Epilepsy/Brain Surgery Support Group

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Epilepsy/Brain Surgery Support Group

If you have epilepsy or have had brain surgery and need support im happy to talk to you and give you guidance!!

11/10/2024

20/06/2024

Hi my name is Emily! I am 24 years old and have suffered from Epilepsy since I was 14 months old. I have had 9 brain surgeries in the last 3 years with 3 parts of my brain removed. I have an implant put in to help control my seizures. I suffer from what you call refractory epilepsy. That is when your medications don’t control your seizures. Thankfully with the implant and the right medications I have been almost seizure free for a year! I have a really good relationship with my doctors. They have been the best support to help me through everything I have been through. I would like to volunteer some time with young adults or kids suffering from epilepsy/seizures in the Lynchburg VA area. I have struggled with them throughout my life, and I know how it feels to not have anyone understand you! Feel free to message me on here if you have any questions!

02/02/2023

I know your tired, your fed up, you're close to breaking, but there's strength within you, even if you feel weak. Keep Fighting!

05/01/2023

Hi my name is Emily Taylor I have been suffering from Uncontrollable epilepsy sense I was 14 months old. Until 2 years ago I was offered brain surgery to try to get my seizures under control. The very first surgery was to remove 3 parts of my brain from where the seizures where coming from. Then I was given a year to recover and the seizures started back so I had to have another surgery to try to get my seizures under control. After the 2nd surgery my incision site got infected I ended up with 3 staph infections and a bacterial infection. But altogether I have had 9 brain surgeries in the last 2 years. But in the last 2 years it has made me want to help others that have the same condition I have because I was suffering alone a lot and didn’t know what to do. If you have epilepsy or have had brain surgery and need someone to talk to please feel free to message me. I am here for you! We are in this together!

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