Foundation For Sickle Cell Disease Research

Foundation For Sickle Cell Disease Research Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Foundation For Sickle Cell Disease Research, Medical Research Center, 1685 South State Road 7, Unit 4, Hollywood, FL.
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The Foundation for Sickle Cell Disease Research (FSCDR) is the United States’ first outpatient center exclusively dedicated to the treatment of and innovative research for SCD. The Foundation for Sickle Cell Disease Research (FSCDR) is committed to supporting innovative research in sickle cell disease to help maximize quality of life and improve survival for the generations of people affected with this disease. FSCDR is a comprehensive, non-profit organization that provides a platform for researchers, healthcare providers, individuals and their families living with sickle cell disease and supporters to work collaboratively in identifying barriers that are limiting creation, adoption and adherence to evidence-based screening recommendations, new therapeutics and best practices that help in the management of sickle cell disease. FSCDR understands that research must be supported with data and that education plays a key role in empowering people and affecting change; therefore, its venues directly promote these principles. As part of its extensive platform, FSCDR offers educational initiatives that help to expand the understanding of sickle cell disease through its Annual Sickle Cell Disease Research Meeting and its scholarly Journal of Sickle Cell Disease and Hemoglobinopathies. FSCDR also provides networking that facilitate collaborative learning through its membership-based Sickle Cell Research Society of America (SCRSA) and its general Corporate Engagement Forum, which also invites patient participation. Most importantly, FSCDR has created the first-ever Sickle Cell Disease and Thalassemia Patient Registry that allows researchers access to vital information for data mining, qualitative and quantitative research that can help pave the way toward a better understanding of sickle cell disease and innovations in the treatment of sickle cell disease and related disorders. The Registry also has a health record portal for individuals with sickle cell disease to keep track of their health information, receive reminder notifications, and share their health record with their doctor (s). FSDCR appreciates the benefits of being united in the common cause of sickle cell disease research and medical care with academia, pharmaceutical, biotechnology, and community organizations.

The Foundation for Sickle Cell Disease Research (FSCDR), under the Sickle Cell Disease Workforce Development Program, of...
01/19/2026

The Foundation for Sickle Cell Disease Research (FSCDR), under the Sickle Cell Disease Workforce Development Program, offers this FREE, CME/CE-accredited live webinar delivered in partnership with PRIME Education.

Price: Free
Duration: 1 hour

This session will explore how public health initiatives and community partnerships are transforming sickle cell disease (SCD) care. Expert faculty will review preventive strategies for children to highlight how early interventions can change the trajectory of disease outcomes. Faculty will share strategies to foster collaboration across healthcare systems and local organizations, ensuring patients and families receive the comprehensive support they need.

The webinar will cover:

• Designing Effective Training Programs for Sickle Cell Care Providers - Innovative Training Models and Programs to Improve Sickle Cell Care
• Policy Priorities in Healthcare Settings
• The Latest Breakthroughs in Sickle Cell Disease Research - Strategies for Promoting Clinical Trials and Innovative Treatments in Underserved Communities; Integrating New Therapies Into Standard Care

Who Should Attend:
Physicians, advance practice providers (NP/PA), nurses, pharmacists, psychologists, and social workers caring for patients with sickle cell disease.
1.0 CME/CE credit available.

Faculty

Lanetta Bronté, M.D., MPH, MSPH
President and Chief Health Officer
The Foundation for Sickle Cell Disease Research

Christopher R. Cogle, M.D.
Professor, Division of Hematology and Oncology, Department of Medicine, College of Medicine, University of Florida
Chief Medical Officer for Florida Medicaid, Agency for Health Care Administration, State of Florida
Founding Director, Florida Health Policy Leadership Academy, Bob Graham Center for Public Service, University of Florida

Wally R. Smith, M.D.
Florence Neal Cooper Smith Professor of Sickle Cell Disease
University Distinguished Professor
Vice-Chair for Research, Division of General Internal Medicine
Virginia Commonwealth University School of Medicine

Register now: https://primeinc.org/virtual/shaping-future-sickle-cell-care-training-policy-innovation?mc_cid=89cb31a7f2&mc_eid=UNIQID

Awareness leads to understanding.Education leads to empowerment.Action leads to change.Together, we can continue improvi...
01/19/2026

Awareness leads to understanding.
Education leads to empowerment.
Action leads to change.

Together, we can continue improving lives and building a stronger future for everyone living with sickle cell disease.

Learn more at fscdr.org.

01/16/2026

Albert Campbell opens up about his daughter’s powerful journey as a true Sickle Cell Warrior — a story of courage, resilience, and strength that often went unseen but never went unfelt.

Her legacy reminds us why awareness, research, and support matter.

Learn more at fscdr.org

Building a Stronger Sickle Cell Community — TogetherAt FSCDR, we believe real progress happens when we join forces. Thro...
01/14/2026

Building a Stronger Sickle Cell Community — Together

At FSCDR, we believe real progress happens when we join forces. Through collaboration with patients, families, caregivers, healthcare professionals, and community partners, we’re working to expand education, improve access to quality care, and strengthen the support systems that people living with sickle cell disease deserve.

Together, we can create lasting change.
Learn more at fscdr.org.

Upcoming Webinar – Week 2 of the Expert Insights in Action: 6-Week Sickle Cell Disease Management (SDM) CourseTopic: Dri...
01/13/2026

Upcoming Webinar – Week 2 of the Expert Insights in Action: 6-Week Sickle Cell Disease Management (SDM) Course
Topic: Driving Participation in Sickle Cell Programs and Trials

Date: Friday, January 16, 2026
Time: 3:00 PM ET
Duration: 30 minutes
Price: Free

The Foundation for Sickle Cell Disease Research (FSCDR), in partnership with PRIME Education, presents Week 2 of this interactive 6-week Sickle Cell Disease Management Course. Participants may join the series at any point.

This session will cover:
• Practical strategies to increase participation in community programs and clinical trials
• Approaches to address barriers, build trust, and strengthen engagement
• Tools to support shared decision-making and community-based collaboration

Who Should Attend:
Physicians, advance practice providers (NP/PA), nurses, pharmacists, psychologists, and social workers caring for individuals with sickle cell disease. CME/CE credit 0.5 available.

Delivered by PRIME Education in partnership with FSCDR.

Register Now
https://primeinc.org/virtual/expert-insights-action-6-week-sdm-course-driving-participation-sickle-cell

A powerful voice for a historic year: The Golden Age.We are thrilled and honored to announce Viola Davis — award-winning...
01/12/2026

A powerful voice for a historic year: The Golden Age.
We are thrilled and honored to announce Viola Davis — award-winning actress, producer, New York Times bestselling author, and EGOT icon — as the Foundation Keynote Speaker at the 2026 Symposium.

Sunday, June 7, 2026 | 12:00 PM EST
Fort Lauderdale, FL & Global Livestream

As we celebrate the 20th Anniversary of the Symposium — The Golden Age, Viola’s story of resilience and triumph reflects the strength and spirit of Sickle Cell Warriors worldwide.
Join us for this historic keynote and milestone year in Fort Lauderdale or on livestream from anywhere in the world.

Register Now
https://fscdr2026.eventscribe.net

01/09/2026

Albert Campbell shares his daughter’s sickle cell journey:
‘My wife knew she had the sickle cell trait, but I didn’t know I carried it until she was pregnant.’

Stories like Albert’s remind us how important awareness, testing, and early conversations are for families.

👉 Learn more about sickle cell disease and how to get involved at fscdr.org.

Upcoming Webinar: Transforming Sickle Cell Care With Prevention and Community EngagementDate: Monday, January 12, 2026Ti...
01/08/2026

Upcoming Webinar: Transforming Sickle Cell Care With Prevention and Community Engagement

Date: Monday, January 12, 2026
Time: 2:00 PM ET / 11:00 AM PT
Duration: 1 hour
Price: Free

The Foundation for Sickle Cell Disease Research (FSCDR), under the Sickle Cell Disease Workforce Development Program, presents this free, CME/CE-accredited webinar.
This webinar will cover:

• Preventive strategies, including vaccinations and transfusion programs for children
• Federal, state, and local programs supporting SCD screening, monitoring, treatment, and care
• Approaches to expand access and strengthen community partnerships
• Community programs and clinical trials designed to increase engagement and participation

Who Should Attend:
Physicians, advance practice providers (NP/PA), nurses, pharmacists, psychologists, and social workers caring for individuals with sickle cell disease.

1.0 CME/CE credit available.
Delivered by PRIME Education in partnership with The Foundation for Sickle Cell Disease Research.

Register now
https://primeinc.org/virtual/transforming-sickle-cell-care-prevention-advocacy-community-engagement

Complications of sickle cell disease happen when sickled cells block blood flow to vital organs. This can lead to seriou...
01/07/2026

Complications of sickle cell disease happen when sickled cells block blood flow to vital organs. This can lead to serious issues like stroke, acute chest syndrome (which reduces oxygen in the blood), and long-term organ damage.

Learn more at fscdr.org.

📍 FSCDR Sickle Cell Center of Excellence – HollywoodWe’re here to support you at our Hollywood location:1685 S. State Ro...
01/05/2026

📍 FSCDR Sickle Cell Center of Excellence – Hollywood

We’re here to support you at our Hollywood location:
1685 S. State Road 7, Unit 4, Hollywood, FL 33023
Open 24/7

As our flagship Sickle Cell Center of Excellence, this facility represents the heart of FSCDR’s mission — delivering expert care, compassionate support, and vital resources for individuals living with sickle cell disease, whenever you need us.

12/31/2025

Defying Expectations and Thriving

When Serifat was diagnosed with sickle cell disease, her parents, who are both carriers of the sickle cell trait, were told she wouldn’t live past age five. It’s what many families hear, but Serifat’s journey proves that warriors can and do thrive.

Learn more about sickle cell disease at fscdr.org.

Address

1685 South State Road 7, Unit 4
Hollywood, FL
33023

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+18444465744

Website

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