CHES Foundation, Inc.

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Middleboro, MA
CHES Foundation, Inc.

CHES is currently owned and managed by Janet Brewer and Eric Lowe, both of whom live with chronic conditions, their own or those of family members.

CHES Foundation seeks to empower those affected by rare bleeding disorders through education, personalized support, and community connection, ensuring every person has the knowledge, resources, and advocacy they need to live confidently and thrive. CHES provides support for individuals with chronic medical conditions that allows them to assert their independence and the knowledge to more fully engage in their treatment. Over the years CHES has grown in scope and reach, attracting national and international attention for our unceasing work on behalf of our ever-widening community. With the important help of our funders, CHES offers those in need with a wide range of resources, including on-site patient programming, education, and the latest information on research and treatment. For info, please visit our website.

04/03/2026

🐌 𝗦𝗡𝗔𝗜𝗟 𝗠𝗔𝗜𝗟 📫

We opened our notes this week and came across debriefs from camp last year 🥺 It was a heavy feeling, one that we don't feel often. CHES Foundation has the privilege to make positive differences in the bleeding disorder community every year. But we can't help but feel negative about this one. 😑

Last year as a staff, we all wrote anonymous words of encouragement and praise that were delivered in the form of a makeshift mailbox. Going home with a dozen+ notes was a warm feeling and decided to read one a month when a positive pickup was needed. This past month, I found myself reaching for an extra one to make up for the loss of camp this year. It's a double negative, but we've never NOT done camp since 2010. ‼️

We reflect more on the impact of camp and the home it creates in this weeks edition of Digital Digest:
https://ches.education/newsblog/2026/bdnews4-3-openfordis-hemohana-lbcount

04/01/2026

Our team has already been overwhelmed with a tremendous amount of support following our camp announcement. We want to take a moment to thank those who have spearheaded movements to make sure Inhibitor Family Camp will return next year and beyond. The resilience of Inhibitor Moms stands out during this time, as uncertainty surrounds support from funders.

We sincerely thank those who are taking action to support and uplift us. 💜

03/26/2026

👏Nᴏɴ-ᴘʜᴀʀᴍᴀᴄᴇᴜᴛɪᴄᴀʟ ᴏᴘᴛɪᴏɴ ᴇᴍᴇʀɢɪɴɢ ꜰᴏʀ HMB🩸

NBDF's Pathway to Cures partner, Spark Biomedical’s and their LUNA clinical trial explores a non-drug, wearable device to reduce heavy menstrual bleeding. The technology uses gentle nerve stimulation to help the body form stronger blood clots—potentially cutting blood loss by about 50%.

Learn more about the trial here ➡ https://clinicaltrials.gov/study/NCT07326722?term=NA

This innovation could offer a safer, drug-free option for women with bleeding disorders and highlights growing investment in breakthrough, patient-centered treatments. Women affected by vWD are included in this study, giving hope for a relief option for HMB which is the most common and challenging aspect for women living with a chronic bleeding disorder.

03/25/2026

🏕️Iɴʜɪʙɪᴛᴏʀ Aʟᴇʀᴛ 😢

We are deeply disappointed to share that for the first time since 2009, CHES is unable to provide After the Shock Inhibitor Family Camp to the inhibitor community. This was a difficult and necessary decision based on insufficient funding.

We'll be able to offer an extra day of programming at InhibitCon in New Orleans in September. Please stay tuned to CHES Social Media channels (Instagram, Facebook and LinkedIn) as well as our Digital Digest to watch for applications to go live on June 10th! https://ches.education/inhibitcon

CHES remains dedicated to offering high quality education and connections to the Inhibitor Community. Should you have questions or are interested in helping with CHES’s fundraising efforts, please contact us at info@ches.education.

03/24/2026

Within our own community, we have some truly amazing individuals that we have had the privilege to serve and then join us in our efforts to achieve our mission goal. Shanthi is one of these shining individuals that we were able to connect with at our Ultra-Rare One Drop Conference and then become a family pal for us at Inhibitor Family Camp. This article has a STRONG message of what has happened since the current administration made sweeping cuts to the departments, research and endeavors that keep us safe in the blood disorder world.

Dive into this article that Shanthi was interviewed for at Brown School of Public Health https://ches.education/newsblog/shanheg-brownmph-blood-crisis

03/20/2026

🌼 We're exiting winter here in New England and couldn't be happier to say goodbye to all the record breaking snow. However, we are deeply saddened to announce that ATS Inhibitor Family Camp will not be taking place this year. This has been one of the hardest decisions we have had to make based on insufficient funding and support. InhibitCon will feature a camp element a day early, so we encourage our Inhibitor Families to join us in New Orleans in September 💜

📝 Read the full issue here: https://ches.education/newsblog/2026/bdnews319-firsttime17-iron-odrecap

Heather continues to remind us what the currency drives the bleeding disorder community and how maintaining that valuable resource holds us all up in this ocean of evolving situations. As always, there are notable articles shared in this edition about big iron (not on his hip) and an invigorating recap of One Drop a couple weeks ago written by Jennifer Lyne. We're T-minus a month out for LadyBugs and by golly are we full of excitement to meet a brand new loveliness(that's a group of LadyBugs if you didn't know) 🐞

03/19/2026

🩺 On this Certified Nurses Day, we celebrate those that make a massive difference in our lives and this community. For some, nurses are the reason we are alive and thriving while managing a chronic condition. While National Nurses Day is in May, we see no reason that we can't praise them more than once!

👩‍⚕️🧑‍⚕️If you know a nurse, see a nurse, are related to a nurse or love a nurse, make sure you let them know how much you appreciate them and everything they do to keep us healthy. In our community, we sing extra praise for the infusion nurses that make the late night, early morning, weekend and holiday call. Within our own CHES Team some of us may not be here without them.💜

03/17/2026

🦷✨ 𝗗𝗼𝗻'𝘁 𝗗𝗶𝘀𝗰𝗼𝘂𝗻𝘁 𝗗𝗲𝗻𝘁𝗮𝗹!

Join Karen Ridley, RDH, MSDH from the University of Michigan as she dives into a crucial but often overlooked topic: how to maintain safe and effective dental care for individuals living with bleeding disorders. https://youtu.be/dPASnCu5nKY ⬅️ Presentation starts at 8:00 to skip ahead.

In this insightful presentation, Karen breaks down why oral health is especially important for this community, the unique risks involved, and the practical precautions both patients and dental professionals should take. Whether you're a healthcare provider, caregiver, or someone navigating a bleeding disorder, this video offers valuable guidance to help you protect your smile with confidence.

🎥 Watch now to learn how small changes in dental care can make a big difference in overall health!

03/13/2026

👀 Our eyes are set on LadyBugs at the end of April but let's revisit last year's conference. Nelly Miranda takes us on a bilingual adventure by sharing her experiences at LadyBugs 2025 in Utah!

Read here ➡️ https://ches.education/lfh-blog/lb-ut2025uhf-engenespagnol

From meaningful connections to powerful education and unforgettable moments of joy, this mother–daughter duo shares their first-time experience at the CHES LadyBugs Women’s Retreat. Discover how community, advocacy, and a little fun in pajamas made this Salt Lake City weekend truly
empowering 🐞

03/11/2026

ℍ𝕖𝕞𝕠𝕡𝕙𝕚𝕝𝕚𝕒 𝕆𝕟𝕝𝕪 𝔸𝕗𝕗𝕖𝕔𝕥𝕤 𝕄𝕖𝕟 😑❌ ℙ𝕒𝕡𝕖𝕣 ℂ𝕦𝕥𝕤 𝕒𝕟𝕕 𝕄𝕠𝕣𝕥𝕒𝕝𝕚𝕥𝕪? ⛔️

🤨 It's an odd national day to recognize but today is Debunking Day. The myths and falsities we have all been asked or labeled with is definitely something we know in this community.

𝕀𝕥 𝔸𝕝𝕨𝕒𝕪𝕤 ℝ𝕦𝕟𝕤 𝕚𝕟 𝕥𝕙𝕖 𝔽𝕒𝕞𝕚𝕝𝕪 🧑‍🧑‍🧒‍🧒🙅ℂ𝕦𝕣𝕒𝕓𝕝𝕖 𝕨𝕚𝕥𝕙 𝕍𝕚𝕥𝕒𝕞𝕚𝕟𝕤 𝕠𝕣 𝔻𝕚𝕖𝕥 👎
𝕐𝕠𝕦 ℂ𝕒𝕟'𝕥 𝕃𝕚𝕧𝕖 𝕒 ℕ𝕠𝕣𝕞𝕒𝕝 𝕠𝕣 𝔸𝕔𝕥𝕚𝕧𝕖 𝕃𝕚𝕗𝕖 🚫

It was started to promote truth, clarity, and honesty by challenging commonly held myths and misinformation. Created by author and astrologer Rob Brezsny, this awareness day encourages people to investigate misinformation and "set the record straight" on misleading information. What is the wildest thing someone has ever asked or assumed about your bleeding disorder? 🙋‍♀️

Address

Middleboro, MA
02346

Telephone

+17818788561

Website

http://www.ches.education/

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Our Story

CHES provides support for individuals with chronic medical conditions that allows them to assert their independence and the knowledge to more fully engage in their treatment.

Over the years CHES has grown in scope and reach, attracting national and international attention for our unceasing work on behalf of our ever-widening community. With the important help of our funders, CHES offers those in need with a wide range of resources, including on-site patient programming, education, and the latest information on research and treatment.

CHES is currently owned and managed by Janet Brewer and Eric Lowe, both of whom live with chronic conditions, their own or those of family members. For info, please visit our website.