Teyla - Princess Warrior

11/02/2021

Teyla was supergirl for 2021 Halloween. Very fitting for my princess warrior 💞

11/01/2021

So we talked with her doctor again and he said that we can have visitors come to the house. Just only a few people at a time, and obviously don't come if showing any type of sickness even just a fever. And he suggests wearing masks if you do come visit. So if you'd like to visit at all just shoot me a message on here or my Facebook or text me and we can set something up. So far her only appt days are Thursdays and Fridays.

10/25/2021

So Friday we talked to one of her Drs and she said that it is not safe or best for her to travel too far from children's hospital or to attend parties or get togethers. 😔 Once again we will not be able to have bday parties for any of the kids as well. I didn't think to ask, (just thought of it as I'm typing this) but I'll ask them about her having visitors at all. I know when she is inpatient she is allowed to have visitors but no more than 2 adults at a time, so I don't see why she couldn't have a few visits at home here and there. As long as your not showing any sickness signs or have a fever and probably just wear a mask to be extra safe. But I'll double check and update when I know for sure.

10/25/2021

10/25/2021

Bald is beautiful 💞💕

10/25/2021

Kourtney

10/25/2021

Benjamin

10/25/2021

James

10/25/2021

🥺

10/22/2021

I know it's been a while since we have updated. We've had good days and bad days the last month. So far she is responding very well to all her chemotherapy. Her 2nd bone marrow test showed no more leukemia in it and they said she won't have to have another one done at all. She has 2 more LPs to go and she will be done with them for a while. All of them keep coming back clear. She has been doing great at home. Starting to get back to herself. She is playing more and smiling and laughing and being goofy. Has started using her sit n spin again. Not as often or for long, but it's a start. She's eating a more variety of food. On her bad days she just lays around, throws up here and there, and is super cranky, which is to be expected. She has started receiving chemo at home which has been nice. They give it in a shot form and she does very well with it. Has had it 3 times already and hasn't cried from it once. She gets chemo in pill form as well which she eats unknowingly with pb and j. She gets it in her spine with every LP and chemo thru her port on Fridays after her LP. We were told next month she will have a 4 day hospital stay. That's all the info I can think of right now. I will be talking to her Dr tomorrow about family functions and holidays and if it will be safe for her.

10/22/2021

Cancer can't keep her from spinning, or smiling, or laughing!