09/27/2023
I always see posts saying Never have jaw joint surgery. I get scared when I see posts advocating for NEVER doing surgery on temporomandibular joints. Saying that is like saying never do surgery on any joint (knees, hips, shoulders, wrists, etc), which is done all the time in medicine. I find the “Never Have Surgery” statement too broad and the misconception that all surgery fails goes back 50 years. In the 1970’s, we didn’t have MRI and CT, so we had no way of knowing what was wrong in cases of facial pain that might be related to the temporomandibular joints. Because of this, they did temporomandibular joint surgery on everyone with “TMJ” and since 80% of “TMJ” patients don’t have anything wrong inside the joints, 80% of surgeries failed. That was 50 years ago, though. Now, we have MRI and CT and can see inside a joint and know exactly what is wrong, if anything. It is easy to find out. The field has been slow to follow, though. In general, I see doctors choosing to diagnose without MRI, so they can’t know what is wrong. I see them doing outdated surgical procedures, such as arthrocentesis. Arthrocentesis is a flushing out procedure. If the joint is healthy and stable, you don’t need any kind of surgery. If the discs are displaced (geenral finding), arthrocentesis does nothing to correct the damage (disc displacement) and generally makes the damage inside the joint worse. It is 100% guaranteed to fail. They also seem to make the patients feel crazy to be in pain and generally ignore the problem.
One of the main problems is calling facial pain “TMJ”. It is way too vague. TMJ stands for temporomandibular joint. Getting a diagnosis of “TMJ” for facial pain is like getting a diagnosis of “KNEE” for leg pain. You would say to the doctor, “What is wrong with my knee?”. They would do a thorough exam and get an MRI. Then they would give a diagnosis of a torn ACL, torn MCL or torn meniscus and tell you can wear a knee brace, take ibuprofen, decrease use of the knee or have surgical correction. If they said you did or didn’t need surgical correction due to “KNEE”, you would think it was strange. Jaw joints should be the same. A thorough exam, MRI specifically of the jaw joints, explain the MRI and give a diagnosis such as osteochondrosis (lack of growth of the jaw joint), disc displacement, torn ligaments, avascular necrosis, etc, should be done. Then develop a treatment plan such as wear a bite guard, decrease use of the jaw, take ibuprofen, or correct the damage.
I had a similar situation with my sister. She suffered from terrible migraines and facial pain for many, many years. When the doctor told us she needed to see a psychiatrist, I decided to figure the problem out. I did and now it is my mission to educate anyone and everyone who will listen to me about how to correctly diagnose jaw joint damage. I found a surgeon who was taking MRI’s in the 1990’s. When we saw her joints, it was obvious what was wrong. Because we didn’t get to her in time, her joints were damaged beyond repair and had to be replaced. The original disc displacement was caused when she broke her collarbone. The disc being out of place, blocked the blood flow to the condyle and caused the growth discrepancy. The surgeon corrected her damage and gave her life back. She has been stable for 25 years. So, I have personal knowledge that the correct diagnosis and treatment does work and I have hundreds of patients who can attest to that.
I have been referring to her surgeon for over 25 years and have had no surgical failures. The surgeon does a procedure called disc removal and fat graft transfer. If you don’t have an MRI, have a doctor who can explain it, does the correct procedure or doesn’t do many procedures, you should not have surgery. But if you do have those things, surgery can save a life. Don’t be scared of fixing it. Surgery is a viable option to prevent further damage, dysfunction and pain. Chronic pain is a huge drain on people’s lives and the medical system.
It is my goal to educate enough people so that there are no more Facebook groups dedicated to this particular chronic pain issue. Some chronic pain is not fixable, like nerve pain, but joint damage is fixable. I am more than happy to answer any questions.