Foundation For Sickle Cell Disease Research

Foundation For Sickle Cell Disease Research Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Foundation For Sickle Cell Disease Research, Medical Research Center, 1685 South State Road 7, Unit 4, Hollywood, FL.
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The Foundation for Sickle Cell Disease Research (FSCDR) is the United States’ first outpatient center exclusively dedicated to the treatment of and innovative research for SCD. The Foundation for Sickle Cell Disease Research (FSCDR) is committed to supporting innovative research in sickle cell disease to help maximize quality of life and improve survival for the generations of people affected with this disease. FSCDR is a comprehensive, non-profit organization that provides a platform for researchers, healthcare providers, individuals and their families living with sickle cell disease and supporters to work collaboratively in identifying barriers that are limiting creation, adoption and adherence to evidence-based screening recommendations, new therapeutics and best practices that help in the management of sickle cell disease. FSCDR understands that research must be supported with data and that education plays a key role in empowering people and affecting change; therefore, its venues directly promote these principles. As part of its extensive platform, FSCDR offers educational initiatives that help to expand the understanding of sickle cell disease through its Annual Sickle Cell Disease Research Meeting and its scholarly Journal of Sickle Cell Disease and Hemoglobinopathies. FSCDR also provides networking that facilitate collaborative learning through its membership-based Sickle Cell Research Society of America (SCRSA) and its general Corporate Engagement Forum, which also invites patient participation. Most importantly, FSCDR has created the first-ever Sickle Cell Disease and Thalassemia Patient Registry that allows researchers access to vital information for data mining, qualitative and quantitative research that can help pave the way toward a better understanding of sickle cell disease and innovations in the treatment of sickle cell disease and related disorders. The Registry also has a health record portal for individuals with sickle cell disease to keep track of their health information, receive reminder notifications, and share their health record with their doctor (s). FSDCR appreciates the benefits of being united in the common cause of sickle cell disease research and medical care with academia, pharmaceutical, biotechnology, and community organizations.

The Foundation for Sickle Cell Disease Research (FSCDR) is pleased to announce that Dr. Hyeseon Levitsky will present Jo...
02/26/2026

The Foundation for Sickle Cell Disease Research (FSCDR) is pleased to announce that Dr. Hyeseon Levitsky will present Journavx (Suzetrigine) and Emerging Nonopioid Approaches to Acute Sickle Cell Pain at the Symposium.

Dr. Levitsky is an Assistant Professor at Larkin University College of Pharmacy with more than 25 years of experience in pharmacy practice, including leadership roles as Clinical Pharmacy Coordinator, Investigational Drug Services Coordinator, and Director of Pharmacy.

Her work integrates clinical trials, health-system practice, and pharmacy education, with a focus on patient education and the safe, effective use of approved and investigational therapies in hematology.

This session will focus on practical, evidence-informed approaches to the assessment and management of acute pain in sickle cell disease (SCD), with particular attention to clinical decision-making around newer non-opioid analgesic options such as Journavx (suzetrigine). The presentation will examine real-world challenges encountered in outpatient and transition-of-care settings, including appropriate medication selection, balancing opioid and non-opioid therapies, and interprofessional coordination.

Join us in Fort Lauderdale for this session!

Register Now: https://fscdr2026.eventscribe.net/

Your greatest strength isn’t always visible — it lives in your spirit.It’s in your mindset, your faith, your courage, an...
02/25/2026

Your greatest strength isn’t always visible — it lives in your spirit.
It’s in your mindset, your faith, your courage, and your ability to rise with hope each day. Even when things feel uncertain, your inner strength continues to carry you forward and shape the incredible person you are becoming.

We are here to support you at our Hollywood location:1685 S. State Road 7, Unit 4, Hollywood, FL 33023Open 24/7As our fl...
02/24/2026

We are here to support you at our Hollywood location:
1685 S. State Road 7, Unit 4, Hollywood, FL 33023
Open 24/7

As our flagship Sickle Cell Center of Excellence, this facility represents the heart of FSCDR’s mission — delivering expert care, compassionate support, and vital resources for individuals living with sickle cell disease, whenever you need us.

📍 Hollywood, FL
🕘 Open 24/7

Learn more about our services at fscdr.org.

The Foundation for Sickle Cell Disease Research (FSCDR), under the Sickle Cell Disease Workforce Development Program, of...
02/23/2026

The Foundation for Sickle Cell Disease Research (FSCDR), under the Sickle Cell Disease Workforce Development Program, offers this live webinar delivered in partnership with PRIME Education.

Price: Free

The webinar explores the latest strategies in precision diagnostics, laboratory monitoring, and imaging for sickle cell disease (SCD). Participants will gain practical insights into routine lab tests, newborn screening interpretation, and hemoglobin evaluation, as well as monitoring iron overload in patients receiving regular transfusions. The session will also highlight emerging evidence on inflammatory and coagulation markers, biomarkers for organ damage, and advanced imaging techniques such as transcranial Doppler and MRI for stroke prevention. Attendees will leave with actionable knowledge to enhance diagnostic accuracy, improve patient monitoring, and optimize care across the SCD continuum.

The webinar will cover:

• Routine Laboratory Tests for Sickle Cell Disease Diagnosis and Monitoring; Point-of-Care Resource: Interpreting NBS Results and Hemoglobin Evaluation
• Measuring Iron Overload in Patients Receiving Routine Transfusions
• Latest Evidence for Inflammation and Coagulation Markers in Sickle Cell Disease
• The Role of Biomarkers in Assessing Sickle Cell-Related Organ Damage
• Advanced Imaging for Stroke Prevention & Diagnosis: Transcranial Doppler (TCD) Screening Protocols; Interpretation of High-Risk TCD findings; Utility of MRI for Stroke and Silent Infarcts

Who Should Attend:

Physicians, advance practice providers (NP/PA), nurses, pharmacists, psychologists, and social workers caring for patients with sickle cell disease.

Faculty

Betty S. Pace, M.D.
Francisco J. Tedesco Distinguished Chair of Pediatric Hematology/Oncology
Professor of Pediatrics, Biochemistry and Molecular Biology, and Graduate Studies
Director, Sickle Cell Program Telehealth Center
Augusta University

Patrick C. Hines, M.D., PhD
Associate Professor, Department of Pediatrics, Wayne State University School of Medicine
Laboratory Director, Functional Fluidics

Anthony Hall, MDCM, FACS, FAANS
Chief Medical Officer, The Foundation for Sickle Cell Disease Research
Assistant Professor, Herbert Wertheim Florida International University College of Medicine
Associate Professor, Nova Southeastern College of Osteopathic Medicine and the College of Allopathic Medicine

Register Now:
https://primeinc.org/virtual/precision-practice-laboratory-imaging-advances-sickle-cell-disease?mc_cid=f52d1e414b&mc_eid=UNIQID

Upcoming Webinar – Week 6 of the Expert Insights in Action: 6-Week Sickle Cell Disease Management (SDM) CourseTopic: Han...
02/20/2026

Upcoming Webinar – Week 6 of the Expert Insights in Action: 6-Week Sickle Cell Disease Management (SDM) Course

Topic: Hands-On Pediatric Sickle Cell Disease Management
Date: Friday, February 20, 2026
Time: 3:00 PM ET
Duration: 30 minutes
Price: Free

The Foundation for Sickle Cell Disease Research (FSCDR), in partnership with PRIME Education, presents Week 6 of this interactive 6-week Sickle Cell Disease Management Course. Participants may join the series at any point.

This session will cover:
• Patient Case: Interpreting Newborn Screening (NBS) Results
• Point-of-Care Resource: Interpreting NBS & Hemoglobin Evaluation
• Patient Case: Pediatric Treatment Selection and Management
• Point-of-Care Resource: Treatment Selection & Sequencing for Chronic SCD Management

Who Should Attend:
Physicians, advance practice providers (NP/PA), nurses, pharmacists, psychologists, and social workers caring for individuals with sickle cell disease.

0.5 CME/CE credit available.
Delivered by PRIME Education in partnership with FSCDR.

Register Now
https://primeinc.org/virtual/expert-insights-action-6-week-sdm-course-hands-on-pediatric-sickle-cell

02/20/2026

“Caregivers need just as much support. The pain of watching your child suffer can be overwhelming — and it stays with you. That’s why self-care isn’t optional, it’s essential.”

— Andrea Hall

02/19/2026

FSCDR Sickle Cell Center of Excellence – St. Petersburg, FL

Our St. Petersburg location is dedicated to delivering expert care, compassionate support, and essential resources for individuals and families affected by sickle cell disease.

📍 4040 49th Street North, St. Petersburg, FL 33709
🕘 Open Monday–Friday, 8:30 AM to 5:00 PM

Learn more about our services at fscdr.org.

The Foundation for Sickle Cell Disease Research (FSCDR) is pleased to announce Dr. Kofi A. Anie as Chair of the Educatio...
02/18/2026

The Foundation for Sickle Cell Disease Research (FSCDR) is pleased to announce Dr. Kofi A. Anie as Chair of the Educational Session on Behavioral and Mental Health at the Symposium.

Dr. Anie is a Consultant Psychologist at London North West University Healthcare NHS Trust, affiliated with Imperial College London, where he leads psychology services for sickle cell disease (SCD) and thalassaemia. He also serves as Deputy Clinical Director of the West London Haemoglobinopathies Coordinating Centre and is the Clinical Psychology Advisor for NHS England’s Getting It Right First Time (GIRFT) Sickle Cell Disease and Thalassaemia Programme.

Dr. Anie has contributed to the development of both national and international clinical guidelines and standards of care for SCD and thalassaemia, and was a co-opted expert for NICE guidelines on acute pain management in SCD. He has collaborated on numerous international initiatives and currently holds a Visiting Faculty position at the West African Genetic Medicine Centre (WAGMC), University of Ghana. His research interests span sickle cell pain, quality of life, treatment adherence, digital health, and the application of artificial intelligence in patient self-management. In recognition of his contributions, he was awarded the Member of the Order of the British Empire (MBE) for Services to People with SCD and Thalassaemia in the 2017 Queen’s Birthday Honours.

Behavioral and mental health challenges remain among the most underrecognized aspects of sickle cell care. While advances in treatment continue to improve clinical outcomes, progress is incomplete if the psychological burden of living with SCD is not addressed. Join us in Fort Lauderdale or via global livestream for this important educational session on behavioral and mental Health.

Register Now: https://fscdr2026.eventscribe.net/

Strength Every Step of the WayEach day with sickle cell takes strength most can’t see.To every warrior — your courage, p...
02/17/2026

Strength Every Step of the Way

Each day with sickle cell takes strength most can’t see.
To every warrior — your courage, perseverance, and hope inspire us all.
You remind the world that resilience lives in every heartbeat.

The Foundation for Sickle Cell Disease Research (FSCDR), under the Sickle Cell Disease Workforce Development Program, of...
02/16/2026

The Foundation for Sickle Cell Disease Research (FSCDR), under the Sickle Cell Disease Workforce Development Program, offers this live webinar delivered in partnership with PRIME Education.

Price: Free
Duration: 1 hour 30 minutes

The webinar focuses on optimizing care for pediatric patients with sickle cell disease (SCD). Participants will explore the pathophysiology and genetic underpinnings of SCD, gaining insight into how these factors influence clinical outcomes in children. The session will review the latest guidelines for diagnosis, including interpretation of newborn screening results and hemoglobin evaluations, with practical point-of-care resources to support clinical decision-making. The program will also highlight evolving treatment strategies and comprehensive management approaches, from hydroxyurea therapy to gene therapy and bone marrow transplantation. Attendees will leave with actionable tools and knowledge to provide evidence-based, patient-centered care and improve outcomes across the pediatric SCD continuum.

The webinar will cover:

• Overview of SCD Pathophysiology, Genetic Basis, and Clinical Manifestations
• Latest Guideline Recommendations for Diagnosis of SCD: Interpretation and Implications of Newborn Screening Tests; Point-of-Care Resource: Interpreting NBS Results and Hemoglobin Evaluation
• Evolving Treatment Paradigm and Comprehensive Management of Pediatric Patients With SCD: Approach to Hydroxyurea, Gene Therapy, Bone Marrow Transplantation; Point-of-Care Resource: Treatment Selection and Sequencing for Chronic SCD Management

Who Should Attend:

Physicians, advance practice providers (NP/PA), nurses, pharmacists, psychologists, and social workers caring for patients with sickle cell disease.

1.5 CME/CE credit available.

Faculty

Ofelia A. Alvarez, M.D.
Professor, Pediatrics
Director, Pediatric Sickle Cell Program
Director, Hemoglobinopathy Newborn Screening Follow Up Program for Miami-Dade and Monroe Counties

Nadia D. Taylor, M.D.
Clinical Research Physician, The Foundation for Sickle Cell Disease Research

Register Now: https://primeinc.org/virtual/expert-insights-next-level-pediatric-sickle-cell-care-newborn-screening?mc_cid=79254f3f65&mc_eid=UNIQID

02/16/2026

The 20th Annual Sickle Cell Disease Research and Educational Symposium & The 49th National Sickle Cell Disease Scientific Meeting

Friday to Sunday, June 5-7, 2026 | Hybrid Event – Broward County Convention Center, Fort Lauderdale, FL

The Symposium brings together researchers, physicians, clinicians, healthcare providers, nurses, Sickle Cell Warriors, and the wider community to advance sickle cell disease research, treatment, and awareness.

Over the past two decades, this gathering has evolved from a regional meeting into a global movement, catalyzing collaborations that have led to clinical trial breakthroughs and improved quality of life for thousands of Sickle Cell Warriors. The 2026 Symposium promises to honor this legacy while propelling us into the next era of innovation.

This year marks a historic milestone: the 20th anniversary of the Symposium, celebrated under the inspiring theme “The Golden Age.” This theme reflects the unprecedented progress in sickle cell research and treatment we’re witnessing today, from gene therapies and improved standards of care to growing public awareness.

The 2026 event is a hybrid program, offering both in-person engagement in Fort Lauderdale, FL and virtual access worldwide.

Register Now
https://fscdr2026.eventscribe.net

Address

1685 South State Road 7, Unit 4
Hollywood, FL
33023

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+18444465744

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