CFC International

CFC International CFC International is dedicated to the support, research and treatment of individuals living with CFC Syndrome. Most will also have a heart defect.

Our mission is to improve the quality of life for individuals with CFC syndrome and their families. Cardio Facio Cutaneous syndrome is a rare genetic condition that typically affects the heart (cardio-), facial features (facio-) and skin (cutaneous). It is seen with equal frequency in males and females and across all ethnic groups. Children with CFC syndrome may have certain features that suggest the diagnosis, such as relatively large head size, down-slanting eyes, sparse eyebrows, curly hair, areas of thickened or scaly skin, and small stature.

Wishing you a beautiful holiday season and a happy new year! Our team will be working a lighter schedule until January ...
12/19/2025

Wishing you a beautiful holiday season and a happy new year!

Our team will be working a lighter schedule until January 5th, but please always feel free to contact us at info@cfcsyndrome.org

*Artwork of children and young adults with CFC syndrome.

12/03/2025

🌍✨ On this International Day of People with Disabilities, we come together to celebrate the incredible strength and resilience of individuals living with disabilities, including many of those with CFC Syndrome. Every day, people with disabilities inspire us with determination, courage, and unique perspectives.

CFC syndrome, characterized by varying degrees of developmental delays, physical disabilities, and other health challenges, showcases just how diverse and remarkable each person’s journey can be. Let's recognize the achievements and contributions of those with disabilities, who continue to break barriers.

🎉 We woke up this morning to an incredible surprise! Thanks to your generosity, yesterday, we received over $43,000 in d...
12/03/2025

🎉 We woke up this morning to an incredible surprise! Thanks to your generosity, yesterday, we received over $43,000 in donations for Giving Tuesday to support CFC International and CFC families. 💖

This overwhelming support will help provide much-needed:
- Research (including new young investigator grants),
- Medical financial assistance for families in need,
- Expert webinars,
- Support groups,
- Two CFC clinics in 2026,
- Family meetups across multiple regions,
- Updated guidelines for clinical care,
- Preparation for our 2027 conference,
- Travel stipends for families attending clinics, meetups, and our conferences.

It’s fantastic to see our community come together for the work we do!

Thank you to everyone who donated and spread the word! Together, we can transform the journey for patients and families affected by CFC syndrome! 🙌💪

🌟 We are filled with gratitude to share that we have raised $35,000 so far on Giving Tuesday for CFC International! 🎉 B...
12/02/2025

🌟 We are filled with gratitude to share that we have raised $35,000 so far on Giving Tuesday for CFC International! 🎉 Because of you, each website and social media donation has moved us closer to our mission! 💙🙏

🌟 We are beyond grateful to announce that we have raised over $24,000 halfway through Giving Tuesday for CFC Internation...
12/02/2025

🌟 We are beyond grateful to announce that we have raised over $24,000 halfway through Giving Tuesday for CFC International! 🎉 Your support and generosity are making a significant impact on our mission, and we couldn’t do it without each and every one of you. Thank you for being part of this incredible journey! 💙🙏

👍🏾 Thumbs up to our amazing community! You have given over $5,000 in the first two hours!❤
12/02/2025

👍🏾 Thumbs up to our amazing community!
You have given over $5,000 in the first two hours!❤

Join us on Saturday at 10:00 a.m. EST for New Parent and Caregiver Orientation!This virtual gathering is designed especi...
12/02/2025

Join us on Saturday at 10:00 a.m. EST for New Parent and Caregiver Orientation!

This virtual gathering is designed especially for families who are newly diagnosed or new to the CFC International community. It’s a chance to connect, ask questions, and learn more about the resources, support, and relationships available to you through our network.
Zoom Link:
https://us06web.zoom.us/j/87522289401?pwd=yulfGyemidA15tGHPVQk57ZLx2m0Xl.1

12/02/2025

🌟💖 It’s GivingTuesday! Last year we raised almost $45,000!

Can we exceed that today? YES!

Let’s come together to make a difference for our amazing community affected by CFC syndrome. We are asking you all to give with your heart, any gift, any amount.

Your generosity can help fund vital research, provide family resources, support CFC clinics and meetups, and help us prepare for our 2027 medical conference. Join us in spreading love and support this Giving Tuesday. Together, we can change the journey for loved ones with CFC syndrome! 💪✨

Address

3665 East Bay Drive #204-277
Lake Worth, TX
33771

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