Rowan Dingledy's Fight with CLN3 Batten Disease

Rowan Dingledy's Fight with CLN3 Batten Disease Rowan is just 6 years old and was diagnosed with CLN3 Batten disease, which is neurodegenerative and fatal. Please help and share her story.

Just a little smiley update on Rowan doing some of her favorites. Just wrapped up first grade!
05/30/2024

Just a little smiley update on Rowan doing some of her favorites. Just wrapped up first grade!

Rowan was happy to bake a birthday cake with her sweet teacher earlier this week and proudly presented her creation!
10/06/2023

Rowan was happy to bake a birthday cake with her sweet teacher earlier this week and proudly presented her creation!

First day of First Grade! Lots of things are in place this year to give this girl every opportunity! I heard she was v...
08/02/2023

First day of First Grade! Lots of things are in place this year to give this girl every opportunity! I heard she was very interested in her new classroom today and that means touching every. single. thing. I heard her new classmates were friendly and sweet. I’m sure she will make many new friends!

❤️
07/06/2023

❤️

Rowan wearing her “braille dot” Little Sleepies pjs holding a new singing bunny a sweet friend of mine gave her recently...
04/27/2023

Rowan wearing her “braille dot” Little Sleepies pjs holding a new singing bunny a sweet friend of mine gave her recently! She’s had a great attitude lately and we’ve had a lot of fun. Batten disease appears to cause waves where life is good for a while, meaning she is peaceful and happy and then we hit rough patches that cause agitation, tears and heartbreaking meltdowns. For now, we choose to blissfully live in today, because today is a good day.❤️

A huge thank you to everyone who supported a fundraiser yesterday at Ascension St. Vincent Jennings. The team below host...
02/16/2023

A huge thank you to everyone who supported a fundraiser yesterday at Ascension St. Vincent Jennings. The team below hosted a Valentine’s Day fundraiser bake sale to benefit Rowan that raised over $1,800 yesterday! Wow!

Thank you to Rowan’s aunt Jaime Moeller and her team Christy Hahn, Laura woodruff, Connie Thomas, Becky Sanders Laman, Candace Short, Finnien Beeman, Linda Stout, and Vanessa Wilson Craig!

We are overwhelmed with appreciation for people that have never even met Rowan and are helping us move mountains. Didn’t they do a beautiful job? I was told that was the biggest fundraising result they have had with a sale like this. Thank you to all of the bakers, organizers and the many customers who helped make this possible!

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Indianapolis, IN
46227

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