ALS Worldwide

Nonprofit that helps people live better and longer with ALS by providing FREE assistance to all. WHAT IS ALS? So, amyotrophic means “no muscle nourishment”.

The name amyotrophic lateral sclerosis is Greek in origin. “A” means "no" or "negative," “myo” translates to “muscle”, and “trophic” refers to “nourishment”. "Lateral" refers to the places in a person's spinal cord where portions of nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening ("sclerosis") in the region. In the United States and many other countries, Amyotrophic Lateral Sclerosis (ALS) is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND). In many Spanish speaking countries it is called Esclerosis Lateral Amiotrófica (ELA). This disease weakens and kills nerve cells that control voluntary muscle movement. Individuals are robbed of their ability to move, speak, eat and breathe, but it often leaves the mind intact. Death can occur within 2-5 years of diagnosis, but some individuals have survived for 10 or more years. Some symptoms can be managed and certain treatments can help extend life. However, there is currently no known cure or fully effective treatment for the underlying causes of ALS. WHO SUFFERS FROM THIS DISEASE? ALS is not contagious and doesn't discriminate. This disease can strike anyone, regardless of age, gender, race, ethnicity, or socioeconomic status. Every 90 minutes ALS claims another life. Every time someone dies, another person is diagnosed with ALS. HOW YOU CAN GET FREE SUPPORT
Visit alsworldwide.org/get-help to learn more and to find out how to receive FREE guidance and support via videoconference, email, and phone. HOW YOU CAN HELP OTHERS
ALS is not an incurable disease, it's just severely underfunded. Make a tax-deductible contribution at www.alsworldwide.org/donate. Like our page at www.facebook.com/ALSWorldwide and like and share our posts to spread awareness about ALS/MND/ELA and give help and hope to people living with ALS around the world.

12/28/2025

🌟 Keith’s Journey with ALS: A Message of Hope & Positivity 🌟

At ALS Worldwide, we’re honored to share powerful stories from individuals living with ALS — stories that inspire, educate, and connect us all.

🧡 Meet Keith Johnson from Louisiana — diagnosed with ALS in November 2012, Keith’s courage, resilience, and determination shine through. Rather than focusing on limitations, he embraced education and research to improve his quality of life and encourages others to do the same.

💬 Keith shares: “My best advice in this fight … is to always stay positive and do not focus on the negative. Use common sense and avail yourself of treatments that are based on sound science and can improve your quality of life.”

His message reminds us that positivity, knowledge, and community support play a powerful role in navigating life with ALS.

➡️ Read Keith’s full story and be inspired: https://alsworldwide.org/family-story/a-personal-experience-from-keith-johnson-of-louisiana/

12/26/2025

🏥 Emergency Room Card
✨ In moments of urgency, being prepared can make all the difference. That’s why we created a personal information and emergency room card — a simple resource that ensures an ALS patient's details are ready when they're needed most. 💙 It’s one more way we can help people with ALS be safe and supported. Download your card today 👉 https://alsworldwide.org/resource/your-personal-information-and-emergency-room-card/

12/22/2025

📖 Share Your Story
🌟 Stories have the power to connect us, inspire us, and remind us that we are never alone. We invite you to share your journey with ALS — your challenges, your triumphs, and your moments of courage. 💙 By telling your story, you help others feel seen, supported, and uplifted. Together, we create a community of strength and compassion. Share your story with us 👉 https://alsworldwide.org/share-your-story/

12/20/2025

💙 This Year - Help Provide Free ALS Support
🌍 Every day, families around the world turn to us for guidance, counseling, and resources — all provided free of charge. Your generosity makes this possible. 🙌 When you donate to ALS Worldwide, you’re not just giving money; you’re giving hope, dignity, and strength to people who need it most. Together, we can continue to make a difference in thousands of lives. 💙 Join us in this mission 👉 https://alsworldwide.org/donate/

12/18/2025

🫂 Counseling
✨ We believe that emotional support is just as important as medical care. That’s why we offer free counseling to individuals and families living with ALS. Through listening, understanding, and compassion, we help people find strength and hope in the midst of challenges. 💙 Whether you’re newly diagnosed or have been navigating ALS for years, we’re here to walk beside you. Explore our counseling services 👉 https://alsworldwide.org/counseling/

12/16/2025

🌍 About Us
💙 We are ALS Worldwide, and for over 20 years we’ve been dedicated to providing free support, guidance, and care to families living with ALS across the globe. Our mission is rooted in compassion and connection — because no one should face this journey alone. 🌟 Learn more about who we are, what drives us, and how we stand alongside families every day: 👉 https://alsworldwide.org/about-us/

12/13/2025

"Indestructible, Ben's legacy film, was birthed during those early years. Ben, seated at his desk, pressed keys on his computer with his toes, editing his email posts and splicing segments of his film." — Barbara Byer, ALS Worldwide Founder.

To read a mother’s story of life before, during, and after her adult child’s ALS diagnosis, order your copy of Shatterproof: A Mother’s Memoir of Love and Loss.

Oder your copy in paperback 📖 or ebook 📱here: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

🫂

12/10/2025

"Do not hesitate to ask for help or accept it when it's offered. ... [I am cared for by] my wife, but also my two sons, my sister-in-law, my sister-in-law, and my daytime nanny. I also have the love and support of many friends that have been incredibly helpful. ... To the best of your ability, try to stay positive and do the best you can." — Matt Chaney, California

📘 Get reliable information on ALS treatments and therapies — and inspiration from patients' stories — in Pathways Through the ALS Storm, available in paperback or ebook 👉 https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

💙 🧪 📖

12/02/2025

💙 Today is Giving Tuesday — a day to turn compassion into action.

When our son Ben was diagnosed with ALS at 31, our world changed forever. We dedicated our lives to finding effective treatments and sharing what we learned with others — because every bit of knowledge, every story, every moment of relief matters.

Too many people still leave their doctor’s office without hope. You can change that.

✨ Today, for every $100 donation, we’ll send doctors free copies of Pathways Through the ALS Storm so they can share accurate, life-changing information with ALS patients and families — along with Shatterproof: A Mother’s Memoir of Love and Loss, written about my journey as Ben’s mother.

Your generosity today will bring understanding, comfort, and hope to families facing ALS — and we’ll continue this effort throughout December.

Together, we bring strength. From that strength comes hope. 💫

👉 Give hope this Giving Tuesday: https://alsworldwide.org/donate/

11/30/2025

💙 Every day is a gift — and we’re honored to share this story of courage with you.

Meet Sandy — who after being diagnosed with ALS, didn’t let go of her faith, her humor, or her hope. She still wakes each morning saying: “I’m living while I’m living.” 💫

Read how Sandy cherishes every moment and how, with the love of family & friends, she continues to fight.
👉 https://alsworldwide.org/family-story/sandy-cherishes-each-day/

11/28/2025

💙 This Giving Tuesday, give hope that lasts.

When our son Ben was diagnosed with ALS at 31, we dedicated our lives to finding effective treatments and sharing what we learned with others. Every conversation, every story, every bit of relief mattered. 💙

Too many people still leave the doctor’s office without hope — and you can change that.

✨ This Giving Tuesday, for every $100 gift, we’ll send doctors free copies of Pathways Through the ALS Storm so they can share accurate, life-changing information with patients and families — along with Shatterproof: A Mother’s Memoir of Love and Loss, about my experience coping with ALS as Ben’s mother. We’ll continue this offer throughout December.

Together, we bring strength. From that strength comes hope. 💫

👉 Give today: https://alsworldwide.org/donate/

11/24/2025

Your voice matters. Your journey matters. 📣 We’re collecting stories of hope, resilience and connection—all so others on the ALS path know they’re not alone. Share yours today: https://alsworldwide.org/share-your-story/

Address

1800 Prospect Avenue, Suite 4B
Milwaukee, WI
53202

Telephone

+16086985700

Website

http://www.alsworldwide.org/

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