Medical Stories

01/29/2026

Kira’s journey with Alagille syndrome includes years of treatment, a liver transplant, and ongoing recovery, showing strength, perspective, and determination every step of the way.

Often beginning in infancy, Alagille syndrome is a rare genetic condition that impacts things like growth, nutrition, and overall health.

Follow us for more & check out Kira’s full story here: https://tinyurl.com/59xrnbek

01/27/2026

When she was just a baby, Kira was diagnosed with Alagille syndrome, a rare genetic condition that affects the liver and how the body processes bile.

Her whole life, she’s faced liver disease, clinical trials, a transplant, and major surgeries, yet continues to move forward with resilience and hope.

Follow us for more & watch Kira’s full story here: https://tinyurl.com/59xrnbek

01/25/2026

Today is International Alagille Syndrome Awareness Day. Share this post with someone to spread awareness about this condition.

Alagille syndrome is a rare genetic condition, affecting about 1 in 30,000 children, that most often impacts the liver but can affect many parts of the body. While there is no cure, advances in treatments and research are changing what the future looks like for individuals with the disease.

Meet Kira. Her journey is a reminder of the strength of this community and the hope that continues to grow through awareness, connection, and innovation.

Follow us to learn more about Kira and Alagille syndrome, and watch her journey here:

Alagille syndrome is a very rare genetic condition occurring in 1 in 30,000 children that are born. When doctors discovered Kira's serious liver issues, gene...

01/23/2026

Today, we recognize BPDCN Awareness Day! Share this post with someone you know to spread awareness about BPDCN.

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare and aggressive blood cancer that often first appears as skin lesions before affecting the blood, bone marrow, or lymph nodes. Because it can look like other conditions, diagnosis is often delayed, making awareness critical.

For Robert, it all started when he noticed a strange spot on his skin, which eventually led to a BPDCN diagnosis. But through treatment, a bone marrow transplant, and the support of his family, he continues to move forward with hope.

By sharing stories and supporting research, we can help improve understanding, diagnosis, and outcomes for those living with BPDCN.

Want to learn more? Watch Robert’s journey with BPDCN here: https://shorturl.at/mzkDh

01/22/2026

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare blood cancer, often first showing up on the skin

Robert’s diagnosis led to treatment, remission, and a life-saving bone marrow transplant, with his wife, Valerie, and his son, Ross, by his side every step of the way.

BPDCN Awareness Day is this Friday, January 23. Learn more about Robert’s diagnosis by following us & watching his full story here: https://shorturl.at/mzkDh

01/19/2026

When Robert first noticed something unusual on his skin, it started him on a journey that changed everything.

He was eventually diagnosed with blastic plasmacytoid dendritic cell neoplasm (BPDCN), a rare blood cancer. But through treatment, remission, and a life-saving bone marrow transplant, Robert found the strength to persevere, especially when his son, Ross, stepped up in the biggest way.

BPDCN Awareness Day is January 23, a day to raise awareness, share hope, and support those affected by this rare blood cancer.

Follow us for more & watch Robert’s full story here: https://shorturl.at/mzkDh

01/15/2026

Medical Stories follows Carson, a young boy living with neuroblastoma, a pediatric cancer that he was diagnosed with at age 2.

Despite the difficult side effects of his treatment, Carson’s story highlights his joy and resilience, and the strength of a family navigating childhood cancer together.

Follow us for more & watch Carson’s full story here: https://tinyurl.com/6xjz43em

01/13/2026

This is Carson. He lives with neuroblastoma, one of the most common childhood cancers. But what defines him most is his joy, energy, and spirit.

At just 2 years old, Carson received his diagnosis that led to chemotherapy and other treatments. In his story, his parents share how Carson has remained upbeat and positive, even while experiencing the side effects of treatment.

Follow us for more & check out Carson’s full story here: https://tinyurl.com/6xjz43em

01/09/2026

Medical Stories follows the experiences of Reid and Paley, two boys who were diagnosed at birth with XLMTM, a rare muscle disorder.

Despite their struggles, their mom, Marie, raised them both while building connections and offering support within the XLMTM community, helping other families feel less alone.

Follow us for more & watch Reid & Paley’s full story here: https://shorturl.at/jOxwl

01/05/2026

Marie has two sons, Reid and Paley, who were born with a rare muscle disorder called X-linked myotubular myopathy (XLMTM), affecting just 1 in 50,000 newborn males.

Marie shares how she raised two children with this rare condition through love, resilience, and advocacy, and how their journey has helped build connection and support within the XLMTM community.

Follow us for more & check out Reid & Paley’s full story here: https://shorturl.at/jOxwl

01/02/2026

Retired Wall Street businessman Gary was embracing the peaceful pace of retirement, enjoying walks and traveling with his wife.

But when he started experiencing unusual symptoms, like losing his sense of smell and cramping in his foot, he was diagnosed with Parkinson's disease, a progressive neurodegenerative disorder.

Despite the challenges of Parkinson’s, Gary stays dedicated to his health through regular exercise and a positive mindset. He finds strength in spending time with family and engaging in activities that bring him joy.

Learn more about how Gary is battling his condition by viewing his story here: https://tinyurl.com/fnvub538

01/01/2026

Wishing everyone a very happy and healthy New Year from the Medical Stories team.

Happy 2026!