EDS Wellness

EDS Wellness 501(c)(3) NonProfit Corp focused on Health Education • Conferences • EDS Advocacy & Coaching • Educat Info@edswellness.org

501(c)(3) NonProfit focused on Health Education • digital/print media & resources • Webinars • Podcasts • Conferences • EDS Advocacy & Coaching

Movement • Nutrition • Wellness

Publishing of print and digital educational resources & materials for those living with Ehlers-Danlos syndrome & other chronic, often invisible illnesses. Co-creator & event planner for Wellapalooza Integrative Health & Wellness Conferences

- the coolest integrative health conferences ever! www.wellapalooza.com

Moving Naturally with Hypermobility seminars - www.movingnaturallywithhypermobility.com

Owner of Invisible Strength anthology series (previously Our Stories of Strength) - sharing good news stories of strength, perseverance, and hope, from those living with chronic, often invisible illnesses.

Co-Author of Our Stories of Strength - Living with Ehlers-Danlos Syndrome - debut anthology in the Our Stories of Strength anthology series. www.invisiblestrength.co

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Questions?

10/01/2025
09/22/2025
06/16/2025
04/02/2025

For most of her life, Jacqueline Luciano, a nurse in Chicago, has experienced mysterious injuries and ailments, including a long list of sprains and tears, dizziness and fatigue, and chronic headaches and pain.

As Luciano would discover, many of her health issues could be traced back to the fact that she is hypermobile, or double-jointed. She joins an increasingly visible group of people, including the singer-songwriter Billie Eilish and author Rebecca Yarros, who are speaking out about their struggles with hypermobility.

Learn more about hypermobility and what the research says about its surprising health risks: https://on.natgeo.com/4j9Wwad

01/17/2025

Are you double jointed? Your go-to party trick might amuse and entertain, but it could be a lot worse for your health than we thought.

People who are hypermobile, the proper name for being double-jointed, are able to extend their joints past the normal range of motion. It presents differently for different people, but it’s often a sign that your joints’ connective tissue is weak—leaving one vulnerable to wide range of issues such as chronic pain, gastrointestinal disorders, and even long COVID or POTS.

Learn more about the health risks presented by hypermobility at: https://on.natgeo.com/4agPEEQ

https://apple.news/Ar6FCN48TTEaRvIeCx3B3Sg
02/07/2024

https://apple.news/Ar6FCN48TTEaRvIeCx3B3Sg

Chronic pain. Extra-flexible joints. Stretchy skin. These are just some of the symptoms of the debilitating genetic disorder that’s incredibly hard to diagnose.

We are looking forward to tonight! Please join us if you are able! Recordings will be available here on Facebook, the Ma...
10/30/2022

We are looking forward to tonight! Please join us if you are able!

Recordings will be available here on Facebook, the Mast Cell Research page and also on Hell's Bells and Mast Cells.

Links are open to register via zoom or join us here live tonight at 7pm EST!

https://us02web.zoom.us/webinar/register/WN_bZ1nJuHvQLKsZ_pbCNVsRA?fbclid=IwAR0L3JIqCW65AGXLVMYo4Jx1OlugXRNzVQkNJTP0tUKA7g5xGh_umns32tk

RP Mast Cell Research

Hell's Bells and Mast Cells KNMyles: Health Educator/Movement Instructor/Writer/Speaker/Advocate

Dr. Lawrence Afrin & Kendra Neilsen Myles of Mast Cell Research are hosting a live Q&A in honor of the Annual Mast Cell Disease Awareness Day on October 20th with special guest Keeya Steel of Hells Bells and Mast Cells. This live community broadcast & Q&A will be streamed on the Mast Cell Research F...

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5213 Fairgreene Way
Ijamsville, MD
21754

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Our Story

501(c)(3) NonProfit focused on Health Education • digital/print media & resources • Webinars • Podcasts • Conferences • EDS Advocacy & Coaching Movement • Nutrition • Wellness Publishing of print and digital educational resources & materials for those living with Ehlers-Danlos syndrome & other chronic, often invisible illnesses. Co-creator & event planner for Wellapalooza Integrative Health & Wellness Conferences - the coolest integrative health conferences ever! www.wellapalooza.com Moving Naturally with Hypermobility seminars - www.movingnaturallywithhypermobility.com Owner of Invisible Strength anthology series (previously Our Stories of Strength) - sharing good news stories of strength, perseverance, and hope, from those living with chronic, often invisible illnesses. #Stronger2Gether Co-Author of Our Stories of Strength - Living with Ehlers-Danlos Syndrome - debut anthology in the Our Stories of Strength anthology series. www.invisiblestrength.co Social EDS Wellness: Twitter: @EDSWellnessSol Instagram: @EDSWellness Tumblr: @EDSWellness Pinterest: @EDSWellness Questions? Info@edswellness.org