Team Fults

24/12/2025

Busy week for Hadley….

You win some, you lose some.

This week’s appointments were a mixed bag.

Endocrinology went well. We’re in a stable place and, surprisingly, making progress in a few areas we didn’t expect. We went from concern with her not growing at all, like NONE in the past few years, to growing 2 inches in the last SIX months! They brought her out and measured her again because no one could believe! That’s a win, and we’ll take it with gratitude.

Hematology, on the other hand, brought a curveball. We’re heading toward another iron infusion and sooner rather than later. It’s only been a few months since the last one. 🥴 Her labs are confusing to her team. Her iron serum levels are normal, which tells us she can absorb iron. We expected there to be an issue there in light of her autoimmune stomach disease affecting absorption but instead
her ferritin keeps dropping way to quickly. That pattern usually points to blood loss… yet there’s no clear evidence of bleeding anywhere. So for now, it remains a mystery.

The plan is to move forward proactively rather than wait for levels to crash. Another infusion soon is the best, wisest step, even if it’s not the one we hoped for.

Not the update we wanted, but it’s the one we have. We’ll keep doing what we’ve always done, just do the next right thing, then the next and the next! He’s always been faithful to meet us there.

Thank you for walking with us—your prayers and encouragement are a gift!

We will trust. He will provide!

19/12/2025

Merry Christmas dear friends!

This morning is slow and gentle. 🤍
Hadley is wiped out from treatment and has slept since we got home yesterday afternoon. Josh and I rotated checking and medicating her all night. Today’s plan: We’ll keep her medicated, let her lay low, and pray those wicked headaches and body aches stay far, far away.

This morning it’s coffee in hand, a perfectly peaceful view and gratitude for a calm start to the day. We’re praying we can keep this pace slow, steady and keep her feeling well.

We are also deeply thankful for you. For your prayers, your messages, your steady presence as witnesses to our story. You have spoken encouragement in our hardest moments and celebrated with us in the victories. That matters more than you know, and we are truly grateful.

Yesterday, after a hard time getting her accessed, Hadley and I both hit a wall. A wave of grief, frustration, and anger rolled over us. We are thankful for treatment but some days the reality that we’re still here is just heavy. She cried and said, “Mom, I’m just so mad I have to be here.” I teared up and said, “Me too, sister. Me too. This is just so hard. You get to be mad.” And then we just hugged in silence.

God is still good—even when hard things keep coming. Suffering isn’t the absence of His goodness. It’s often where we see it most clearly and we did see it in small moments yesterday! He met us there and for that I am thankful! We continue to find hope in hard places.

We will keep trusting knowing He will provide. Merry Christmas dear friends!

05/12/2025

Huge praise report — her scans show no reflux. That alone feels like a mountain moved. We’re still waiting on the rest of the results, so no real answers yet, but her team will let us know next steps.

In the meantime, we did what any reasonable people do during long hospital days: found an obscenely large little debbie, spent way too much money on snacks, coffee, and matching Christmas pajamas… and honestly? Worth every penny.

These girls were incredible yesterday… brave, steady, and full of joy in the middle of it all. Grateful for the good news we do have and trusting the Lord with the rest. We will trust, He will provide!

Hollyn is obsessed with wrapping presents. If you get one, I have NO idea what’s in it! She’s just wrapping things from her room at this point. 🤔😂😶‍🌫️

04/12/2025

Team Fults Update: Hollyn’s Kidney Scans

Today is a long one for our girl. Hollyn is spending the day at Texas Childrens for kidney scans and a whole lineup of testing under sedation. These days are never easy, but we soften the blow with a Buc-ee’s run. She handles them with that quiet, stubborn courage that feels way too big for her little body.

We’d love your prayers. Pray for clear results, wise doctors, and a straightforward plan for what comes next. This mama heart is praying for mercy in the details and peace in the waiting.

Hadley is here to cheer her on and help her pick out post testing prizes. They’re already planning their attack. 🤔😂 because if you’re going to spend your day being poked, prodded, and scanned, you better believe you’re walking out with something sparkly, squishy, or otherwise fabulous. Priorities. 💁‍♀️✨

Thank you for loving our girl and cheering her on. We feel it every time.

We will trust. He will provide.

22/11/2025

Team Fults Update

Labs and biopsies are in….

Hollyn’s scope showed she’s dealing with some pretty angry gastritis, so she’s starting a new medication regimen to get the inflammation under control. She’s tough as nails, but her little body has been working overtime.

Hadley’s labs showed more progression in the autoimmune damage we’ve been watching. For those who don’t speak GI alphabet soup, she has Autoimmune Metaplastic Atrophic Gastritis (AMAG)—basically, her immune system thinks her stomach cells are the enemy and slowly destroys the ones she needs to make stomach acid and absorb nutrients like iron and B12. When those cells disappear, her body can’t absorb what she needs to grow, heal, and feel steady… and her system tries to “fix” it by cranking her gastrin levels sky-high. Her levels are higher than ever.

The good news: her biopsies showed metaplasia but not dysplasia. In the land of stomach disease, that’s a very important line—and we’re grateful she hasn’t crossed it but feel it is edging closer.

Thanks for loving our kids.
Thanks for praying when we’re too worn down to find the words ourselves.
We’re hopeful—even in the hard—because the Lord has never wasted a single piece of our story yet.

We will trust. He will provide!

14/11/2025

**Team Fults Update 💜**

Hadley was due for treatment today but it is bumped for a couple weeks—she can’t take Advil after biopsies, and she needs it for treatment days. Honestly? We’re not mad about it. It feels like a small mercy. HECK, maybe a BIG mercy. We needed time to breathe, catch up on school, and remember what life looks like outside hospitals and funeral planning.

So, this weekend, we’re chasing the holy grail of adulthood: boring. Laundry. Math homework. Actual quiet. And me? I’m stress-window-shopping cactuses like I don't have a million and one other things to do. LOL.

The girls are making Christmas lists on decorated paper because presentation is life. Hayden, keeping it on-brand as a 15-year-old boy, fires off a text with three links and calls it good. Efficient. Respectable.

We’re also trying hard to set the tone at home in the midst of a chaotic week. Shifting the gravity from chaos to peace in the middle of grief. Missing treatment helped with this, its like God knew. Go figure. We know staying connected takes intention. Sometimes that looks like answering hard questions about loss… and sometimes it looks like a ruthless game of Monopoly or Cranium where alliances are formed and betrayed. You can NEVER EVER trust this 15 year old of mine! He is fierce and I AM HERE FOR IT!!!

But we’re grateful for slow minutes, small mercies, and the chance to steady ourselves together.

We cannot thank you enough for all those who have reached out, extended condolences, prayers and support. We are blessed far more than we deserve.

We will trust. He will provide.

12/11/2025

Team Fults Update 💜

Procedures are done, anesthesia went smooth, and Hadley’s heart behaved (huge answer to prayer 🙌). We don’t have biopsy results yet, but we’re thankful for steady hands and a calm day.

Hollyn’s stomach looked better than her sister’s—not that it’s a competition, but she’s currently winning 🏆. Her stomach looked stable, though a few labs need follow-up, which was unexpected.

Hadley’s stomach looked rough—ulcerated and angry. She’s battling Autoimmune Metaplastic Atrophic Gastritis, an extremely rare autoimmune disease where the body attacks the stomach lining. It messes with her ability to absorb nutrients and has already caused her cells to change (metaplasia). Based on labs and inflammation, there’s concern she may be shifting toward dysplasia—the step before cancer. We want to stay as far away from that as possible especially because she’s so young. There’s no cure, just management and prayer. She’s thirteen, we’re doing all we can to ensure her stomach is as healthy as it can be to get her to 40, 60,…heck 80 years old.

And because we keep it real….grief hits weird. It’s tearing up over seeing her little glasses folded on the bed after surgery because you’re kind of heartbroken she’s even here again then minutes later crying again because Hollyn got a sticker with a dog that had the same name as ours—one of those “love notes” from God that hit right when you need it. It’s feeling stretched thin with all three kids in different places in the hospital, one in surgery, one in recovery and one alone in the waiting room. It’s being overwhelmed by sadness and gratitude at the same time. Today was one of those days.

We’re tired but thankful. Still trusting. Still grieving. Still held. 💜 We will work to be where our feet are. We will stay present and trust the Lord with the rest. Pray we are able to do this while we wait on biopsies. The “what ifs” can be loud, especially when we’re tired.

We’re praying you see “love notes” too. We will trust. He will provide.

12/11/2025

Team Fults Update ☕💜

We’re here. Dressed and about to go back. Hollyn was quick to point out that she gets to go second (clearly the smarter sibling move).

If we’re being honest, we’re all on fumes. We slept very little. It’s the kind of tired that seeps down into your bones. We’re doing our best to lean in, trust big, and hold it together—though coffee still hasn’t happened yet, so the “holding it together” part is questionable at best.

Hadley has a tendency to slide into an arrhythmia with anesthesia. We’re doing all we can to avoid it. Pray she does well. Pray for calm hearts, smooth scopes, and strong coffee.

We will trust. He will provide.

12/11/2025

**Team Fults Update 💜**

Today has been heavy, the kind of day that presses on your chest a little too hard. We already dread coming to Fort Worth for the girls’ medical procedures. It always carries a certain weight. Then this morning, I got the call that my mom had passed away. The day suddenly felt even heavier.

And yet, even in the middle of grief and hospital chaos, God kept showing up, in quiet, ordinary ways that felt anything but ordinary. We call those “love notes” in our family, and today was full of them.

Josh grabbed me coffee this morning while we were at the hospital. If you know Josh you know coffee is his coping mechanism, and right across the street was the sweetest little plant shop, which is easily my biggest weakness/coping mechanism. He surprised me with a couple of plants because…well….he gets me.

Later in the day, we ended up back at the same plant shop…listen, before you get critical….I HAVE TO SAY TWO THINGS….
1. It's been a hard day…like crazy hard day….no judgement please.
2. THIS PLANT SHOP IS AMAZING…. GROW….heres looking at you! (https://www.facebook.com/share/1aPCMcCDMu/?mibextid=wwXIfr)

Hang with me here, Josh and I had found the coolest cactus but opted to wait. It was more than we were needing to spend, we didn’t know that we could get it home because it was huge and pretty but we did stare at it for a very long time. Looking back now, probably awkwardly long…so theres that. Admittedly, we might have a small cactus/succulent addiction. The second time we were there the owner recognized us and said, “Hey, that cactus y’all were looking at earlier—I had a piece break off in shipment. I thought you might want it.” That simple gesture felt like a hug from heaven. His thoughtfulness felt intentional—like God winking at us, whispering, *I see you.*

Tonight, there was a knock at the door. We were stretched out in pajamas, trying to catch up on schoolwork, when the precious woman who owns our VRBO, and doesn't know us, showed up with a goody bag for the girls. Inside were the softest blankets and the most precious pom-pom surgery socks. Another kindness. Another reminder. Another chance to talk with the girls about how God meets us right where we are—especially when we’re scared, nervous, or overwhelmed. They felt it too, snuggled up with those tiny socks that somehow carried so much comfort.

And then, as if heaven wanted to underline the message, we found the most gloriously purple casket for Gigi—the kind of deep, royal purple she always said she wanted. We had planned for “close enough,” but God gave *exactly right.* The grandkids all voted—it’s her through and through.

So today, we ran labs. We cried. We planned. We laughed through tears. We had hard conversations. We met strangers who brought heaven a little closer. And through it all, we saw Him—in coffee runs, plants, caskets, and pom-pom socks.

We are heartbroken, but hopeful. Sad, but seen.
Because even on the hardest days, God goes before us.
And today, we saw Him in full color—especially purple. 💜

We know we will see him tomorrow too. We start at 6:30AM. We will trust. He will provide.

11/11/2025

Team Fults Update 💔

Mom’s finally Home. Whole, healed, and face to face with Jesus as of 2AM this morning.

We’re heartbroken and grateful all at once—thankful for the laughter, the stories, and the fierce love she poured into everyone she met. She ran her race with grit and grace, and now she’s resting in glory. What a legacy she leaves.

Today is one of those days that feels like two worlds colliding—grief and responsibility. We’re walking into a full day of appointments and prep for the girls’ procedures tomorrow (iykyk 😳). The timing feels impossible… but if you knew Gigi, you know she’d tell us to handle business and make sure her grands were taken care of.

Please pray—for peace in the middle of the swirl, for the kids as they grieve and prepare, and for us to keep steady hearts in the in-between.

She ran her race well. And now we’ll keep running ours. We will keep finding hope in hard places. We will trust. He will provide.

10/11/2025

Team Fults Update….

Well friends… buckle up. It feels a little like the wheels have officially come off, and we’re coasting down life’s mountain in neutral—praying the brakes hold.

Mom (our beloved Gigi) has been on hospice and is nearing the finish line of her earthly race, and life simply won’t be the same without her. She’s our loud, Cajun, grandbaby-loving, potato salad making, fiercely loyal matriarch. In a strange and almost poetic twist, she was diagnosed with a brain tumor just five weeks after mine in June 2023—same neurosurgeon, same prayers, same fierce will to fight. Mine was benign; hers was not. She has fought it with courage, grit, and grace, but we can see she’s preparing to go home. Please pray for her peace, and for ours, as we walk her to the end. There’s nothing easy about it. It’s just heart breaking.

And because life doesn’t believe in intermissions, we’re also heading into a marathon week at Cook Children’s that we couldn’t reschedule. Both girls have a full day of appointments with their metabolic/gastroenterologist tomorrow and then procedures Wednesday morning. They both have an endoscopy and colonoscopy under sedation—to check the progress of their rare autoimmune stomach condition (Autoimmune Metaplastic Atrophic Gastritis). It sounds impressive until you live with it. It’s rare, it’s painful, and it’s downright unfair if we’re honest.

We’re praying hard that Hadley’s recent labs—showing concern for bleeding and progression—don’t match what’s actually going on inside. They’ve surprised us before, and we’re asking the Lord to let that be the case again. We’re praying for no progression, for good biopsies, and for calm stomachs all around.

There’s a fine line between heartbreak and hope, and that’s where we’re standing—coffee in one hand, faith in the other. If you think of us this week, please pray: for peace, for good results, for mercy in the waiting, and for grace to keep trusting the One who’s carried us this far.

We will trust. He will provide.