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CHES Foundation, Inc.

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Middleboro, MA
CHES Foundation, Inc.

CHES is currently owned and managed by Janet Brewer and Eric Lowe, both of whom live with chronic conditions, their own or those of family members.

CHES Foundation seeks to empower those affected by rare bleeding disorders through education, personalized support, and community connection, ensuring every person has the knowledge, resources, and advocacy they need to live confidently and thrive. CHES provides support for individuals with chronic medical conditions that allows them to assert their independence and the knowledge to more fully engage in their treatment. Over the years CHES has grown in scope and reach, attracting national and international attention for our unceasing work on behalf of our ever-widening community. With the important help of our funders, CHES offers those in need with a wide range of resources, including on-site patient programming, education, and the latest information on research and treatment. For info, please visit our website.

12/19/2025

🧠 Check Up From the Neck Up 💙 | Digital Digest

Our latest Digital Digest continues the conversation around mental health—especially important during the holidays, when stress, comparison, grief, and loss can surface. A simple check-in can open the door to meaningful connection and care for one another.

Read this Digital Digest and past editions here! ➡️ https://ches.education/news

Plus, a quick note from us: the CHES team is taking a well-deserved breather from Dec 22–Jan 5 to rest, reset, and recharge. We can’t wait to come back energized and excited for what’s ahead in 2026.

12/18/2025

We commend Hemab Therapeutics for their steadfast dedication to advancing science and developing therapies for those with underserved bleeding disorders like congenital Factor VII deficiency (FVIID).

CHES proudly supports all those affected by FVIID, with special considerations for women and girls. Since 2012, our Factor 7 Retreat, now part of the One Drop program along with the Glanzmann’s Thrombasthenia Symposia, has provided invaluable experiences for those with rare bleeding disorders.

In addition, we've worked with experts like Dr. Diane Nugent and ATHN under the direction of Dr. Tami Singleton to offer ATHN 10 genetic testing for better diagnoses and treatment access.

Together, we are committed to advancing care for this community. Let's continue making strides toward transforming outcomes for all affected!

To learn more about One Drop, visit: https://ches.education/one-drop

Save the dates for 2026:
🗓️ 𝗢𝗻𝗲 𝗗𝗿𝗼𝗽: Tampa, FL - February 27-March 1, 2026 (rescheduled from November 2025)
🗓️ 𝗢𝗻𝗲 𝗗𝗿𝗼𝗽 𝟮𝟬𝟮𝟲: Tampa, FL - November 6-8, 2026

12/17/2025

Holiday Health Tip #2: Follow the 80/20 Rule 🧠

Ever feel like your life is more 80/20 beef than filet mignon? 🍔 Well, you’re not alone! This holiday season, let’s embrace the beauty of imperfection with the 80/20 rule, a concept shared by CHES contributor Gary McClain, PhD in LifeLines for Health.

Read more from Dr. McClain: https://ches.education/lfh-blog/stressing-out-how-about-using-the-80/20-rule?rq=holiday

During the holidays, it’s easy to get caught up in the whirlwind of expectations and strive for perfection in everything we do. However, aiming for 100% can lead to unnecessary stress and disappointment. What if you lowered your expectations to, say, 80%? By lowering your expectations—for yourself, and others—you can focus on what truly matters. Prioritize your health, both physical and mental, and remember that sometimes a little mess can create more space for joy and less tension.

👩‍👦𝗣𝗮𝘁𝗶𝗲𝗻𝘁𝘀 & 𝗖𝗮𝗿𝗲𝗴𝗶𝘃𝗲𝗿𝘀: How do you incorporate the 80/20 rule into your daily life, especially during the holiday season? Whether it's balancing caregiving responsibilities or handling the physical and emotional burden of living with a bleeding disorder, we’d love to hear your experiences 💬
🏥𝗛𝗲𝗮𝗹𝘁𝗵𝗰𝗮𝗿𝗲 𝗣𝗿𝗼𝗳𝗲𝘀𝘀𝗶𝗼𝗻𝗮𝗹𝘀: How can you support your patients in embracing the 80/20 rule this holiday season? Consider sharing practical tips and resources (like Dr. McClain’s blog, linked below) that encourage them to prioritize what truly matters while being gentle with themselves.

By aiming for balance rather than perfection, you can enjoy the season more fully. Let’s give ourselves the gift of balance and remind ourselves that it’s okay to let things be a little less than perfect 🎯

12/15/2025

Happy Hanukkah from CHES! 🕎✨

As we light the menorah and celebrate the Festival of Lights, we extend our warmest wishes to everyone in our community. May this Hanukkah bring joy, peace, and blessings to you and your loved ones.

Let's cherish the miracle of each night, creating lasting memories filled with laughter, love, and light. What are your favorite Hanukkah traditions? Share with us in the comments below! 🕯️💙

12/11/2025

We're thrilled to announce our 2026 in-person events, continuing our mission to provide meaningful and instructive education for the ultra-rare bleeding disorder community. Mark your calendars and join us for these incredible opportunities to connect, learn, and grow together:

🗓️ 𝗢𝗻𝗲 𝗗𝗿𝗼𝗽: Tampa, FL - February 27-March 1, 2026 (rescheduled from November 2025)
🗓️ 𝗟𝗮𝗱𝘆𝗕𝘂𝗴𝘀 𝗡𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗪𝗼𝗺𝗲𝗻'𝘀 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲: Colonial Williamsburg, VA - April 24-26, 2026, in partnership with the Virginia Hemophilia Foundation
🗓️ 𝗔𝗳𝘁𝗲𝗿 𝘁𝗵𝗲 𝗦𝗵𝗼𝗰𝗸 𝗜𝗻𝗵𝗶𝗯𝗶𝘁𝗼𝗿 𝗙𝗮𝗺𝗶𝗹𝘆 𝗖𝗮𝗺𝗽: Camp Zeke - June 19-22, 2026
🗓️ 𝗜𝗻𝗵𝗶𝗯𝗶𝘁𝗖𝗼𝗻: New Orleans, LA - September 10-13, 2026 (First day is Leverage in partnership with GutMonkey)
🗓️ 𝗢𝗻𝗲 𝗗𝗿𝗼𝗽 𝟮𝟬𝟮𝟲: Tampa, FL - November 6-8, 2026

As always, CHES is grateful to our funders and community for the support! Please continue to spread the word about CHES. We welcome new individuals and families and remain true to our 3 pillars: Women, Ultra-Rares, and the Inhibitor Community 💪❤️

Stay tuned for more updates on our 2026 events!

12/10/2025

Holiday Health Tip #1: Find Your Glue Crew 🤝

You may be thinking to yourself, "what's a Glue Crew? 🤔” We're so glad you asked!

As Heather explained in the recent Digital Digest, your Glue Crew is your backbone of support during challenging times. They're the volunteers ensuring CHES events run smoothly, friends bringing activities for your child when a sibling is in the hospital, or those organizing meal trains for community members recovering from surgery. The details of your Glue Crew aren’t as important as the showing up for each other.

👨‍👧𝗣𝗮𝘁𝗶𝗲𝗻𝘁𝘀 & 𝗖𝗮𝗿𝗲𝗴𝗶𝘃𝗲𝗿𝘀: Who could you include in your Glue Crew if you don't have one yet? And if you already have one, how can you make the most of their support?
🩺𝗛𝗲𝗮𝗹𝘁𝗵𝗰𝗮𝗿𝗲 𝗣𝗿𝗼𝗳𝗲𝘀𝘀𝗶𝗼𝗻𝗮𝗹𝘀: Ask your patients how they are carrying the load this holiday season, and remind them that help is available. We at CHES are always here to offer guidance, support, and resources, no matter the time of year.

We'd love to hear your stories and celebrate the amazing people who make up your Glue Crew. Share your experiences in the comments and let's spread the love and appreciation throughout the CHES community! ❤️✨

12/05/2025

We're closing in on the last Digital Digest of the year! But don't worry, it will start right back up in January! 🎉 This weeks edition explores just exactly what a Glue Crew is and how important they are to our annual events. Giving Tuesday happened already but donations can be made anytime, year round. While we're primarily supported by educational and charitable grants, your contributions continue to aid in keeping travel funds fully supported so that families will always be able to attend at no cost.

Gobble 🦃 down this Digital Digest and more here! ➡️ https://ches.education/newsblog/2025/bdnews12-5-gluecrew-gtues-std26

Save the Dates are HERE! Postcards and more eBlasts will go out but check out a preview of CHES in 2026 in this edition! Tag a friend or family member below to let them know to check out next years event dates!

12/03/2025

CHES Friends and Followers, today is the day! It’s GivingTuesday! We know you are likely bombarded with requests for money on this day. We too would love your donation which can be monetary, sharing this post, or a note of appreciation to someone in the community who has made a difference to you this year! We’ll start.

CHES is truly grateful to each child, teen, adult, family, nurse, educator, donor, Subject Matter Expert, board member, and amplifier for creating such a successful and rich year of educational events at CHES! We look forward to seeing each and every one of you in 2026! Thank you from the bottom of our hearts for all the support!

https://ches.education/donation-page ⬅️

Mention someone below that has supported you in this community this year that you may have met at our events, recently or years past! 💜

12/02/2025

CHES Friends & Followers: Tomorrow is GivingTuesday, a day to come together and make a difference!

We understand there are many voices asking for your support, and we truly appreciate any contribution you can make to help us continue our mission. Whether it's a financial donation, sharing this post, or simply sending a heartfelt message to someone in the community who has touched your life, every gesture counts.

We are so thankful for you—our vibrant community of children, teens, adults, families, nurses, educators, donors, Subject Matter Experts, board members, and supporters who have made this year so impactful. Your dedication and enthusiasm have fueled a year of outstanding educational events, and we can't wait to create even more memories with you in 2026!

Please consider making a tax-deductible donation at a level that feels right for you: https://ches.education/donation-page

Your support means the world to us, and our work wouldn’t be possible without each and every one of you. Thank you! 💜 Tag someone below in our community and tell them that they made a difference in your life this year!

11/30/2025

In honor of National Family Caregivers Month, we at CHES want to spotlight the incredible strength and resilience of caregivers like Elizabeth, who navigates the challenges of raising a child with a rare bleeding disorder. Elizabeth’s journey with her son Alex, who developed inhibitors after being diagnosed with severe hemophilia B, has been one of determination and courage.

𝗘𝗹𝗶𝘇𝗮𝗯𝗲𝘁𝗵’𝘀 𝗦𝘁𝗼𝗿𝘆:
As a mother of a newly diagnosed baby, Elizabeth felt an overwhelming sense of helplessness and fear. The unknowns of hemophilia and the diagnosis of an inhibitor were daunting. However, attending CHES’ After the Shock inhibitor family camp became a turning point. It provided a welcoming space where Elizabeth’s family could connect with others who understood their challenges, offering support education.

Elizabeth’s experience highlights the vital role of community and support. Families like hers find hope and strength through shared experiences, knowing they are not alone. As Elizabeth passionately states, “I will be my son’s voice; I will learn to advocate for him.”

Join us this month in celebrating caregivers by acknowledging their impact and dedication. Share your own stories or tag a caregiver who inspires you! 💪❤️

11/28/2025

As we wrap up our Thankful Thursday series, we want to take a moment to express our deepest gratitude to YOU—our incredible community! 💜Today and everyday, we celebrate the connections and resilience that make our community truly remarkable, all of which wouldn’t be possible without you.

As we gather with family and friends, let's celebrate the connections that bind us together and the strength that propels us forward. We are thankful for the advancements in treatment, the inspiring stories of perseverance, and the wonderful individuals who make CHES so special.

Wishing you all a very Happy Thanksgiving! 🍂🦃

Address

Middleboro, MA
02346

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+17818788561

Website

http://www.ches.education/

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Our Story

CHES provides support for individuals with chronic medical conditions that allows them to assert their independence and the knowledge to more fully engage in their treatment.

Over the years CHES has grown in scope and reach, attracting national and international attention for our unceasing work on behalf of our ever-widening community. With the important help of our funders, CHES offers those in need with a wide range of resources, including on-site patient programming, education, and the latest information on research and treatment.

CHES is currently owned and managed by Janet Brewer and Eric Lowe, both of whom live with chronic conditions, their own or those of family members. For info, please visit our website.