Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

03/11/2026

Watch as we go over some FAQs about RSDSA's 7th Annual Walk for CRPS on Saturday, June 6, 2026! Register now at https://secure.qgiv.com/event/walkforcrps

Find the walk closest to you here: https://linktr.ee/rsdsa

03/09/2026

Rare New England’s Rare Connections Patient & Caregiver Support Group is hosting a free meeting on Friday, March 20, 2026 at 6PM Eastern focused on “Navigating Mental, Behavioral & Medical Systems for Children with Disabilities & Rare Conditions: https://bit.ly/4bgclKg

It will be led by Beth Bergstrom who is not only a mother of children with disabilities, but an Assistant Program Manager at Parent/Professional Advocacy League.

We're sharing this as a potential resource for parents who have a child/children with . 🧡

03/06/2026

Missed our livestream with Dr. Norman Harden? Check out the below clip and be sure to watch the full video over on our YouTube Channel: https://youtube.com/live/nb-lcDvkP7Y

03/05/2026

Last call: Register for next week's free webinars now! ↓

03/04/2026

"Every part of the weekend—from the conversations to the activities to just being in a space where I didn’t have to explain myself—was truly positive and healing. I left with new friends, fresh perspective, and most importantly, a renewed sense of hope and belonging." – YAWR Nashville Attendee

Our Young Adult Weekend Retreat: Scottsdale is June 26-29 in Scottsdale, AZ. This weekend is for young adults with Between 18-35. Come meet others who fully understand.

Don't forget that two scholarships to cover registration are available via this application through Tuesday, March 31, 2026: https://bit.ly/40PtZPT

Young Adult Weekend Retreat: Scottsdale

03/03/2026

“Navigating an invisible illness with physicians calling your son a liar was unbelievably difficult during the first months of CRPS and it hurt our whole family.”

Today on the RSDSA blog we hear from Natalie Mosley Klenotic, a mom, author, and caregiver for her son, Gage. Gage developed at 11 years old: https://bit.ly/4078Bpg

02/28/2026

When you have a rare disease, you face two battles:
💛 The disease itself
💛 And living in a world where so few understand

Today, on Rare Disease Day, we stand with every individual and family navigating life with CRPS and other rare conditions. You are seen. You are heard. You are not alone.

02/28/2026

Today is ! 🦓🧡

1 in 10 Americans—our friends, neighbors, coworkers, classmates, and loved ones—lives with a rare disease.

Follow us, the National Organization for Rare Disorders, NORD, to support them this . Learn more at rarediseaseday.us.

02/27/2026

Last year, Warrior Leslie Jordan wrote for the RSDSA blog and discussed her journey as well as a scholarship for a self-guided course that significantly helped her. She is once again offering a scholarship for this course! Learn more ↓

Read as Leslie Rowe discusses what helped her find relief, a scholarship she is funding for a self-guided course, and encouragement for all CRPS Warriors.

02/27/2026

Dr. Norman Harden joined us to discuss CRPS research, subtypes, and how we're working with professionals across the globe via the International Research Consortium for CRPS.

02/26/2026

Fight the Flame is hosting the 2026 Fight the Flame Conference on Saturday, March 21 in Charlotte, North Carolina. Registration is open!

Join patients, caregivers, and experts for a day of knowledge, healing, and connection.

*Please direct all conference questions to Fight The Flame.*

🔥 2026 Fight the Flame® CRPS Conference
Join us for a day dedicated to education, support, and hope for the CRPS community.
This in-person conference brings together individuals living with CRPS, caregivers, advocates, and healthcare professionals for meaningful learning and connection.
📅 March 21, 2026
📍 Charlotte, NC
🔗 Register here:
https://www.ticketsignup.io/TicketEvent/FighttheFlameConference
💛 Come as you are. Participate as you’re able.