CHES Foundation, Inc.

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Middleboro, MA
CHES Foundation, Inc.

CHES is currently owned and managed by Janet Brewer and Eric Lowe, both of whom live with chronic conditions, their own or those of family members.

CHES Foundation seeks to empower those affected by rare bleeding disorders through education, personalized support, and community connection, ensuring every person has the knowledge, resources, and advocacy they need to live confidently and thrive. CHES provides support for individuals with chronic medical conditions that allows them to assert their independence and the knowledge to more fully eng

age in their treatment. Over the years CHES has grown in scope and reach, attracting national and international attention for our unceasing work on behalf of our ever-widening community. With the important help of our funders, CHES offers those in need with a wide range of resources, including on-site patient programming, education, and the latest information on research and treatment. For info, please visit our website.

04/30/2026

The impact of this weekend is felt in ways we never knew were possible. Post-event we take your feedback and implement it for next year's event. It hits us right in the feels when we dive into what folks communicated in their evaluation of the weekend. Thank you to whomever wrote this, it's meant to be anonymous and always will be, but truly the love is felt here by our team 🐞💜

04/28/2026

𝖩𝖮𝖨𝖭 𝖴𝖲! 📣 𝖵𝖶𝖣 𝖮𝖭𝖫𝖸 𝖶𝖤𝖡𝖨𝖭𝖠𝖱

If you or someone you love has Von Willebrand Disease, there's something new on the horizon. A company called Hemab Therapeutics is studying a medicine called HMB-002 🧬 a simple shot given under the skin that's designed to help your body hold onto more of the von willebrand factor it needs.

https://ches.education/vwd-610-webinar ⬅ Sign-Up to Attend Here!

Join CHES Foundation, Girls Bleed Too, Tara O'Meara and Henry Mead from Hemab Therapeutics as they explain how HMB-002 works, what the VELORA studies involve, and how you or a family member might be able to take part.

For the first 20 attendees registering that have vWD, one $25 Amazon gift card will be provided per household to the email address used for registration, provided the participant remains on camera during the session.

04/27/2026

Wowee! What a weekend with an amazing group of STRONG women that represent all bleeding disorders in this community. It always goes by too fast in a blur but leaves the heart full nonetheless.

Thank you to Takeda, our Gold Sponsor for LadyBugs. Without them we could not make this conference available at a national level to all women. We look forward to their support for the next LadyBugs in 2027!

04/24/2026

Iꜱ ᴄʟᴏꜱᴜʀᴇ ᴡᴏʀᴛʜ ɪᴛ? 🚪

Getting “closure” in a relationship matters, but probably not in the way people often think. Most people treat closure like something the other person gives you—a final conversation where everything makes sense, loose ends are tied up, and you walk away feeling resolved.

Read Gary's article in the latest edition of LFH 📰 https://ches.education/lfh-blog/2026/4/23/pursuing-closure-lfh

In reality, that kind of clean ending is rare. If you depend on someone else to give you closure, you can end up stuck waiting.

04/23/2026

🐞 𝕃𝕒𝕕𝕪𝔹𝕦𝕘𝕤 𝕚𝕟 𝕋𝕎𝕆 𝔻𝔸𝕐𝕊! ‼️

The CHES Ladies are boots on the ground in Virginia! We left the boys on the team home because they have cooties and this is a women's ONLY event!

We have been made to feel so welcome by Virginia Bleeding Disorders Foundation VABDF in their home state and know that everyone coming will love the Williamsburg location. Check out the agenda for the weekend here: https://ches.education/ladybugs/agenda-2026

The hype is ramping up! We'll see all the ladies on Friday!

04/18/2026

📝 𝘿𝙞𝙜𝙞𝙩𝙖𝙡 𝘿𝙞𝙜𝙚𝙨𝙩 𝙩𝙞𝙢𝙚❗

In this edition we're celebrating World Hemophilia day! Accurate diagnosis is essential for people with bleeding disorders, but many worldwide still face barriers that delay or prevent proper identification—especially those with rare conditions and women and girls ♀. The global community is urged to strengthen diagnostic capabilities. Without diagnosis there can be no treatment or progress.

Read more about WHD and other curated articles this week here ➡ https://ches.education/newsblog/2026/bdnews4-16-worldhemoday-pmerger-bsafety

04/17/2026

Today, the global community unites for World Hemophilia Day to raise awareness for inherited bleeding disorders. This year’s theme, “Diagnosis: First Step to Care,” emphasizes that getting diagnosed is the gateway to treatment.

According to the World Federation of Hemophilia, over 75% of people with hemophilia worldwide remain undiagnosed—leaving hundreds of thousands without basic care. By improving healthcare training, strengthening labs, and increasing diagnosis rates, we can move closer to a future of Treatment for All.

04/14/2026

𝗦𝘁𝗶𝗹𝗹 𝘁𝗮𝗰𝗸𝗹𝗶𝗻𝗴 𝗮 𝗻𝗲𝘄 𝘆𝗲𝗮𝗿 𝗿𝗲𝘀𝗲𝘁? 🎉

Winter weight gain isn’t just about holiday treats—it’s often driven by emotional eating. Megan Allen is back in the latest edition of LFH to breakdown the mind-eating connection. 🧠🥗

Read the full article here ➡ https://ches.education/lfh-blog/2025-23-lfhwinter-mallen-true-hunger

When days get shorter, it’s easy to turn to food for comfort. The key is learning the difference:
• True hunger builds slowly and can be satisfied by many foods
• Emotional hunger hits suddenly, feels urgent, and craves something specific
Before reaching for food, pause and ask:
👉 Am I physically hungry?
👉 What am I feeling?

Sometimes what you really need isn’t food—it’s rest, connection, or stress relief.
Emotional eating isn’t the enemy—it’s a signal. Listen to it, get curious, and respond with what your body and mind truly need.

04/10/2026

👜 𝘊𝘈𝘙𝘙𝘐𝘌𝘙𝘚 𝘋𝘖 𝘊𝘖𝘜𝘕𝘛! 📣

Most bleeding disorders (like hemophilia) are mistakenly believed to only exist in males, which leave many female patients without a proper diagnosis and care. The repercussions can be horrific, leading to feelings of isolation and grief, significant bone/joint damage, chronic pain, and a wide variety of menstrual issues.

🐞 Watch Dr. Davis's presentation from Ladybugs 2023 ➡ https://youtu.be/E-qbg1FBtRY

Dr. Joanna Davis, Hematologist/Oncologist at the University of Miami and creator of the Pediatric Hemophilia Treatment Center at UM in '87, addresses sexism in the diagnosis and treatment of both, (1) women with hemophilia and (2) women carriers of hemophilia. Dr. Davis breaks down the components of hemophilia from the science behind the clotting cascade and what goes wrong, to inheritance and mutation, proper diagnosis, treatment, and the special attention that women need - specifically for heavy menstrual bleeding, pregnancy, and more.

04/03/2026

🐌 𝗦𝗡𝗔𝗜𝗟 𝗠𝗔𝗜𝗟 📫

We opened our notes this week and came across debriefs from camp last year 🥺 It was a heavy feeling, one that we don't feel often. CHES Foundation has the privilege to make positive differences in the bleeding disorder community every year. But we can't help but feel negative about this one. 😑

Last year as a staff, we all wrote anonymous words of encouragement and praise that were delivered in the form of a makeshift mailbox. Going home with a dozen+ notes was a warm feeling and decided to read one a month when a positive pickup was needed. This past month, I found myself reaching for an extra one to make up for the loss of camp this year. It's a double negative, but we've never NOT done camp since 2010. ‼️

We reflect more on the impact of camp and the home it creates in this weeks edition of Digital Digest:
https://ches.education/newsblog/2026/bdnews4-3-openfordis-hemohana-lbcount

04/01/2026

Our team has already been overwhelmed with a tremendous amount of support following our camp announcement. We want to take a moment to thank those who have spearheaded movements to make sure Inhibitor Family Camp will return next year and beyond. The resilience of Inhibitor Moms stands out during this time, as uncertainty surrounds support from funders.

We sincerely thank those who are taking action to support and uplift us. 💜

Address

Middleboro, MA
02346

Telephone

+17818788561

Website

http://www.ches.education/

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Our Story

CHES provides support for individuals with chronic medical conditions that allows them to assert their independence and the knowledge to more fully engage in their treatment.

Over the years CHES has grown in scope and reach, attracting national and international attention for our unceasing work on behalf of our ever-widening community. With the important help of our funders, CHES offers those in need with a wide range of resources, including on-site patient programming, education, and the latest information on research and treatment.

CHES is currently owned and managed by Janet Brewer and Eric Lowe, both of whom live with chronic conditions, their own or those of family members. For info, please visit our website.