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Narrowly Unstoppable, 8650 east state highway 10, Magazine, AR (2026)

01/08/2025

Update on our Mayo Clinic trip! 🚨

I’ve been overwhelmed (in the best way 🥰) by all the messages asking how you can help. Right now, we’re focusing on covering lodging 🏨, and I think we’ve got that part handled thank you all for your generosity so far! ❤️

My sweet aunt suggested another way to help: gift cards! 💳 🍔🌮🍟 If anyone would like to send gift cards for food from supply chain restaurants like McDonald’s, Taco Bell, Subway, Chick-fil-A, or even DoorDash, Visa Gift Cards or Walmart, it would be such a blessing to help cover meals during this journey. 🍽️

I’m also planning to buy a few here and there to stash away, but if you’d like to contribute, you can mail them to us at:

📬 Christian Family
8650 East State Highway 10
Magazine, Arkansas 72943

Thank you all so much for your kindness and support—you’re truly helping us through this one step at a time! 💕🙏

12/26/2024

Brain Surgery is scheduled for March 17th 2025! We will leave March 14th because I have to stop my blood thinners which could be very dangerous. Expected stay is 2-3 days but was asked to stay until the 21st to make sure I’m not 13 hours away with major complications within the first week after surgery.

I need fundraiser ideas to get us there and back and also with lodging and food. I’m willing to do photography or clean. I will be in icu so Josh can not stay with me he can only visit.

12/18/2024

Health Update

I wanted to share some updates about my health journey. My most recent MRI showed some microbleeds and tissue death in my brain, but thankfully, it hasn’t worsened since my last scan. While this is reassuring, there are still serious concerns.

The weakness, heaviness, and vision issues I’ve been experiencing are likely due to my old strokes and a significantly blocked coronary artery in my brain. My doctor also mentioned that I might be having more transient ischemic attacks (TIAs), which are mini-strokes. These, along with the fatigue I feel, are likely caused by reduced blood flow to my brain.

I can wait until March for brain surgery, but I have to be extremely cautious in the meantime. Stress and dehydration could cause another stroke, so I’m focusing on rest, staying hydrated, and managing stress as much as possible.

Thank you all for your continued support and prayers they mean so much to me. Please keep them coming as I navigate these challenging months ahead.

12/12/2024

Received my MRI results today. While they didn’t confirm how many strokes were seen, the report mentions:
• Normal midline structures and pituitary gland.
• Blood deposits in the right basal ganglia, possibly from a previous microbleed. Possibly from the MoyaMoya
• Evidence of old lacunar infarcts and changes in the right frontal lobe.
• Mild enlargement of the right lateral ventricle’s frontal horn, likely due to prior tissue loss, but no hydrocephalus or pressure issues.
• Mild nonspecific gliosis, likely from chronic reduced blood flow.
• Swelling and fluid in the sinuses, especially on the left side, but no issues with the mastoid air cells or skull.

I’ll be sending this to my neurosurgeon at Mayo Clinic to get their opinion on the findings. Hoping for more clarity soon.

12/11/2024

Life after surgery is going to be complicated, and there are no guarantees. My team at Mayo Clinic has made it clear that the more strokes I have, the more my survival rate declines. That’s a hard truth to face, but if there’s one thing I know about myself, it’s that I’m a fighter.

Right now, my symptoms are pointing to the possibility of a 4th stroke. I have an MRI scheduled soon to rule that out. If it turns out I’ve had another stroke, it means moving up the brain surgery sooner than planned.

Every step of this journey is tough, but I’m not giving up. I’m fighting for my family, for my future, and for all the moments I’m not ready to let go of. Thank you to everyone who continues to stand by me I couldn’t do this without you.

12/10/2024

Todays the day! I drive to Little Rock to meet with the Clinical Trail team to see if I get approved to participate in science 🧪 Since November of 2023 I only had 1 brain blockage, in December 2024 I have 7 Brain Blockages, 4 heart blockages , and 1 in my Kidney. They call this aggressive atherosclerosis. If I continue having these rapid blockages it’s going to be the end of my lifespan and that’s the scarey part because theirs not cure for this. Because of my body trying to make up for my blockages it has made little bridges of unstable pathways to try and compensation for my lack of flow it has also gave me MoyaMoya Syndrome which is a rare 6 in 10 million white folks have it. This medicine is a shot and will help lower the hyperlipidemia which should infact stop my body from producing blockages. This could save my life and others! So today is kind of a big deal in my health Journey. ❤️❤️❤️❤️🧪🧪🧪🧪

12/04/2024

I spoke with my neurosurgeon today and went to my doctor’s appointment. Unfortunately, there is a very high chance that my brain bypass surgery at the Mayo Clinic will need to happen sooner than March. The symptoms I’m experiencing, like brain zaps and glazed vision, are affiliated with having another stroke, which would be my fourth.

Right now, I’m resting to see if these symptoms subside. If they don’t, I’ll need a repeat MRI immediately, but even if they improve, my doctors plan to repeat the MRI just to be safe.

This journey has been overwhelming, but I’m holding onto hope and focusing on staying as strong as I can. Thank you to everyone who has been supporting me through this it means the world. I’ll keep you updated as I learn more.

12/03/2024

Health Update: Today, I found out I’ve been diagnosed with Hyperlipidemia, adding another layer to this journey. On top of that, my short-term disability isn’t transferring over smoothly to long-term disability, which is making things even more stressful. It’s hard not to feel discouraged with so much piling up, but I’m trying to stay hopeful as I prepare for my clinical trial evaluation next week. Thank you all for your continued prayers and support—it means the world to me during this challenging time.

11/27/2024

Small update: I spoke with my genetic team today, and there’s no evidence that my condition is inherited genetically. They recommended I see a lipidologist for further evaluation. On a positive note, they mentioned I’m a great candidate for a study called ACCLAIM-Lp(a), which investigates the effects of Lepodisiran on reducing cardiovascular events. The study lasts 4-5 years, and my P*P will be referring me. Feeling hopeful about new possibilities!

Brain surgery is still a go in March for The Moyamoya

11/25/2024

I met with my neurosurgeon in January to finalize plans for my surgery. The location they have to operate on is extremely dangerous, with risks including a massive stroke, loss of memory, inability to speak, and loss of fine motor skills. Despite these risks, the surgery is necessary to prevent another catastrophic stroke, which could be fatal.

I’m sharing this because if you care about me and want to see me as I am now, I urge you to take five minutes of your time before March to do so. After this, the outcome is uncertain. If something happens and you didn’t take the opportunity to create a memory with me, that’s on you, not me. My husband knows my wishes. If I have no quality of life, I will not be kept alive artificially.

For those who didn’t value my time while I was here, I don’t want you showing up later at my house to sit and feel sorry for yourself. My time is valuable now, and I want to make memories with those who genuinely care.

I don’t believe anything bad will happen, but I’m prepared for the possibility. This is your chance to make a moment with me that we can both hold onto. The choice is yours. I will not put effort in the people who do not put effort in me.

11/18/2024

Health Update

I’ve been fighting off an infection that has left me extremely dehydrated, which has made me feel incredibly weak. It feels like my arms and legs have rocks tied to them, making even the simplest tasks exhausting.

My recent lab work has shown a lot of concerning results, with my kidneys appearing to be in what looks like kidney failure. I’m scheduled to see a nephrologist in December to figure out what’s going on there. A lot of my lab work shows bad kidney function and dehydrated and my inflammation markers are awful!

On top of that, it looks like I’ve inherited a genetic condition that causes my body to overproduce bad cholesterol in my bloodstream. This seems to be a major factor contributing to all the blockages in my heart and brain. While this isn’t the full answer to my health issues, it’s a big piece of the puzzle.

I spoke with my care team at Mayo today, and they are working on a plan to see if I qualify for a clinical trial to address these elevated lab levels. I’m trying to stay hopeful and take things one step at a time.

Thank you all for your continued prayers and support it truly means the world to me right now.

Narrowly Unstoppable

01/08/2025

12/26/2024

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12/11/2024

12/10/2024

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11/18/2024

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