Sickle Cell Disease Association of America, Inc.

Sickle Cell Disease Association of America, Inc. The Official page of the National Sickle Cell Disease Association of America, Inc.
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What SCDAA does:

* Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.

* Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.

* Organize and/or participate in national and regional educational conferences.

* Develop and promote the implementation of service programs that will be in the best interest of the affected population.

* Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.

* Assist in the organization and development of local chapters.

* Provide ongoing technical assistance to members and other interested groups or organizations.

* Encourage adequate support for research activities leading to improved treatment and eventual cure.

Happy New Year from SCDAA! Wishing you health and joy in 2026 ✨
01/01/2026

Happy New Year from SCDAA! Wishing you health and joy in 2026 ✨

⌛ As 2025 comes to a close, there’s still time to make your gift to SCDAA count this year. Every donation today helps us...
12/31/2025

⌛ As 2025 comes to a close, there’s still time to make your gift to SCDAA count this year.

Every donation today helps us advance our mission and bring hope to everyone impacted by sickle cell disease.

Give today ➡️ https://bit.ly/SCDAAdonate

✋ Don’t miss the chance to take our survey about clinical research participation! Your response will help us guide the d...
12/27/2025

✋ Don’t miss the chance to take our survey about clinical research participation! Your response will help us guide the development of research protocols that more accurately reflect the needs of the sickle cell community. Share your thoughts ➡️ https://bit.ly/4i6NFHa

12/26/2025

Here’s your reminder to rest 💤

Are you still buzzing from the holidays? Watch our most recent masterclass and discover why taking time for yourself is so important during this season: https://youtu.be/F9JY6zSFYag

Happy holidays from SCDAA! We wish you and yours peace and good health as we celebrate the holiday season. ✨
12/24/2025

Happy holidays from SCDAA! We wish you and yours peace and good health as we celebrate the holiday season. ✨

📰 SCDAA's December Legislative Briefing is out now! Read more about this year in advocacy and the important report from ...
12/23/2025

📰 SCDAA's December Legislative Briefing is out now!

Read more about this year in advocacy and the important report from the National Academies of Sciences, Engineering, and Medicine (NASEM) report on sickle cell disease and Social Security disability evaluations ➡️ https://buff.ly/JcbTsBs

📝 Have you taken our survey about clinical research participation yet? We need your response ➡️ https://bit.ly/4i6NFHa ...
12/22/2025

📝 Have you taken our survey about clinical research participation yet? We need your response ➡️ https://bit.ly/4i6NFHa

Today is the first day of winter. ❄️ The temperature is dropping, which means it's important for individuals with sickle...
12/21/2025

Today is the first day of winter. ❄️

The temperature is dropping, which means it's important for individuals with sickle cell to stay warm, hydrated and relaxed. More tips for staying healthy this season ➡️ https://buff.ly/SLGGgTl

12/19/2025

Make sure to take care of yourself this holiday season. 🎁

If you missed our Masterclass 🎥 on wellness during the holidays, watch the recording for support with navigating feelings of loss, grief and stress that may come up over the next few weeks ➡️ https://buff.ly/VyyxGaE

Earlier this year, we received a donation from a third-grade class that had learned about sickle cell disease and wanted...
12/17/2025

Earlier this year, we received a donation from a third-grade class that had learned about sickle cell disease and wanted to make a difference. 🤝

While attending a conference with her mother, one of the students heard something that stuck with her: “Researchers get paid more to try to bring back saber tooth tigers and woolly mammoths than they do to cure sickle cell disease.”

Dismayed, she and a friend decided to take action. They built a cardboard donation box, rallied their classmates, and started collecting money — all on their own. Their parents didn’t even find out about it until the children began talking about it at home!

When the box was full, one of the parents sent in the donation and shared photos of the box, signed by all the kids (and even a teacher) who gave. 🎁

It’s a powerful reminder that compassion and advocacy start early — and that no act of generosity is too small to create change. 🫶

Be part of the story — give your year-end gift today: https://bit.ly/SCDAAdonate

📰 READ: SCDAA Response to National Academies Release of Final Report on Sickle Cell Disease and Social Security Disabili...
12/15/2025

📰 READ: SCDAA Response to National Academies Release of Final Report on Sickle Cell Disease and Social Security Disability Evaluations

On December 9, 2025, the National Academies of Sciences, Engineering, and Medicine (NASEM), released the second and final Sickle Cell Disease in Social Security Disability Evaluations 2025 Report.

The Sickle Cell Disease Association of America Inc. (SCDAA), and its Medical and Research Advisory Committee (MARAC) strongly support the report’s conclusions and is eager to work with the Social Security Administration to implement appropriate and needed changes to the current Social Security disability criteria for sickle cell disease.

Learn more ➡️ https://buff.ly/Pcp5RYZ

Tomorrow! Get ready to face the holidays during our final Masterclass of 2025. Join us for this virtual session to learn...
12/15/2025

Tomorrow! Get ready to face the holidays during our final Masterclass of 2025.

Join us for this virtual session to learn more about:
◾ Navigating holidays and special occasions
◽ Coping with feelings of loss, grief and stress
◾ Paving the way to acceptance, wellness and joy

Sign up for free today ➡️ https://bit.ly/49EWYrW

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7240 Parkway Drive, Ste 180
Hanover, MD
21076

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