Rocky Mountain Rett Association

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Rocky Mountain Rett Association

Rocky Mountain Rett Association seeks a cure for Rett Syndrome.

Until a cure for this disease is found, we envision a region where girls with Rett Syndrome and their families have access to the resources, care and support they need, where the public is aware of, engaged and active in addressing this debilitating disease, and where improved treatments are found to help our girls live a little easier.

02/21/2026

Our volunteer crew is hard at work getting ready for our Mardi Gras party tonight! Hope to see you at 6pm ! A few tickets are still available, so hurry up and join us tonight.

02/20/2026

Rett Syndrome is rare…but hope doesn't have to be. 💜
Rett Syndrome research continues to advance, and there has been progress towards treatments and the possibility for a cure. In 2023, Daybue, the first medication for treating Rett Syndrome, was approved by the FDA. Trials are now underway for NGN-401, a potential gene therapy for treating Rett Syndrome. As research advancements are being made every day, we continue to have tremendous hope for a cure. 🧬💜

02/18/2026

The Mardi Gras Fete Online Auction is now OPEN! Start browsing and submit your bids! It's all for a good cause - the Rett Clinic at Children's Hospital Colorado. https://MardiGras2026.givesmart.com

02/15/2026

Meet the 2026 team of doctors, therapists, coordinators, and more at the Rett Clinic!🧬💜

Our team has developed a wealth of experience and knowledge about Rett and Rett-like disorders, and we’re recognized as national and international leaders in the field. We collaborate with other programs and practitioners from across the world, and we strive to develop and provide the most up-to-date care based on research and care guidelines.

All 2026 dates for new and follow-up patients are up on our website. Families can contact the Rett Clinic at 720-777-4798 or rettclinic@childrenscolorado.org.

02/12/2026

We are so excited to have our 8th Annual Mardi Gras Fête at this fantastic new venue, Baldoria on the Water in Lakewood, CO! 💃✨

Didn’t get your tickets yet? Don’t worry! There are still a few tickets left. Visit https://www.rmrett.org/events/mardi-gras-fete-2026 to purchase your tickets today! 🥂🎟️

02/09/2026

How can you make a difference this Rare Disease Day?

💬 Educate your community, friends, and family about Rett Syndrome and other rare diseases.
🤝 Share information, resources, and Rett Syndrome organizations with people who are unfamiliar with the disease.
🫂 Engage with local organizations in your area that support rare disease research by volunteering or donating.
🧬 Advocate for equity for those with rare diseases.
💜 Show your support for Rett Syndrome by wearing purple.

02/08/2026

Meet our 2026 Mardi Gras emcee, Drew Carney! 🎤🗣🕺
Drew is the Morning Anchor at 9News and recently moved to Colorado after a 19-year career in Portland, Oregon. Drew is a powerhouse in the community, and has helped raise millions of dollars as a go-to emcee for non-profits and children's hospitals. We are so excited to welcome him as our emcee for RMRA’s 8th Annual Mardi Gras Fête! 🥂✨

9 News

02/07/2026

Still looking for a Valentine's Gift? Take your loved one to RMRA's Mardi Gras Fête! 💃✨

Get dressed up for date night and enjoy a meaningful night out with the Rett Village! 💜

🗓️ Saturday, February 21st, 6pm-11pm
✨ Savor delicious Creole-inspired cuisine
🥂 Enjoy our open bar
🎲 Try your luck at our lively casino tables
💃 Kick up your heels with DJ Trip after dinner
📸 Strike a pose in our fun-filled photo booth
🏆 Bid on incredible auction items
🤝 Celebrate with RMRA families, friends, and supporters
🎟️ Tickets: $110 per person

Every ticket includes a souvenir Mardi Gras glass, our signature open bar and $100 in casino cash for gaming fun and free parking. Visit https://www.rmrett.org/events/mardi-gras-fete-2026 to purchase your tickets today!

02/05/2026

Check out our 2026 Mardi Gras Menu! 💃🥂
We are excited to offer a variety of hors d'oeuvres, starters, entrees, sides, and desserts – all curated by our Culinary Director, Scott Henley!

02/03/2026

Thank you to Minky Couture for their generous donation of their beautiful and cozy blankets, perfect for winter! ❄️💜

These blankets were given out to Rett girls at the Family Picnic, and they LOVED them. We are so excited to have these as part of our auction at our 8th Annual Mardi Gras Fête!
Minky Couture

02/01/2026

February 28th is Rare Disease Day, a day that is dedicated to raising awareness for rare diseases. Rett Syndrome is a rare disease, affecting approximately 1 in 10,000 females and even fewer males. Rett Syndrome is just one of many rare diseases that can often be overlooked or misdiagnosed, and it is important for our communities to come together and keep advocating and seeking change for our loved ones with rare diseases. 🧬💜

Address

Morrison, CO

Website

https://rmrett.org/

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