. Register ➡️ https://sicklecelldisease.org/power-echo-project/

⌛ Time is running out.  Only a few days left to make a difference during National Blood Donor Month!Make a pledge today ...
01/27/2026

⌛ Time is running out. Only a few days left to make a difference during National Blood Donor Month!

Make a pledge today to give blood before the month is over. The American Red Cross is facing a severe blood shortage in the United States. 🩸

Blood donors – especially those who are of African Descent – are needed to ensure that sickle cell warriors have access to the blood transfusions they need to stay healthy. 🤝

Stuck inside with winter weather? Schedule an appointment for the future and put making a difference on the calendar! 📆

Find a blood drive ➡️

Certain blood types are unique to specific racial and ethnic groups, which is why it is important to have a diverse blood supply available for patients.

Address

7240 Parkway Drive, Ste 180
Hanover, MD
21076

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