04/06/2026
UPDATE
Thanks to a mom in a Leukemia/Car-T FB group, I learned Addy might be eligible for a CarT trial, that targets CD19 and CD22, at CHOP (Children’s Hospital of Philadelphia). Addy did SO WELL with CarT the first time, that I believe it’s what’s best for her, given how poorly her body handled chemo at diagnosis. Her oncologist is on board, and we are getting the ball rolling with the CarT trial. This would mean lots of travel to CHOP, so I’m sharing the GFM again, and if you feel led to donate we would greatly appreciate it. If not, prayers and SHARES of the GFM are just as important.
In the meantime, she will be admitted Thursday to start some chemo. I requested not to start anything until after our Nana’s memorial service on Wednesday, and they were very accommodating. We are looking at a being there for a few weeks. They are expecting her counts to bottom out and want to keep her inpatient until her counts start to come back up, to keep her infection risk down. If you know me, you know I like to have a plan, so being told today we’re being admitted in 3 days for a few weeks would normally put me in a spiral, but I’m truly at peace with it. I know this is temporary and CarT is her future. We just need to get through the hard stuff, beforehand. 🎗️🧡
https://www.gofundme.com/f/hope-and-healing-for-addys-transplant-journey
Throwback to our Covid stain glass door project.
