Addy's Fight With Leukemia

02/17/2026

Well, both Addy and her older brother Joey are battling a chest cold with a nasty cough, so we’ll be enjoying Mardi Gras on the couch again. Nothing new to report on transplant yet. We’ll meet with our oncologist on Monday before her admission. I’ve talked with Addy about some of what’s to come. She isn’t happy with more chemo and radiation, or losing her hair again. We’re going to do whatever we can to avoid it, but if that’s what it’s going to take make her healthy, that’s what we’ll have to do. Happy Mardi Gras Y’all 💜💚💛
*Throwback to the last parade we attended, February, 2024

02/13/2026

I have had several amazing family, friends and followers reach out asking to be test for a bone marrow match. We have two current matches that were found on the registry, though they still need to agree to donate. While I am so very thankful for everyone’s willingness to be tested, we aren’t there just yet. However, I urge any and everyone to join to registry. You can do this by signing up at the link below. They will send you a kit, and it’s a simple cheek swab that you send back. It’s that easy, and could save a life! You’ll then be put on the registry, and will be contacted should you be a match for someone in need. Please note, 75% of donations considered are from individuals between the ages of 18-35, but it won’t hurt to be on the registry.

NMDP (formerly Be The Match & National Marrow Donor Program) is a global leader in bone marrow & blood stem cell transplant, driving life-saving research.

02/12/2026

I’ve been asked about donations and wishlists. A family friend had a GoFundMe set up when she was diagnosed, but we closed it not thinking she would ever be in a place of need again. We thought this was all behind us! I’ve created a new one, and any amount is appreciated, but prayers are needed most! As for a wishlist, we’ll wait until we have solid transplant dates to set that up.

I will post and update everyone once we have more information from her oncologist. As for bone marrow donors, you would need to be between the ages of 18-35 to be considered unfortunately. Also, she will likely need blood products again during treatment. I’ll be teaming up with the Blood Center for blood drives soon. As always, thank you all for your prayers and kind words. It means the world to me that she is so loved by so many!

Venmo Option:

https://gofund.me/bc7454fb3endntii

Words no parent should ever hear, is your child has cancer. That’s just w… Stacey Jensen needs your support for Hope and Healing for Addy's Transplant Journey

02/11/2026

Now that I’ve notified our family and friends, I’ll share with our followers.
That last test we were waiting for came back today and it’s positive for leukemia 💔 We were totally blindsided and shocked to receive the phone call today. I am still processing it all. We are all completely devastated.
There is a plan in place. She will be admitted on 2/23 to start a medication called Blinatumomab, which is a 28 day continuous drip. Once started, she will remain in the hospital for a week, then we will be discharged with the pump and medication. She will have to be seen in clinic twice a week until the drip is complete. Afterwhich, she will need a bone marrow transplant. None of our family are matches, but there are 2 100% matches on the registry. I don’t know much more than that right now. I’m heartbroken and truly terrified for this new path, so please send all the prayers for my baby. She’s most upset about leaving her friends at school again, as she will have to go back on homebound schooling.

02/10/2026

PLEASE SEE PINNED POST FOR RECENT UPDATE
Finally received Addy’s bone marrow results yesterday, “No evidence of b-cell lymphoblastic leukemia identified”!! Waiting on one more test result, but this has definitely taken all of the worry away.

02/06/2026

My girl decided to pass on the Eve parade this year. She didn’t want to have to be in her wheelchair. While she’s definitely more mobile now, she isn’t very steady on her feet for long periods or in crowds. So, her and I are having a little Galentine’s celebration! I stopped and picked up some things (all pink themed 🩷 of course) for her and I to have a relaxing night on the couch, with Taco Bell and our favorite shows. 💜💚💛

02/04/2026

Today is World Cancer Day, a day I wish we weren’t apart of! 🎗️🧡

02/02/2026

ETA: I have not told her about this, as there’s no need to cause unnecessary worry for her. So those who see her regularly, 🤫
Just here asking for prayers and all the good vibes. Another blip showed up on Addy’s lymphocyte bloodwork. It’s raised some concern, but we aren’t jumping the gun until the full results are back. I’ll definitely update once we have some answers. In the mean time, enjoy this throwback of baby Addy at her 1yr wellness check. 🎗️🧡

01/27/2026

Everything went well and labs look better than they’ve ever been! We should have marrow results in a week or so.
Next month, Addy will have a bone density test. This is to see if there’s any osteoporosis from the severe bone demineralization from her treatment. With all of her fractures, there’s concern in that area. She’s been taking high dose vitamin D since November, so hopefully it isn’t too bad. She also receives a Lupron (Depo) injection to suppress her periods. A side effect of the injection is bone density loss, so we will be discussing switching her to a patch. She’s all for it, because the Lupron injection is SO painful!! The needle is not small by any means. Her next bone marrow is scheduled for 3/16. While she’s under, we will finally get her port removed!! This is a HUGE milestone! Having her port means, any time she gets a fever of 100.4 or above, it’s straight to the hospital for admission. We won’t have that concern once it’s removed. Then, we can move on to potentially doing her 5hr infusions subcutaneously from home once a week. Lots of things moving in the right direction. She’s home now, and a little sore but doing well. Thank you all for always following along and sending prayers during this past year and a half. It truly means a lot!

01/26/2026

We made it to NOLA!! Send all the good vibes our way. Though the procedure and infusion have become second nature to us, it’s always nerve-racking when she’s having to go under anesthesia. We will also be speaking to our oncologist about having her port removed after the next biopsy in March (which will make 1 year since her Car-T), and see if we can switch over to subcutaneous IVIG. IVIG is the monthly infusion she receives since her body doesn’t have any b-cells. This would essentially save us an all day trip to the hospital for an 5hr infusion, and doing it myself at home weekly.

01/24/2026

It’s crazy how much has changed in one year! She’s doing so well y’all. Monday she is having her next biopsy and infusion. I’m really praying we can make it safely across the Causeway, with this crazy weather coming through.

We made it across the lake!! Addy’s counts were great, so her procedure and chemo was a go. LP and NG tube change done ✔️ and now we’re settled into her room. She is very HANGRY, so we’ve got food on the way. Praying for a smooth round of chemo 🙏🏻