Foundation for Ichthyosis & Related Skin Types, Inc.

12/02/2025

🎉 It's Giving Tuesday! We're just beginning to get to our $4,000 goal. Fund a conference scholarship = give a family their community. Let's get everyone to Minneapolis 2026! Link in bio! https://bit.ly/4fYZzAg

12/01/2025

🔍 Struggling to find a dermatologist who really understands ichthyosis? FIRST’s Physician Connection Service can help. 🩺

We’ve curated a list of dermatologists across the U.S. who have experience treating ichthyosis and related skin types — recommended by the FIRST community.

💡 How it works:

Fill out a short form.

Specify your zip code + how far you’re willing to travel.

Get a list of doctors in your area with expertise in ichthyosis.

Whether you're newly diagnosed, looking to switch providers, or helping a loved one find care — we’ve got your back.

👉 Tap the link in our bio or head to firstskinfoundation.org/physician-referral-service to get started.

11/30/2025

Explore the impactful story of Allie and Kaleigh living with Netherton Syndrome. Their experiences shed light on the challenges faced by those with rare skin disorders. Join us in raising awareness and supporting research efforts.

https://conta.cc/4pArKKF

Email from Foundation for Ichthyosis & Related Skin Types (FIRST) Member Meetings, Research, MicrodermaMitt Discount       November 30 , 2025 Member Story - Allie & Kaleigh Take a listen to Allie and

11/29/2025

Around 200 babies are born with moderate to severe ichthyosis in the U.S. each year. Every person in our community matters. This , help us get everyone to our National Conference in Minneapolis 2026! https://bit.ly/4fYZzAg

11/26/2025

Remember your first FIRST conference? That moment you found your people? This , give another person that experience. Our Conference Scholarship Fund ensures cost is never a barrier. Give now through Dec 5th. 💙 https://bit.ly/4fYZzAg

11/26/2025

🧡 You’re more than your skin — your mental health matters too, especially during the holidays. Living with ichthyosis can impact not just your skin — but your friendships, your confidence, your daily comfort. On our Mental Health & Ichthyosis page, we dive into:
• the emotional toll of living with a visible, lifelong condition — including anxiety, depression, shame & isolation.

• Tips for recognizing when your mental wellness needs attention and the questions to ask.

• Tools & resources to help you cope, connect, and feel stronger.

✨ You’re not alone in this. Whether you’re a parent, a young adult, or someone simply navigating life with ichthyosis — FIRST is here for the whole person: skin + mind.

👉 Visit the link in our bio or head to firstskinfoundation.org/mental-health to explore more and get started.

11/19/2025

Beiersdorf has been caring for people’s skin for almost 140 years. A global company with iconic brands — Aquaphor, Eucerin, Coppertone and NIVEA — is focused on providing innovative, clinically-proven and safe skin and sun care solutions for more than 500 million consumers in over 200 countries — making people feel comfortable in their own skin. Find out how Beiersdorf is helping those with ichthyosis and related skin types, like Hunter https://www.firstskinfoundation.org/beiersdorf-social-mission-statement

11/18/2025

Take a listen to Allie and Kaleigh's story about living with Netherton Syndrome. https://www.youtube.com/watch?v=JRvibiNnpTc

11/18/2025

Health insurance is changing… are you ready? All are welcome to join NORD on November 19 at 2:00 p.m. EST for a webinar to help members of the rare disease community understand what to look for during open enrollment. We will provide tips for choosing the right health plan so you can keep getting the care and medicines you need.

Register Today https://rarediseases.zoom.us/webinar/register/WN_spnUNzq9SrimzpI8hm5aig #/registration

11/17/2025

Here's your chance to grab some MicrodermaMitt Products. They are having a 50% off sale of their entire website through November 30th! https://microdermamitt.com/
Use code BLACKFRIDAY50

11/17/2025

🌟 Get ready to explore Minneapolis! 🌟

While you’re here for the 2026 FIRST National Conference, take some time to discover everything this vibrant city has to offer! From art and adventure to nature and nightlife — Minneapolis has it all. 🏙️✨

🎨 Culture & Creativity
🖼️ The James J. Fiorentino Museum – stunning sports and wildlife art
🔥 Portal° Thermaculture – a one-of-a-kind wellness experience
🎭 Open Eye Figure Theatre – imaginative and inspiring performances

🛍️ Shop & Stroll
🪶 Ancient Traders Market – Indigenous art, jewelry & gifts
🏬 Mall of America – shop, dine, and play at one of the largest malls in the U.S.
🕰️ Antiquified – vintage finds and local treasures

🌿 Nature & Outdoors
🌸 Roberts Bird Sanctuary – a peaceful escape for bird lovers
🌊 Webber Park – Minneapolis’ natural swimming pool
🌳 Fairview Park – a great spot for a stroll or picnic

🍷 Food & Fun
🍺 Grain Belt Brew House – taste a piece of Minneapolis history
🍇 AxeBridge Wine Company – local wines in the heart of the North Loop
🧗‍♂️ Vertical Endeavors – climb your way to adventure
💡 Sky Pesher – a hidden gem art installation by James Turrell

Whether you’re into art, nature, shopping, or good food — there’s something for everyone in Minneapolis! ❤️

📍 Join us June 26–28, 2026 for the FIRST National Conference — and make time to explore this amazing city!

https://www.firstskinfoundation.org/minneapolis-2026

11/17/2025

🌟 It's time to apply for FIRST-Aid🌟

Living with ichthyosis can bring emotional, physical, and financial challenges. That’s why we are reminding you to apply to FIRST-Aid, a program designed to provide support for skin care needs to those affected by ichthyosis.

➡️ Who is Eligible?
If you or a loved one has ichthyosis or a related skin type, you may qualify to receive a grant to help with skin care expenses https://www.firstskinfoundation.org/first-aid

➡️ Key Requirements Include:

Be a FIRST member prior to applying

Demonstrate financial need

Provide documentation of skin care expenses

Submit a testimonial (anonymous is okay)

🗓️ Application deadline is January 31st
https://www.firstskinfoundation.org/first-aid

💡 How to Apply or Support

Fill out the FIRST-Aid Skin Care Fund Application via the link on our site.

If you’d like to see more people helped, consider donating to the FIRST-Aid fund — every bit helps make relief possible.

Let’s ensure that no one has to choose between caring for their skin and caring for their finances. 💙

🔗 Learn more / Apply: firstskinfoundation.org/first-aid
📩 Questions? Email us at info@firstskinfoundation.org