Dandy-Walker Alliance

Dandy-Walker Alliance We connect families, raise awareness, and fund research into Dandy-Walker Syndrome.

We’re excited to attend the Hydrocephalus Association’s 2026 National Conference on Hydrocephalus, , taking place July ...
11/07/2025

We’re excited to attend the Hydrocephalus Association’s 2026 National Conference on Hydrocephalus, , taking place July 23–25 in Indianapolis!
This dynamic event brings together patients, families, researchers, and clinicians for 70+ educational and interactive sessions focused on improving lives impacted by .
We’re looking forward to connecting, sharing, and supporting this inspiring community! Learn more: www.hydrocephalusconference.org/

As Dandy-Walker Awareness Month comes to a close, we want to thank everyone who shared their story and helped raise awar...
05/31/2025

As Dandy-Walker Awareness Month comes to a close, we want to thank everyone who shared their story and helped raise awareness this month! We want to give a special thank you to the Maryland community for showing up for Thursday's Brewing Awareness event at Manor Hill Brewing.

Even though May is over, we're excited to continue our awareness, support, and research efforts throughout the year!

05/31/2025

As Dandy-Walker Awareness Month 2025 conludes, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. So, a huge thanks to Rebecca and entire family!

To learn more about Rebecca's Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in his honor, please visit https://dandy-walker.givingfuel.com/rebecca-31-days-of-awareness-and-giving

05/30/2025

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. So, a huge thanks to Lisa and Carter's entire family!

To learn more about Carter's Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in his honor, please visit https://dandy-walker.givingfuel.com/carter-31-days-of-awareness-and-giving

05/29/2025

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. So, a huge thanks to Bridget and Leo's entire family!

To learn more about Leo's Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in his honor, please visit https://dandy-walker.givingfuel.com/leo-31-days-of-awareness-and-giving

05/29/2025

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. So, a huge thanks to Fahima and Yanis' entire family!

To learn more about Yanis' Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in his honor, please visit https://dandy-walker.givingfuel.com/yanis-31-days-of-awareness-and-giving

05/28/2025

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. So, a huge thanks to Debra and Willow's entire family!

To learn more about Willow's Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in her honor, please visit https://dandy-walker.givingfuel.com/willow-31-days-of-awareness-and-giving

Debra McNamara

05/28/2025

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. So, a huge thanks to Austin, Jamie, Lisa, and Austin's entire family!

To learn more about Austin's Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in her honor, please visit https://dandy-walker.givingfuel.com/austin-31-days-of-awareness-and-giving

Austin's Dandy-Walker Journey Lisa Hulsey Jamie Hulsey

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days...
05/27/2025

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. So, a huge thanks to Anntonette Dennis and Kerrington's entire family!

To learn more about Kerrington's Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in her honor, please visit https://dandy-walker.givingfuel.com/kerrington-31-days-of-awareness-and-giving

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days...
05/27/2025

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. So, a huge thanks to Krystal and Declan's entire family!

To learn more about Declan's Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in her honor, please visit https://dandy-walker.givingfuel.com/declan-lacey-31-days-of-awareness-and-giving

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days...
05/26/2025

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. So, a huge thanks to Katlyn and Hazel's entire family!

To learn more about Hazel's Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in her honor, please visit https://dandy-walker.givingfuel.com/hazel-31-days-of-awareness-and-giving

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days...
05/26/2025

In this final week of Dandy-Walker Awareness Month 2025, we would like to thank each family who took part in our 31-Days of Awareness and Giving Campaign. First up, huge thanks to Rebecca and Meadow's entire family!

To learn more about Meadow's Dandy-Walker journey and make a donation to Dandy-Walker Alliance's work in her honor, please visit https://dandy-walker.givingfuel.com/meadow-31-days-of-awareness-and-giving

Address

10325 Kensington Pkwy, Ste 384
Kensington, MD
20895

Telephone

+18773263992

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