Robyn’s Kidney Kapers

Robyn’s Kidney Kapers I was diagnosed with PKD in 2011. I received a new kidney gift in 2021!

04/25/2026

My 3rd kidney is on the left ⬅️

04/13/2026

I completed a Dexa scan today, a test I undergo every three years due to my ongoing Prednisone therapy. My bone density actually improved!

God is great ⭐️

03/13/2026

Have you consider becoming a living kidney donor? Learn what to expect and how living-donor kidney transplants can help patients.

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02/10/2026

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A small but intriguing transplant study is exploring a new way to prevent rejection without the usual daily high toxicity drugs.
In a phase 2a trial published in the American Journal of Transplantation and reported by Medscape, researchers tested a dual biologic regimen of dazodalibep plus belatacept as the main long term anti rejection therapy after kidney transplant. The goal is to reduce reliance on calcineurin inhibitors and steroids, which work well but carry long term risks and side effects.
In 23 kidney transplant recipients, the regimen was generally safe, preserved kidney function, and showed no cases of antibody mediated rejection. Even when rejection occurred, kidney function recovered after standard rescue treatment. Patient and graft survival were 100 percent at one year.
This is early phase research and the study was small, but it points toward a future where transplant patients may rely on more targeted biologic therapies with fewer toxic effects and potentially better long term adherence.

Kidney transplantation science keeps moving forward. 💚

The Saga of my Dialysis Access.
08/23/2025

The Saga of my Dialysis Access.

My dialysis access decided it didn't want to play anymore.

I love hearing about progress in medicine!
06/08/2025

I love hearing about progress in medicine!

From the latest edition of KidneyTalk - Learn from Dr. Villicana, "New Developments in Kidney Transplantation"
https://ow.ly/YVjt50VXixL

https://www.youtube.com/watch?v=8Aslsoq-zyQ
04/27/2025

https://www.youtube.com/watch?v=8Aslsoq-zyQ

Is it possible to die without pain? In this video, I talk about one of the most peaceful ways to die—end stage kidney disease. Many people fear pain in death...

Interesting read!
04/09/2025

Interesting read!

Positive Topline Data from the Fourth Cohort of Patients Consistent demonstration of polycystin (PC) biomarker impact confirming 300 mg fixed dose selection to...

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