Colors of Lupus Nevada

11/22/2025

Due to an emergency, we had to cancel today’s meeting; we will be back in the New Year with new and exciting things.

10/23/2025

We are excited to be a proud partner of Lupus and Allied Diseases Association’s Community Booth at in Chicago, IL. We are in attendance to network, learn, share our resources, and be a Visit us at the Community Booth # 2121.

LupusChat Lupus Society of Illinois Michigan Lupus Foundation
Lupus Foundation of New England Infusion Access Foundation NICA - National Infusion Center Association
US Pain Foundation
Masonic Medical Research Institute - MMRI
Rheumatology Research Foundation CARRA TiffanyandLupus Elizabeth CaringForLupus SantaCruz Anne M. Zablotowicz Dave Arntsen Whitney Carter LaBar Autumn Austin Alliance for Patient Access Alliance for Gout Awareness Dina Thachet

10/04/2025

Join us tomorrow, Saturday, October 4th from 11:30AM - 12:30PMPST via Zoom for the first meeting of our “Managing your Lupus Series”, “You Have Lupus so Now What”. Zoom information is in the flyer can’t wait to see you there

09/27/2025

Today’s meeting has to be rescheduled, we will be planning another one very soon so please stay on the look out for the new date. In the meantime, get ready for the start of the “Managing your Lupus” series beginning Saturday, October 4, 2025 at 11:30am (info on flyer); can’t wait to see you there! 💜

09/17/2025

We have got a lot going on in the next couple of weeks, starting with the return of “In the Loop” support group meeting on Saturday, September 27th from 2-3:30pm; and yes, this meeting is in person. Please check the flyers out for all of the details and location. We can’t wait to interact with you all!! 💜🦋

07/20/2025

Lupus awareness should happen 365 days, 24 hours, 7 days a week. Although they say Lupus can be invisible, there are times that the Warrior’s Lupus is visible to the human eye. For me, one of my visible realities of Lupus is called alive so Reticularis which is a common skin finding consisting of a mottled reticulated vascular pattern that appears as a lace-like purplish discoloration or transparency of the skin.

Livedo reticularis (LR) can manifest as a result of a wide range of conditions, including:
Hematologic and hypercoagulable states: Such as thrombophilia, an increased tendency for blood to clot
Connective tissue diseases: Such as systemic lupus erythematosus (SLE) and rheumatoid arthritis.

The stretching and transparency of the skin is VERY painful. I haven’t felt this way in a long time, can somebody tell my insurance company that they need to approve my Saphnelo (Lupus treatment) so that I can not have to suffer with the Livedo Reticularis. .o.l.n. 💜

07/09/2025

Lupus can cause depression, anxiety and PTSD so we want to check on everyone’s mental health status. Today’s Mental Health Check-In 💬🧠

How are you really feeling today? Take a moment to pause, breathe, and check in with your mind and emotions. It's okay to not have it all together. Give yourself grace.

Whether it's rest, prayer, a walk outside, or talking to someone—do one thing today that nurtures your mental health.

Remember: your peace is worth protecting. Your mind matters every single day. 💚

06/20/2025

06/20/2025

Walking the World Purple

05/31/2025

MAY IS LUPUS AWARENESS MONTH | DAY 1 FACT 1:

Sensitivity to ultraviolet light (present in both sunlight and artificial light) affects as many as two thirds of individuals with lupus, and may cause fever, debilitating fatigue, joint pain, rashes and other symptoms.

💜 .o.l.n.