01/09/2025
If you have HHT and want to be a participant in a study (one you don't have to wait to pass away to be a part of), see below!
Cure HHT and Diagonal Therapeutics are teaming up to launch an observational study and we need your help!
By tracking your nosebleeds, healthcare visits, and quality of life over a year, you’ll help researchers gain a clearer picture of living with HHT.
Together we can pave the way for better understanding and care!
What’s Involved?
Remote Participation: Record daily experiences from your phone.
Year-Long Study: Committed to tracking nosebleeds and healthcare needs over time.
Share Your Story: Your experience is essential to understanding the HHT journey—help researchers see what you truly go through.
Eligibility:
✓ Are you 18 years or older living in the US?
✓ Have a confirmed HHT diagnosis and moderate to severe nosebleeds?
✓ Willing to log regular updates for over a course of a year?
Does this sound like you? Click the button below to access our questionnaire and see if you qualify.
Thank you for considering this opportunity to make an IMPACT for the future of HHT research and care.
If you have any questions, reach out to us at Research@curehht.org
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© 2024 Copyright HHT Foundation International, Inc.
Mailing
P.O. Box 329, Monkton, MD 21111 USA
www.curehht.org
Contact Us
phone | 410-357-9932
fax | 410-472-5559
email | hhtinfo@curehht.org
HHT disease is a genetic blood vessel disorder that affects 1 in 5,000 people - 90% of whom are undiagnosed. Our mission is to find a cure for HHT.