Foundation For Sickle Cell Disease Research

Foundation For Sickle Cell Disease Research Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Foundation For Sickle Cell Disease Research, Medical Research Center, 1685 South State Road 7, Unit 4, Hollywood, FL.
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The Foundation for Sickle Cell Disease Research (FSCDR) is the United States’ first outpatient center exclusively dedicated to the treatment of and innovative research for SCD. The Foundation for Sickle Cell Disease Research (FSCDR) is committed to supporting innovative research in sickle cell disease to help maximize quality of life and improve survival for the generations of people affected with this disease. FSCDR is a comprehensive, non-profit organization that provides a platform for researchers, healthcare providers, individuals and their families living with sickle cell disease and supporters to work collaboratively in identifying barriers that are limiting creation, adoption and adherence to evidence-based screening recommendations, new therapeutics and best practices that help in the management of sickle cell disease. FSCDR understands that research must be supported with data and that education plays a key role in empowering people and affecting change; therefore, its venues directly promote these principles. As part of its extensive platform, FSCDR offers educational initiatives that help to expand the understanding of sickle cell disease through its Annual Sickle Cell Disease Research Meeting and its scholarly Journal of Sickle Cell Disease and Hemoglobinopathies. FSCDR also provides networking that facilitate collaborative learning through its membership-based Sickle Cell Research Society of America (SCRSA) and its general Corporate Engagement Forum, which also invites patient participation. Most importantly, FSCDR has created the first-ever Sickle Cell Disease and Thalassemia Patient Registry that allows researchers access to vital information for data mining, qualitative and quantitative research that can help pave the way toward a better understanding of sickle cell disease and innovations in the treatment of sickle cell disease and related disorders. The Registry also has a health record portal for individuals with sickle cell disease to keep track of their health information, receive reminder notifications, and share their health record with their doctor (s). FSDCR appreciates the benefits of being united in the common cause of sickle cell disease research and medical care with academia, pharmaceutical, biotechnology, and community organizations.

12/19/2025

A mother’s journey.
Serifat opens up about teaching her daughter about sickle cell disease. While her daughter does not have sickle cell, she is growing, thriving, and learning by watching her mom’s strength and resilience.

“Being a parent with sickle cell is a bit challenging because even when you are sick, you still have to be a mom.”

Learn more at fscdr.org.

A powerful voice for a historic year: The Golden Age.We are thrilled and honored to announce Viola Davis — award-winning...
12/18/2025

A powerful voice for a historic year: The Golden Age.

We are thrilled and honored to announce Viola Davis — award-winning actress, producer, New York Times bestselling author, and EGOT icon — as the Foundation Keynote Speaker at the 2026 Symposium.

Sunday, June 7, 2026 | 12:00 PM EST
Fort Lauderdale, FL & Global Livestream

As we celebrate the 20th Anniversary of the Symposium — The Golden Age, Viola’s story of resilience and triumph reflects the strength and spirit of Sickle Cell Warriors worldwide.

Join us for this historic keynote and milestone year in Fort Lauderdale or on livestream from anywhere in the world.

Register Now
https://fscdr2026.eventscribe.net

What is Sickle Cell Trait (SCT)?People who inherit one sickle cell gene and one normal gene have Sickle Cell Trait (SCT)...
12/17/2025

What is Sickle Cell Trait (SCT)?
People who inherit one sickle cell gene and one normal gene have Sickle Cell Trait (SCT), not the disease itself.

Most people with SCT don’t have symptoms, but they can pass the gene to their children. That is why knowing your status matters, especially when planning a family.

A simple blood test can tell you if you have the trait.
If you believe you have the Sickle Cell Trait or are unsure, talk to your doctor or visit us to get tested.

🔗 Learn more at www.fscdr.org

We are deeply thankful to everyone who came together for the Holiday Sneaker & Snacks Fest 2025: our incredible Sickle C...
12/16/2025

We are deeply thankful to everyone who came together for the Holiday Sneaker & Snacks Fest 2025: our incredible Sickle Cell Warriors, devoted families and caregivers, compassionate volunteers, and every supporter who showed up with love.

We thank the community for making this celebration possible. From shared moments of joy and connection to the simple act of being present for one another, the day reflected what happens when people come together with purpose and care.

A special thank you to everyone who donated toys and helped spread holiday cheer to children in the Sickle Cell community, including those receiving care in hospitals. Your generosity brought smiles, comfort, and hope — reminders that these families are seen, valued, and supported.

Because of you, this holiday season was brighter. Thank you for giving, serving, celebrating, and standing with the Sickle Cell community.

12/12/2025

Mental resilience is a daily commitment, and for many warriors, it is the key to staying grounded and focused.

“I stay focused by going to weekly therapy. I read, binge-watch my favorite shows, and keep my body moving with pilates.” — Serifat Fapohunda

Her routine is a reminder that caring for your mind is just as important as caring for your body.
Learn more at fscdr.org.

The Foundation for Sickle Cell Disease Research (FSCDR) was proud to be a part of the 67th ASH Annual Meeting and Exposi...
12/10/2025

The Foundation for Sickle Cell Disease Research (FSCDR) was proud to be a part of the 67th ASH Annual Meeting and Exposition in Orlando, Florida!

Thank you for visiting our booth, connecting with our team, exploring the latest updates from our Journal of Sickle Cell Disease, and learning more about our mission to advance sickle cell care and innovation.

In case you missed it, we were thrilled and honored to announce Viola Davis — award-winning actress, producer, New York Times bestselling author, and EGOT icon — as the Foundation Keynote Speaker at the 20th Annual Sickle Cell Disease Research and Educational Symposium & the 49th National Sickle Cell Disease Scientific Meeting.

Sunday, June 7, 2026 | 12:00 PM EST
Fort Lauderdale, FL & Global Livestream

As we celebrate the 20th Anniversary of the Symposium — The Golden Age — Viola’s story of resilience and triumph reflects the strength and spirit of Sickle Cell Warriors worldwide.
Join us for this historic keynote and milestone year in Fort Lauderdale or on livestream from anywhere in the world.
Register Now
https://fscdr2026.eventscribe.net

Managing your sickle cell care is easier with the Foundation for Sickle Cell Disease Research.With 15 centers across Flo...
12/10/2025

Managing your sickle cell care is easier with the Foundation for Sickle Cell Disease Research.

With 15 centers across Florida, we offer comprehensive care, encompassing everything from clinic visits to personalized medication management. And when prescriptions are part of your treatment plan, we can send them to the pharmacy of your choice.
We are here and ready to care for you.

Schedule your appointment:
fscdrllc.com/service/medication-management

FSCDR Presents: A Special Holiday Event for Sickle Cell WarriorsPlease join us for one of our most exciting community ev...
12/08/2025

FSCDR Presents: A Special Holiday Event for Sickle Cell Warriors
Please join us for one of our most exciting community events of the year — the FSCDR Holiday Sneaker & Snacks Fest 2025! This celebration is designed to bring joy, wellness, and connection to our Sickle Cell families, caregivers, and the surrounding community.

FSCDR Holiday Sneaker & Snacks Fest 2025
📅 Sunday, December 14, 2025
🕛 Time: 12:00 PM – 3:00 PM
🎉 Theme: Joy • Wellness • Community
📍 Location: 1685 S. State Road 7, Unit 4, Hollywood, FL 33023

What to Expect
Sneakers
Snacks
Entertainment
Giveaways
Community Wellness Resources
Holiday Toy Drive

We are also hosting a Holiday Toy Drive and are encouraging all attendees to bring a new, unwrapped toy for a girl or boy. These gifts will be distributed to families in need within the Sickle Cell community — including children who are in the hospital — helping to bring joy and holiday cheer to them this season.

12/05/2025

Beating the odds with gratitude.
“I live with sickle cell and I still go through crises, but I truly feel like one of the blessed ones.” — Serifat Fapohunda

Her strength reminds us that resilience, hope, and community make every day brighter for warriors everywhere.
Learn more about sickle cell disease at fscdr.org.

Elevate care for adults living with sickle cell disease (SCD)!Join us for an interactive webinar where leading experts w...
12/04/2025

Elevate care for adults living with sickle cell disease (SCD)!

Join us for an interactive webinar where leading experts will share practical strategies and the latest evidence to enhance SCD management and outcomes.

🔹 Review key pathophysiologic drivers of SCD
🔹 Explore multidisciplinary approaches to prevent and manage neurologic complications
🔹 Gain actionable, guideline-based insights for pain management—including a practical point-of-care algorithm to support real-time decisions
Don’t miss this opportunity to strengthen your knowledge and advance care for adults with SCD.

Register now 👉 https://primeinc.org/75WC2514

The Foundation for Sickle Cell Disease Research (FSCDR) will be at the 67th ASH Annual Meeting and Exposition, happening...
12/03/2025

The Foundation for Sickle Cell Disease Research (FSCDR) will be at the 67th ASH Annual Meeting and Exposition, happening December 6–9, 2025, in Orlando, Florida.

Visit the FSCDR booth # 789 to connect with our team, explore the latest from our Journal of Sickle Cell Disease, and learn more about our mission to advance excellence in sickle cell care and innovation. We have a big announcement to make!

Stop by our booth, and discover more at fscdr.org

Address

1685 South State Road 7, Unit 4
Hollywood, FL
33023

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+18444465744

Website

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