ALS Worldwide

ALS Worldwide Nonprofit that helps people live better and longer with ALS by providing FREE assistance to all. WHAT IS ALS? So, amyotrophic means “no muscle nourishment”.

The name amyotrophic lateral sclerosis is Greek in origin. “A” means "no" or "negative," “myo” translates to “muscle”, and “trophic” refers to “nourishment”. "Lateral" refers to the places in a person's spinal cord where portions of nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening ("sclerosis") in the region. In the United States and many other countries, Amyotrophic Lateral Sclerosis (ALS) is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND). In many Spanish speaking countries it is called Esclerosis Lateral Amiotrófica (ELA). This disease weakens and kills nerve cells that control voluntary muscle movement. Individuals are robbed of their ability to move, speak, eat and breathe, but it often leaves the mind intact. Death can occur within 2-5 years of diagnosis, but some individuals have survived for 10 or more years. Some symptoms can be managed and certain treatments can help extend life. However, there is currently no known cure or fully effective treatment for the underlying causes of ALS. WHO SUFFERS FROM THIS DISEASE? ALS is not contagious and doesn't discriminate. This disease can strike anyone, regardless of age, gender, race, ethnicity, or socioeconomic status. Every 90 minutes ALS claims another life. Every time someone dies, another person is diagnosed with ALS. HOW YOU CAN GET FREE SUPPORT
Visit alsworldwide.org/get-help to learn more and to find out how to receive FREE guidance and support via videoconference, email, and phone. HOW YOU CAN HELP OTHERS
ALS is not an incurable disease, it's just severely underfunded. Make a tax-deductible contribution at www.alsworldwide.org/donate. Like our page at www.facebook.com/ALSWorldwide and like and share our posts to spread awareness about ALS/MND/ELA and give help and hope to people living with ALS around the world.

"I miss his humor and wit and grieve for the days we’ll never have. But inside I feel him growing yet again as the ephem...
01/30/2026

"I miss his humor and wit and grieve for the days we’ll never have. But inside I feel him growing yet again as the ephemeral spirit he was, infusing me with energy and purpose to make my life meaningful." — Barbara Byer, ALS Worldwide Founder.

To read a mother’s story of life before, during, and after her adult child’s ALS diagnosis, order your copy of Shatterproof: A Mother’s Memoir of Love and Loss.

Order your copy in paperback 📖 or ebook 📱here: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

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💖 Your generosity fuels hope. Every donation to ALS Worldwide directly supports families, counseling, resources, and glo...
01/28/2026

💖 Your generosity fuels hope. Every donation to ALS Worldwide directly supports families, counseling, resources, and global outreach for those living with ALS.

Make an impact today: https://alsworldwide.org/donate/

Small acts create big change. 🌟

📘 Knowledge empowers. Our ALS Protocol e‑Book offers practical insights, care strategies, and supportive guidance for in...
01/24/2026

📘 Knowledge empowers. Our ALS Protocol e‑Book offers practical insights, care strategies, and supportive guidance for individuals, caregivers, and families.

Download this free resource: https://alsworldwide.org/resource/als-protocol-e-book/

Support begins with understanding. 🌟

📝 Every ALS journey is powerful — and yours can inspire others. When you share your story, you amplify others', offering...
01/22/2026

📝 Every ALS journey is powerful — and yours can inspire others. When you share your story, you amplify others', offering connection, strength, and understanding to the global ALS community.

Share your voice: https://alsworldwide.org/share-your-story/

Your story matters. 💙

💬 ALS affects more than the body — it touches every part of life. ALS Worldwide offers free, personalized counseling to ...
01/21/2026

💬 ALS affects more than the body — it touches every part of life. ALS Worldwide offers free, personalized counseling to help individuals and families find clarity, strength, and emotional balance.

Explore our counseling support: https://alsworldwide.org/counseling/

You’re never alone in this. 💛

🤝 Personalized counseling support

💞Emotional balance resources

👨‍👨‍👦‍👦 Family-centered guidance

😴 Noninvasive VentilationNoninvasive ventilation (NIV) is a mask that provides breathing support without surgery. It has...
01/20/2026

😴 Noninvasive Ventilation

Noninvasive ventilation (NIV) is a mask that provides breathing support without surgery. It has several options, depending on what the patient finds most comfortable. For people with ALS, NIV can be life-saving, as approximately 82% of ALS/MND deaths are attributed to respiratory failure. It is highly recommended that NIV be considered early in one’s diagnosis, in consultation with an ALS clinic with whom the patient has a close relationship.

— Pathways Through the ALS Storm, p. 20

Get your copy here: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

💙 At ALS Worldwide, we believe no one should face ALS alone. Our team provides compassionate guidance, global support, a...
01/18/2026

💙 At ALS Worldwide, we believe no one should face ALS alone. Our team provides compassionate guidance, global support, and real‑world solutions for individuals and families navigating this journey.
Learn more about who we are and why we’re here: https://alsworldwide.org/about-us/
Together, we make strength possible. 🌟

🌎 Global support mission
💓Compassionate guidance approach
💪ALS community empowerment

📊 Add Your Support to Our Impact!🌍 For over 20 years, we’ve been providing free ALS support worldwide — and the numbers ...
12/31/2025

📊 Add Your Support to Our Impact!
🌍 For over 20 years, we’ve been providing free ALS support worldwide — and the numbers tell a powerful story. In FY 2025, we reached over 232,000 people through social media, provided counseling to 180 individuals, distributed vital resources, and welcomed thousands of visitors to our website. 💙 Behind every number is a family, a story, and a life touched by compassion.

✨ Our Annual Impact Report highlights the difference we’ve made together — and the hope we continue to share. We invite you to read it and see how your support helps us bring strength and care to families across the globe 👉 https://alsworldwide.org

🌟 Keith’s Journey with ALS: A Message of Hope & Positivity 🌟At ALS Worldwide, we’re honored to share powerful stories fr...
12/28/2025

🌟 Keith’s Journey with ALS: A Message of Hope & Positivity 🌟

At ALS Worldwide, we’re honored to share powerful stories from individuals living with ALS — stories that inspire, educate, and connect us all.

🧡 Meet Keith Johnson from Louisiana — diagnosed with ALS in November 2012, Keith’s courage, resilience, and determination shine through. Rather than focusing on limitations, he embraced education and research to improve his quality of life and encourages others to do the same.

💬 Keith shares: “My best advice in this fight … is to always stay positive and do not focus on the negative. Use common sense and avail yourself of treatments that are based on sound science and can improve your quality of life.”

His message reminds us that positivity, knowledge, and community support play a powerful role in navigating life with ALS.

➡️ Read Keith’s full story and be inspired: https://alsworldwide.org/family-story/a-personal-experience-from-keith-johnson-of-louisiana/

🏥 Emergency Room Card✨ In moments of urgency, being prepared can make all the difference. That’s why we created a person...
12/26/2025

🏥 Emergency Room Card
✨ In moments of urgency, being prepared can make all the difference. That’s why we created a personal information and emergency room card — a simple resource that ensures an ALS patient's details are ready when they're needed most. 💙 It’s one more way we can help people with ALS be safe and supported. Download your card today 👉 https://alsworldwide.org/resource/your-personal-information-and-emergency-room-card/

📖 Share Your Story🌟 Stories have the power to connect us, inspire us, and remind us that we are never alone. We invite y...
12/22/2025

📖 Share Your Story
🌟 Stories have the power to connect us, inspire us, and remind us that we are never alone. We invite you to share your journey with ALS — your challenges, your triumphs, and your moments of courage. 💙 By telling your story, you help others feel seen, supported, and uplifted. Together, we create a community of strength and compassion. Share your story with us 👉 https://alsworldwide.org/share-your-story/

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