Myasthenia Warrior

11/16/2025

11/16/2025

I am sorry if I make living with Myasthenia Gravis look easy. It’s not! It is a daily struggle of not knowing what my body is going to do. Some days I am able to function just fine, some days I am glued to the couch unable to take care of myself. But I firmly believe if you have the proper medical team, treatments and support, Myasthenia Gravis is manageable.

11/16/2025

What are you doing today to take care of yourself?
I made myself a nice cup of coffee and meditated outside this morning!

11/16/2025

✨ Honor Your Energy Budget ✨

Living with chronic illness means treating your daily energy like a bank account. Some days you’re rich, some days you’re running on fumes — and all of it is valid. 💙

💰 Deposits: rest, good nutrition, medication, support
💸 Withdrawals: chores, stress, overexertion

Try to stay in the green when you can… and forgive yourself fully on the days you can’t. 🌿
Your worth is never measured by your productivity — only by your heart, your resilience, and your ability to keep going in your own way. 💙🌼

11/15/2025

Did you know most of your body is on the inside and you cannot see what is happening? Wow! Did you know there are a lot of invisible disabilities out there?

11/15/2025

💙To everyone living with Myasthenia Gravis… this is for you.❄️

I see you. I see the strength it takes to get through days that many people will never fully understand. The mornings when your body feels heavy, the afternoons when your symptoms flare without warning, and the nights when your mind stays awake even though your muscles are tired.

💪Living with MG isn’t easy—but neither are you. You’re resilient, resourceful, and fighting a battle most people can’t see. And you don’t have to fight it alone.

🤝 If you’re having a good day, celebrate it.
🤍 If you’re having a hard day, please be gentle with yourself.
💬 If you need support, reach out—there’s a whole community ready to lift you up.

Whether you’re newly diagnosed or have been managing MG for years, remember this:

✨ Your worth is not measured by your strength.
✨ Your courage shows in the way you keep going.
✨ And you deserve compassion—especially from yourself.

We’re all walking this path together. One step, one breath, one day at a time. 💪💙

11/15/2025

🍁 Today the leaves reminded me of us. 🌳✨

Scattered on the grass, each one carried its own story —
different shapes, different colors, different journeys through the wind.
Yet together, they painted something beautiful. 🍂💛💜❤️

We humans are the same.
We bloom in our own time,
we weather storms in our own way,
we carry symptoms and struggles like quiet veins running through us.

Still… we are all just trees trying to stand tall,
trying to reach the light,
trying to live as honestly and beautifully as we can. 🌿💙

May we remember to honor the forest we create together —
a wild, imperfect, stunning mosaic of humanity. ✨

11/15/2025

Friday Funny!

Life with a chronic illness is wild… one minute I’m ‘doing okay,’ and the next minute my body says, ‘Surprise! We’re playing Symptom Roulette today!’

11/14/2025

🫶Living with Myasthenia Gravis is already a full-time battle — weakness, fatigue, hospital visits, medication changes, flare-ups… it takes everything you have just to make it through a day. And yet, when many of us apply for Disability Benefits, we’re met with another exhausting fight.

🫣The truth is, people with MG often struggle to get approved because our symptoms can be invisible, unpredictable, and misunderstood. You can look “fine” one minute and be unable to lift your arms, swallow, or breathe the next — but try explaining that in a short form to someone who’s never lived it.

⚖️Between paperwork, denials, appeals, and proving over and over again that your body doesn’t work the way it used to… it’s overwhelming. Many of us are already in a fragile place, and the system expects us to climb a mountain just to receive the help we need to survive.

❄️I’m curious — how many of you had to hire a Disability Lawyer to finally get your benefits approved?
Did it make the process easier, or was it still an uphill battle?

Let’s share our experiences so others with MG know they’re not alone. 💙💪

11/14/2025

Did you know Myasthenia Gravis is incredibly rare? 😮❄️

MG affects only about 0.01–0.04% of the population — that’s roughly 12–37 people out of every 100,000. 🌍✨

Even though it’s rare, the challenges are very real for those who live with it every day. 💪💙
Awareness matters. Understanding matters. Support matters. 🎗️

11/14/2025

Give this a listen! It is an interview I did with Ebony from The Voice of Resilience. We talk about my diagnosis journey and why I am advocating for the MG community.

The Voice of Resilience · Episode

11/14/2025

Sometimes I find myself just watching the clouds drift across the sky. Slow, unhurried, soft around the edges. They move at their own pace, never apologizing for how quickly or slowly they shift.

Living with chronic illness feels a lot like that.

Some days I’m a storm cloud—heavy, weighed down, struggling to hold myself together. Other days I’m light and open, moving steadily even if the world expects me to rush. And then there are days when I barely move at all, and that has to be okay too.

Watching the clouds reminds me that everything in life has seasons… rhythms… moments of stillness and moments of strength. I don’t have to match anyone else’s speed. I don’t have to force sunshine when my body is fighting its own weather system.

There is beauty in simply existing, in letting myself breathe, in letting the sky be a reminder that slow is still movement.

And on the hard days, when the weight feels too much, I look up… and the clouds tell me it’s okay to rest, to float, to change, and to simply be.