01/27/2026
Everything went well and labs look better than they’ve ever been! We should have marrow results in a week or so.
Next month, Addy will have a bone density test. This is to see if there’s any osteoporosis from the severe bone demineralization from her treatment. With all of her fractures, there’s concern in that area. She’s been taking high dose vitamin D since November, so hopefully it isn’t too bad. She also receives a Lupron (Depo) injection to suppress her periods. A side effect of the injection is bone density loss, so we will be discussing switching her to a patch. She’s all for it, because the Lupron injection is SO painful!! The needle is not small by any means. Her next bone marrow is scheduled for 3/16. While she’s under, we will finally get her port removed!! This is a HUGE milestone! Having her port means, any time she gets a fever of 100.4 or above, it’s straight to the hospital for admission. We won’t have that concern once it’s removed. Then, we can move on to potentially doing her 5hr infusions subcutaneously from home once a week. Lots of things moving in the right direction. She’s home now, and a little sore but doing well. Thank you all for always following along and sending prayers during this past year and a half. It truly means a lot!
