Paige’s journey

Paige’s journey Welcome to Paige’s Health Journey! On this page I will post about various different health issues I suffer from!

Well.. not even 2 full months later. This was my 8-9 shunt revision. It would be so easy to give up and never lead a”nor...
08/23/2024

Well.. not even 2 full months later. This was my 8-9 shunt revision. It would be so easy to give up and never lead a”normal” life. Trust me, I have thought about doing so many times. But I can’t. I would be letting the people around me (and myself) down.

Chronic illness at its finest. I need to work but also hurting like a m**o. What’s the solution? Getting a heated blanke...
07/18/2024

Chronic illness at its finest. I need to work but also hurting like a m**o. What’s the solution? Getting a heated blanket just for my office for days when the pain is a little too much to handle.

Health wise I’m the best I’ve ever been. My vision has gone from 20/60 to 20/30 ( meaning my shunt revisions were much n...
06/08/2024

Health wise I’m the best I’ve ever been. My vision has gone from 20/60 to 20/30 ( meaning my shunt revisions were much needed). But these past 3 , this is what I’ve looked like. Migraines are a pain in the butt and this one does NOT want to let go. Went to the ER and nothing is seeming to help. Hopefully this will let up so I can go to work next week. I know there will be people that say “ it’s just a headache”. But it’s not. It feels like someone is stabbing me in the right eye while clamping my temples together. I have a high pain tolerance and this has knocked me down. I’m feeling pretty discouraged honestly but hopefully things will turn around.

My confidence has been up and down lately. My shunt has been hurting because I’ve been moving more and it is disrupting ...
01/29/2024

My confidence has been up and down lately. My shunt has been hurting because I’ve been moving more and it is disrupting the scar tissue. It’s hard to not freak out. My mind automatically goes to the thought “oh crap. I need another brain surgery!” It’s hard refraining from the freak out, but it is something I’ve been working on. Working out used to give me the most confidence. Now I’m insecure because I lost progress….something else I’m working on. Just know that you are not alone when it comes to fluctuating confidence and progress. If you ever need someone to talk to, I’m here.

Today has been a rough day and it just got started. With the weather change and fronts moving in, my body is in a great ...
01/08/2024

Today has been a rough day and it just got started. With the weather change and fronts moving in, my body is in a great deal of pain. It’s frustrating because I want to be able to read but I can’t even hold my book. I want to go to the gym but I can barely wrap my hand around the steering of my car. I want to look presentable for my appointment, but ANYTHING that touches my body feels like a train is smashing into me. My medication has my stomach upset. My lack of sleep has me dizzy. Last night was the first night in 5 days I’ve gotten more than 30 minutes of sleep. All I want to do is get up and go, but all I can do is sit still under a heated blanket and rot. But my Ziggy always cheers me up. I was washing my face and hims came over to get pretty. He brought me his favorite toy to try and cheer me up. He also makes a silly face to make me laugh. I truly would not be here without this sweet boy. I saved his life and I know that. But he has no idea how many times he has saved mine.

01•03•24I wish I were like a river. Flows no matter what happens. The river has no say in whether it dries out, over flo...
01/04/2024

01•03•24

I wish I were like a river. Flows no matter what happens. The river has no say in whether it dries out, over flows, or is calm and steady. The river just goes with the flow. It has to. I guess we are like rivers. I just wish I was graceful like the ripples when you touch calm steady waters. I wish I could easily let go of my past and focus on the here and now, much like a river just focuses on which direction to bend and turn at. Instead, I’m the root of a tree that snags your fishing line, refusing to let go. Giving hopes of catching the biggest fish of your life, only to be let down when it was nothing but false and frustrating hope. Maybe one day I will be the river and not the root.

One of my New Year’s resolutions is to cook more and eat out less. I wanted a little chasers pizza so bad, but I knew I ...
01/03/2024

One of my New Year’s resolutions is to cook more and eat out less. I wanted a little chasers pizza so bad, but I knew I would feel like crap after cause of:
1.) the gluten
2.) how heavy and greasy it is
Then I remembered I got a pack of gluten free pizza dough mix a while back. So I headed home and I DID IT!!! It’s actually yummy and there is no weird texture (if you eat gluten free then you know). I’m proud of myself today and that’s what makes me happy.

Tuesday TomfooleryThe past few days I have been in a pretty rough flare, but today I was at least able to soak up the su...
01/03/2024

Tuesday Tomfoolery

The past few days I have been in a pretty rough flare, but today I was at least able to soak up the sun! I closed all my rings on my Apple Watch, played with my handsome baby, start a new book while in my new chair soaking up the sun, saw a beautiful sun set (and rise), and got a medication adjustment that I have high hopes for. To wind down, I did my nails. I would count today as a success!!! Even on days when you’re slow or don’t accomplish all you wish to, you are still here and that’s what matters 💕

I was recently diagnosed as mixed manic/depressive bipolar disorder. Ever since then, I’ve been dissecting my life like ...
12/17/2023

I was recently diagnosed as mixed manic/depressive bipolar disorder. Ever since then, I’ve been dissecting my life like my life depends on it. I’ve noticed my confidence level and the amount of skin I show in public have a correlation. Here is and example. The pic of me in the red shirt is from today (feeling manic) while the tan sweatshirt was from last week (in a deep depressive episode). It’s so weird to finally have an explanation for things like this. I thought this was normal, but like many aspects of my life, it’s not. If you are struggling with mental health (or even physical health) just know that there truly are doctors who want to help. You will get better. Just don’t give up when you want to. There truly is a rainbow on the other side

Yall…I did it!! All I need now is the diploma in my hand! Dear 15 year old me,YOU did it. You will have your first diplo...
12/15/2023

Yall…I did it!! All I need now is the diploma in my hand!

Dear 15 year old me,

YOU did it. You will have your first diploma in your hand in a month and you get to actually walk across a stage, shake the president’s hand, and you get to be in the graduation ceremony on May. There were so many nights you either cried yourself to sleep or didn’t sleep at all because it was so unsure if you eere even going to make it to the next year. You’ve had about 10 brain surgeries, but that didn’t stop you. You really wanted to stop, but your family, true friends, and therapist wouldn’t let that happen. Don’t forget to thank them for the role they played in your journey. You ARE:
-strong
-worthy
-resilient
-kind
-smart
-loving
and so much more. You did it. Congratulations little me.
Love,
22 year old me

One of the many long lasting side effects of having a major concussion when I was 15 and hundreds of seizures since then...
12/12/2023

One of the many long lasting side effects of having a major concussion when I was 15 and hundreds of seizures since then is memory loss. I still struggle with this issue every single day. I constantly forget something I just learned. My childhood memories (all the way up to high school) are EXTREMELY limited. Sjögrens and bipolar 1&2 also have brain fog/memory loss as side effects so it is genuinely hard to remember something from even 2 minutes ago. It’s finals week. And I have always struggled with this week in college all thanks to my sh*tty memory. I get so overwhelmed by having to dig up knowledge from 4 months ago while studying AND taking my tests. Anytime I forget something (whether it’s brain fog, a brain fart, or it just genuinely not in my noggin anymore) I spiral. I freak out because I do not want to go through the hell that is amnesia followed my occupational therapy, speech therapy and eye therapy again. My automatic response is to freak out because “what if I am losing all my memory again and I have to go through all my traumas for a second time?!???!!!!” I wanted to finish everything tonight, but I caught myself freaking out because I couldn’t remember a concept. Instead of worrying about the negative “what ifs” I’m choosing so go to bed with the positive “what is”! I am about to be a college graduate. I have fought tooth and nail to get where I am. The girl who wrote her name like this always dreamt of this moment. (I do remember that). What is going to happen tomorrow is I will finish up my classes. I will have my first ever diploma from a school!! Even though it’s hell, I did it. I walked through it (sometimes kicking, screaming and swearing) but I’m so close and I refuse to give up right at the finish line. Hey, little me, you’re living your dream💕

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3328 County Road 215
Jack, AL
36346

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