Every Heart Beat

Every Heart Beat Our experiences dealing with a medical tragedies and our triumphs. Learning to live again. This page is for following us during our life's obstacles.

Amylodosis, Smoldering MM and Aorta dissection

05/04/2026
He's precious
03/25/2026

He's precious

03/25/2026

Living with terminal cancer is and has been crazy. One day you are feeling good and the next day you can't get out of bed. I've learned a lot these past 4 years...

I've learned that people are unpredictable

Please spread awareness for Amyloidosis. It's a bad disease. It's evil. It's overlooked and hardly tested for. New treat...
03/25/2026

Please spread awareness for Amyloidosis. It's a bad disease. It's evil. It's overlooked and hardly tested for.
New treatments are happening everyday. We need a cure!

πŸš¨π‹π’π π‘π­ 𝐒𝐭 𝐫𝐞𝐝 𝐚𝐧𝐝 𝐑𝐞π₯𝐩 𝐫𝐚𝐒𝐬𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬! πŸ”΄πŸ’‘

π˜‹π˜°π˜―β€™π˜΅ 𝘧𝘰𝘳𝘨𝘦𝘡 𝘡𝘰 𝘱𝘢𝘳𝘀𝘩𝘒𝘴𝘦 𝘺𝘰𝘢𝘳 𝘳𝘦π˜₯ 𝘭π˜ͺ𝘨𝘩𝘡 𝘣𝘢𝘭𝘣 for your porch, driveway, home, or business 🏑🏒 and take part in Light The Night for Amyloidosis ❀️

This Amyloidosis Foundation awareness event runs throughout the entire month of March πŸ—“οΈ. Locations across the globe are lighting up for the cause 🌍, and with your help, our list will continue to growβ€”we’re excited to share it with you soon πŸ™Œ

πŸ‘‰ Get your red bulb now: https://amyloidosis.org/product/red-light-bulb/

I haven't been posting here for a while. Things have been really busy. We are ok. We're trying to figure things out. It ...
03/25/2026

I haven't been posting here for a while. Things have been really busy. We are ok. We're trying to figure things out. It hasn't been easy but we are not giving up on each other.

02/08/2026

I absolutely love watching the Olympics. The talent is wild. Rock on USA!

01/30/2026

Made me giggle

What?
01/30/2026

What?

And a beautiful thing she was… 🀍πŸͺ½
Rest in peace, Catherine O’Hara, a true light of laughter and heart.
Forever our Home Alone mama.
The incomparable Moira Rose.
Your kindness, wit, and warmth touched us all.

01/30/2026
01/30/2026

My son is being silly

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