ALS Worldwide

Nonprofit that helps people live better and longer with ALS by providing FREE assistance to all. WHAT IS ALS? So, amyotrophic means “no muscle nourishment”.

The name amyotrophic lateral sclerosis is Greek in origin. “A” means "no" or "negative," “myo” translates to “muscle”, and “trophic” refers to “nourishment”. "Lateral" refers to the places in a person's spinal cord where portions of nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening ("sclerosis") in the region. In the United States and many other countries, Amyotrophic Lateral Sclerosis (ALS) is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND). In many Spanish speaking countries it is called Esclerosis Lateral Amiotrófica (ELA). This disease weakens and kills nerve cells that control voluntary muscle movement. Individuals are robbed of their ability to move, speak, eat and breathe, but it often leaves the mind intact. Death can occur within 2-5 years of diagnosis, but some individuals have survived for 10 or more years. Some symptoms can be managed and certain treatments can help extend life. However, there is currently no known cure or fully effective treatment for the underlying causes of ALS. WHO SUFFERS FROM THIS DISEASE? ALS is not contagious and doesn't discriminate. This disease can strike anyone, regardless of age, gender, race, ethnicity, or socioeconomic status. Every 90 minutes ALS claims another life. Every time someone dies, another person is diagnosed with ALS. HOW YOU CAN GET FREE SUPPORT
Visit alsworldwide.org/get-help to learn more and to find out how to receive FREE guidance and support via videoconference, email, and phone. HOW YOU CAN HELP OTHERS
ALS is not an incurable disease, it's just severely underfunded. Make a tax-deductible contribution at www.alsworldwide.org/donate. Like our page at www.facebook.com/ALSWorldwide and like and share our posts to spread awareness about ALS/MND/ELA and give help and hope to people living with ALS around the world.

03/17/2026

Living with ALS can bring emotional challenges for both individuals and families. No one should have to carry that weight alone. 💙

At ALS Worldwide, we offer compassionate counseling support to help people living with ALS and their loved ones navigate the emotional side of the journey. Whether it’s processing difficult news, coping with change, or simply having someone who understands to talk to, we are here to listen and help. 🤝

Our goal is to ensure that people facing ALS have access to care that supports not just physical needs, but emotional well-being too.

Learn more about the counseling support we provide:
https://alsworldwide.org/counseling/

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03/14/2026

Behind every person living with ALS is a community that cares deeply. 💙

At ALS Worldwide, we believe no one should face ALS alone. Our mission is to stand beside people living with ALS and their families with compassion, guidance, and meaningful support every step of the way.

We work to ensure individuals and families have access to trusted information, personalized assistance, and a global community that understands the challenges of ALS. Together, we are building a network of care, dignity, and hope for people around the world. 🌍

Learn more about who we are and what we do:
https://alsworldwide.org/about-us/

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03/12/2026

Chris Baxter's story shares a powerful reminder of how meaningful connections can bring comfort, strength, and hope to people living with ALS and the people who care about them. Stories like this help us see the courage, kindness, and humanity within the ALS community.

Take a moment to read and reflect. You may be inspired in ways you didn’t expect. 💫

🔗 Read the story: https://alsworldwide.org/family-story/a-best-friends-wish/

We're honored to provide personalized guidance and support to people living with ALS and their loved ones around the world.

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03/10/2026

"Most primary care physicians will only see one person with ALS in their working lifetime, and general neurologists see perhaps one or two affected people per year, so staff in specialist clinics, sometimes seeing hundreds of patients per year, have a level of experience and knowledge not available elsewhere. Proper multidisciplinary care, combining hospital, hospice and community teams, working with the affected person and their family, and with close involvement from patient organizations, allows a truly holistic approach.

"ALS is a condition in which the situation can change so fast that as someone adapts to one set of circumstances, another arises, making easy access to expert advice and resources essential. Specialist clinics can also combine care with research, so we can tackle ALS from every direction, not only providing high quality care in the present, but also developing new treatments for the future."

— Ammar Al-Chalabi, Ph.D., Professor of Neurology and Complex Disease Genetics at King's College London

To learn more about ALS care and specialist clinics, download our free e-book, "A Paradigm Shift in ALS / MND Clinic Care" at: https://alsworldwide.org/resource/a-paradigm-shift-in-als-mnd-clinic-care/

02/28/2026

🙏 Your generosity fuels compassion.
Every donation to ALS Worldwide helps provide personalized guidance, care, and hope to families facing ALS—at no cost to them.
💙 Give today, and make a difference.
https://alsworldwide.org/donate/

02/27/2026

🦋AI is transforming ALS research and care by accelerating drug discovery, improving diagnostic accuracy and restoring communication for patients through brain-computer interfaces. Current projects include:

👀A wearable headset combining augmented reality and brain-computer interface

💊Drug research using "digital twins” as virtual placebos, for efficient treatment assessment

🗃A massive collaboration using AI to find new therapeutic targets via the ALS data repository

There is so much more! Read about it in our news article: https://alsworldwide.org/news/ai-is-transforming-als-research-and-care/

02/26/2026

🌍 A Paradigm Shift in ALS/MND Care is Here 🧠✨
Discover how clinics around the world are transforming the patient experience for those living with ALS/MND. 💬👩‍⚕️👨‍⚕️ Personalized, holistic care is changing lives — and it’s just the beginning.

🔗 Read more: https://alsworldwide.org/resource/a-paradigm-shift-in-als-mnd-clinic-care/

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02/25/2026

🌈"Even though I can’t do the same things I’ve always done, I can re-channel my energy into other things that will bring me joy and satisfaction. It's ok to feel and accept all my emotions, even the negative ones. I now realize I still have things ALS can’t steal from me. I still have eyes to see the beautiful world around me, a mind that can envision alternative solutions to do everyday tasks, a circle of wonderful family and friends surrounding me with love." - Kris Cady

📖Read more stories from people dealing with ALS on our website: https://alsworldwide.org/family-story/joy-satisfaction-making-peace/

02/23/2026

💬 Living with ALS? You don't have to face it alone.

ALS Worldwide offers free, compassionate counseling for individuals with ALS, caregivers, and families — no matter where you are in the world. 🌍❤️

🧠 Emotional support
👥 Family guidance
📞 One-on-one sessions

Get the support you deserve 👉 https://alsworldwide.org/counseling/

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02/21/2026

💪🆘ALS/MND patients often experience symptoms such as rigidity (excessive stiffness), spasticity (exaggerated stretch reflex), hyperreflexia (overactive, exaggerated reflexes), and clonus (extended spasticity, mainly in ankle, kneecap, biceps, and triceps). 💊Anti-spasmodic medications tizanidine, baclofen, and quinine sulfate can help to alleviate these symptoms. Learn more about these medications in Pathways Through the ALS Storm, available in spiral-bound or e-book: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

02/14/2026

🌍 Curious about who we are and what drives our mission? At ALS Worldwide, we are committed to walking alongside individuals and families affected by ALS with compassion, encouragement, and meaningful support. 💙

From resources and counseling to powerful stories and community connection, everything we do is centered around hope and dignity. Learn more about our heart, our leadership, and how you can be part of this journey.

🔗 https://alsworldwide.org/about-us/

01/30/2026

"I miss his humor and wit and grieve for the days we’ll never have. But inside I feel him growing yet again as the ephemeral spirit he was, infusing me with energy and purpose to make my life meaningful." — Barbara Byer, ALS Worldwide Founder.

To read a mother’s story of life before, during, and after her adult child’s ALS diagnosis, order your copy of Shatterproof: A Mother’s Memoir of Love and Loss.

Order your copy in paperback 📖 or ebook 📱here: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

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Address

1800 Prospect Avenue, Suite 14A
Milwaukee, WI
53202

Telephone

+16086985700

Website

http://www.alsworldwide.org/

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