Tegan’s Journey

02/13/2026

Aunt Heather fixed up side by sides.

02/12/2026

After Surgery Feb 2026

02/12/2026

Before Sugary June 2025

12/24/2025

Tegan is back load bearing with a walker.

12/19/2025

Pictures from Tegan’s Surgery to remove her external frames.

12/10/2025

Dr just came out and brought us a gift. Tegan is still in recovery.

12/02/2025

Tegan will be having her lower external fixators removed next week on Wednesday morning, 12/10/25.
She is excited and nervous. What a journey this part has been!!!

11/14/2025

So this update is past due, and I’m so sorry for that. We had a month this last time between appointments instead of two weeks. Since all of the lengthening is complete it wasn’t necessary. Everything looked great on the X-rays. Her legs are also laying more flat. The ladies in X-ray noticed that right off. The dr wanted her to increase her protein intake as it will help in bone growth.
Her feet are still not flat. The Dr explained that when we go back for surgery in a few weeks, they will just kind of snip a little on each side of her Achilles tendons. Think of a rope abd just fraying on each side. It will grow back so she will not have ankle weakness.
We will tentatively be going back Dec. 10. They will take X-rays and after the Dr looks at them, if everything looks good, she will schedule surgery for the next day. The lower fixators will come off. We will be able to come home that day.
Tegan is standing more at home and using her walker. She also gets in and out of the bed into her wheelchair by herself. Taking care of personal care by herself. She stood up at the bar and was so shocked. Before surgery she was eye level with it. She now stands a good 4 inches above it. I asked her if the surgery was worth it, and got a big Yes!!!
Thank you all for caring about our girl.

09/30/2025

09/30/2025

Therapy is hard!!!

09/30/2025

Both of the nails in Tegan’s femurs are completely finished. The external fixator on her right leg will be finished in 4 days and the left leg in 7 days. We are in the finishing stage and it’s so exciting. We saw her endocrinologist two weeks ago and he did some preliminary measuring of her right side. We knew going in she was guaranteed two inches on the femur. His measurements were exciting for all of us. It looks to be between 4 1/2 to 5 inches conservatively on the right side. She still is on the shot also that makes her bones grow. She has gained about 3 1/2 inches length on her arms. That’s just from the shot. The quality of life that has helped with is amazing. This is a hard, but exciting journey.
These are her latest x rays. She is the bravest person I know.

09/29/2025