WVU Mountain State Cystic Fibrosis Center

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Morgantown, WV
WVU Mountain State Cystic Fibrosis Center

WVU Mountain State Cystic Fibrosis Center This multi-specialty team approach ensures that the most comprehensive care is provided to each patient.

As a chartered National Cystic Fibrosis Foundation member, WVU’s Mountain State Cystic Fibrosis Center has more than a decade of experience caring for children and with this debilitating disease. Our leading-edge research combined with our team approach results in the highest lung function for children with CF in the state. Because CF often affects many of the body’s organs and functions, and related complications can vary by patient age, our CF experts, other medical specialists, geneticists, counselors, and families work together as a team. Recognized as a CF site for excellence and leadership in CF care, the Mountain State Cystic Fibrosis Center is one of only 18 Cystic Fibrosis Foundation Therapeutic Development Network Centers in the U.S., reflecting our expertise and leadership in CF research.

11/05/2025

Compass is a fabulous resource for our patients and their families!

Even if you plan to stick with the same health insurance next year, things can change.

Compass is here to help you review your options and make sure your plan works for you and your family: https://www.cff.org/support/get-help-cf-foundation-compass?utm_campaign=oe25&utm_source=facebook&utm_medium=social

10/25/2025

CFTR modulators have had a transformative impact for many people with cystic fibrosis. However, while these therapies represent a significant breakthrough, challenges still remain.

Sydney Willig shares her experience taking CFTR modulators, including Trikafta and Alyftrek, and how these therapies shaped her ability to live the life she wanted.

09/29/2025

We have invested an additional $3 million in ReCode Therapeutics to provide further support for an ongoing Phase 2 clinical trial of its inhaled messenger RNA therapy. The therapy has the potential to help all people with cystic fibrosis, including those with rare and nonsense mutations who do not benefit from modulators.

Messenger RNA therapy is designed to provide the correct instructions to lung cells to make functional CFTR protein. A dysfunctional CFTR protein is the underlying cause of CF.

09/18/2025

Looking for somewhere to connect with people who truly understand what life with cystic fibrosis is like?

CF Circles are virtual, peer-led discussions where adults with CF come together in small groups to share openly about their real-life experiences. Upcoming topics include living longer with CF and managing CF-related pain.

Explore upcoming sessions and register today: https://on.cff.org/CFCircles

09/11/2025

Cystic fibrosis patients rarely used to see age 30. Now, with this Iowa doctor's work, people are living well into their 80s — and even running.

07/22/2025

Getting to medical appointments shouldn’t be a barrier to your health. If you don’t have a car, can’t afford gas or parking, or just need a little extra help getting around — you're not alone. Nearly 1 in 10 people with CF lack reliable transportation, which may lead to delays in seeing their CF care team.

The good news? Help may be available.

Learn more about transportation assistance and other resources that can help you get the care you need: https://on.cff.org/44HBtHH

Address

One Medical Center Drive P. O. Box 9214
Morgantown, WV
26506

Telephone

(304)2931201

Website

http://wvumedicine.org/childrens/healthcare-services/cystic-fibrosis-center/

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