Lewy Body Dementia Association

Lewy Body Dementia Association The leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD). Learn more at lbda.org.
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The Lewy Body Dementia Association (LBDA) is the leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD), the second most common form of neurodegenerative dementia affecting approximately 1.4 million people in the United States alone. Established in 2003, LBDA’s mission is to optimize the quality of life for those affected by LBD by accelerating awareness, advancing research for early diagnosis and improved care, and providing comprehensive education and compassionate support.

Today is – a day to recognize and thank those who dedicate themselves to caring for others. Supporting someone living ...
02/21/2026

Today is – a day to recognize and thank those who dedicate themselves to caring for others. Supporting someone living with (LBD) is not easy. The time, energy and heart you bring to caregiving truly make a difference. Thank you. 💜

If you are looking for additional support, we have gathered a few care partner-focused Community Webinars you may find helpful:

• It’s Just Different: Understanding the Unique Challenges and Needs of the LBD Care Partner
• Strategies for Modern, Meaningful
• Get REAL Compassion: Building Sustainable Skills of Compassion and Presence through Lewy Body Caregiving

Find these webinars on LBDAtv: www.youtube.com/

In “Hallucinations and Delusions: Making Sense of Psychosis in Lewy Body Dementia” on Feb. 24 at 2:00pm ET, explore psyc...
02/20/2026

In “Hallucinations and Delusions: Making Sense of Psychosis in Lewy Body Dementia” on Feb. 24 at 2:00pm ET, explore psychosis in with Dr. Greg Pontone of the University of Florida. Learn the basics of the symptom, how it differs between other forms of dementia, current treatment options, and what research is revealing to us about the future.

Register Now: https://ow.ly/rINN50YisCa

Join the fight against (LBD) with our essential styles and merch. Every purchase increases awareness of LBD, advances ...
02/18/2026

Join the fight against (LBD) with our essential styles and merch.

Every purchase increases awareness of LBD, advances research and provides comprehensive education and support services for families .

Show your support today: https://ow.ly/VJ2S50X7f4X

LBDA will be closed in observance of Presidents’ Day on Monday, February 16. We will resume normal hours on Tuesday, Feb...
02/16/2026

LBDA will be closed in observance of Presidents’ Day on Monday, February 16. We will resume normal hours on Tuesday, February 17.

Our Support Services team will be away from the Lewy Line during this time. Send us an email at support@lbda.org or leave a message at 800.539.9767.

Living with (LBD) can be challenging in many ways. While cognition and movement problems are often discussed, many peo...
02/15/2026

Living with (LBD) can be challenging in many ways. While cognition and movement problems are often discussed, many people also experience hallucinations or delusions. These symptoms are known as LBD psychosis, and they are common in both dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD).

The ILLUMERA Study is a clinical research study testing an investigational medication designed to help reduce and delusions in people with LBD, including both DLB and PDD.

Learn more about the study today, including where it is taking place and who may be eligible to volunteer: https://ow.ly/srqc50YgcoU

can feel different after a (LBD) diagnosis. While roles and relationships may change, connection can be nurtured in ...
02/14/2026

can feel different after a (LBD) diagnosis. While roles and relationships may change, connection can be nurtured in meaningful ways.

Our Lewy Learning Center course, Redefining Intimacy: Connection After Diagnosis, explores the unique challenges encountered after an LBD diagnosis and offers guidance for nurturing , easing difficult discussions, and strengthening emotional bonds in this new chapter of life.

Explore the course: https://ow.ly/C4zW50YfWWX

Sleep disorders are common in (LBD), and many are treatable. In our Community Webinar “Counting Sheep with Lewy: Copi...
02/14/2026

Sleep disorders are common in (LBD), and many are treatable.

In our Community Webinar “Counting Sheep with Lewy: Coping with Sleep Disturbances in LBD,” Dr. Bhavana Patel discusses common sleep symptoms in LBD, offering advice to help you better manage these disturbances and find the support you need to improve sleep quality with Lewy.

Watch now on LBDAtv: https://ow.ly/YITT50YfrV8

Your experience with (LBD) matters. Whether you are living with Lewy, caring for someone who is, or providing health o...
02/13/2026

Your experience with (LBD) matters.

Whether you are living with Lewy, caring for someone who is, or providing health or community services, your insight can help shape the Lewy Body Dementia Association’s future goals, programs, and strategic initiatives.

We invite you to take our community survey to share your experience and help us better understand the real-world challenges, priorities, and unmet needs of the .

All responses are anonymous, and the survey is open until Friday, Feb. 20. Together, we will improve the lives of those .

🔗: https://ow.ly/1Tyj50YfrXc

Hallucinations? Delusions? Illusions? Capgras syndrome? These are common experiences in (LBD). However, they are also ...
02/12/2026

Hallucinations? Delusions? Illusions? Capgras syndrome? These are common experiences in (LBD). However, they are also common in other diseases, and not everyone with Lewy will experience them.

In “Hallucinations and Delusions: Making Sense of Psychosis in Lewy Body Dementia” on Feb. 24 at 2:00pm ET, Dr. Greg Pontone of the University of Florida will discuss what you need to know about psychosis in LBD, current treatment options, and how research is lighting the way toward a deeper understanding of LBD in the future.

Register today: https://ow.ly/eV7f50Ye7o0

Living with (LBD) can bring unique challenges, changes, and pivots - but you do not have to navigate them alone. The L...
02/11/2026

Living with (LBD) can bring unique challenges, changes, and pivots - but you do not have to navigate them alone. The Lewy Body Dementia Association offers several virtual support groups and offerings created specifically for those diagnosed with LBD and are designed to accommodate a variety of needs and schedules.

These groups provide a space to connect with others who truly “get it,” where you can share experiences and learn practical strategies for daily living. These include:

• Weekly, recurring support groups open to any individual diagnosed with LBD
• A Gentleman's Circle for men diagnosed with LBD
• A Ladies' Circle for women diagnosed with LBD
• An ongoing, educational discussion group hosted by the LBDA Education team

We also offer one-on-one connections called “Lewy Buddies” for those as well as .

For more information, meeting schedules, and additional support offerings – please reach out.

📧 Email us at support@lbda.org
🖥️ Contact us on our website
📲 Call the Lewy Line at 800-539-9767

“From Berlin to Breakthroughs: The Life of Dr. Lewy,” led by Dr. Patrick Emanuell Mesquita Sousa-Santos, is now availabl...
02/10/2026

“From Berlin to Breakthroughs: The Life of Dr. Lewy,” led by Dr. Patrick Emanuell Mesquita Sousa-Santos, is now available on LBDAtv.

Through Dr. Sousa-Santos' expert-led storytelling and historical insights, this webinar reflected on how Dr. Friedrich Lewy’s legacy continues to inform today’s understanding of and inspire future innovation in care and research.

Watch on LBDAtv at https://ow.ly/I38F50Yc1oI

“From Berlin to Breakthroughs: The Life of Dr. Lewy” is sponsored by GE HealthCare.

In this insightful episode of M.E.S.H., host Pamela Brewer welcomes Julia Wood, MOT, OTR/L, from the Lewy Body Dementia ...
02/06/2026

In this insightful episode of M.E.S.H., host Pamela Brewer welcomes Julia Wood, MOT, OTR/L, from the Lewy Body Dementia Association for an important discussion about (LBD), the second most common type of dementia after Alzheimer’s disease, affecting 1.4 million Americans.

“Lewy Body Dementia: The Second Most Common Dementia You’ve Never Heard Of” explores the distinctions between LBD and Alzheimer’s, the challenges of diagnosis and management, the importance of support, and emerging research. Julia Wood shares resources and strategies for those navigating the world of dementia, providing hope and information for individuals, families, and clinicians.

Watch now: https://ow.ly/7JX550Y9Ejm

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912 Killian Hill Rd SW Suite 105
Lilburn, GA
30047

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+18005399767

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