Rocky Mountain Rett Association

Rocky Mountain Rett Association Rocky Mountain Rett Association seeks a cure for Rett Syndrome.

Until a cure for this disease is found, we envision a region where girls with Rett Syndrome and their families have access to the resources, care and support they need, where the public is aware of, engaged and active in addressing this debilitating disease, and where improved treatments are found to help our girls live a little easier.

Jaden was such a great addition to our Mardi Gras party! Everyone loved the coin toss - what a great way to get people u...
03/17/2026

Jaden was such a great addition to our Mardi Gras party! Everyone loved the coin toss - what a great way to get people up and moving for a great cause. We are so grateful for our partnership with 9News!

9 News Jaden Knowles Drew Carney

We absolutely loved having Drew Carney as our emcee for our 8th Annual Mardi Gras Fête! He did a fabulous job and truly ...
03/15/2026

We absolutely loved having Drew Carney as our emcee for our 8th Annual Mardi Gras Fête! He did a fabulous job and truly brought so much energy to the event! 🎤💃

9 News Drew Carney

Visit our website to read our newest blog, an overview of Medical Biases and Misconceptions Impact Diagnoses in Males Wi...
03/14/2026

Visit our website to read our newest blog, an overview of Medical Biases and Misconceptions Impact Diagnoses in Males With Loss of Function MECP2 Variants, a research paper by Talia Thompson and many other professionals.

The paper found that Rett Syndrome does affect males, but lasting biases contribute to late diagnoses or misdiagnoses in males with Rett Syndrome.

Visit https://www.rmrett.org/news-from-rmra/rett-in-males-a-research-study to read more.

RMRA's 8th Annual Mardi Gras Féte was a smashing success!!💜💛💚We welcomed over 150 guests and raised over $90,000 to supp...
03/13/2026

RMRA's 8th Annual Mardi Gras Féte was a smashing success!!
💜💛💚
We welcomed over 150 guests and raised over $90,000 to support the Rett Clinic at Children's Hospital Colorado. This wouldn't be possible without all of you - we are so grateful for your support.💜

Every year, Rare Disease Day is on February 28th (or 29th), the rarest day of the year. Rare Disease Day aims to raise a...
02/28/2026

Every year, Rare Disease Day is on February 28th (or 29th), the rarest day of the year.
Rare Disease Day aims to raise awareness for families, children, and people who are affected by rare diseases. Rett Syndrome is a rare disease, and progress is being made every year through the hard work of many doctors, researchers, and professionals. Continue to advocate for and support those around you who are affected by rare diseases. It takes a village. 🫂🏘️💜

02/24/2026

Drew Carney from 9NEWS (KUSA) mentioned our Mardi Gras event on his morning show - YAY! 🤩

What an event! And it was made so much better thanks to Drew Carney and Jaden Knowles - 9NEWS (KUSA) you have a winning ...
02/24/2026

What an event! And it was made so much better thanks to Drew Carney and Jaden Knowles - 9NEWS (KUSA) you have a winning team right there! We'll follow up soon with more pictures of the evening, but know already it was a huge success! Thank you all for attending and supporting our cause!

What is Rett Syndrome?💜 Rett Syndrome is a rare, genetic neurological disorder that is caused by a mutation in the MECP2...
02/24/2026

What is Rett Syndrome?

💜 Rett Syndrome is a rare, genetic neurological disorder that is caused by a mutation in the MECP2 gene on the X chromosome.

Visit our website for more information on Rett Syndrome, including Rett Resources, blogs, and ways you can support Rett Syndrome research.

Our volunteer crew is hard at work getting ready for our Mardi Gras party tonight! Hope to see you at 6pm ! A few ticket...
02/21/2026

Our volunteer crew is hard at work getting ready for our Mardi Gras party tonight! Hope to see you at 6pm ! A few tickets are still available, so hurry up and join us tonight.

Rett Syndrome is rare…but hope doesn't have to be. 💜Rett Syndrome research continues to advance, and there has been prog...
02/20/2026

Rett Syndrome is rare…but hope doesn't have to be. 💜
Rett Syndrome research continues to advance, and there has been progress towards treatments and the possibility for a cure. In 2023, Daybue, the first medication for treating Rett Syndrome, was approved by the FDA. Trials are now underway for NGN-401, a potential gene therapy for treating Rett Syndrome. As research advancements are being made every day, we continue to have tremendous hope for a cure. 🧬💜

The Mardi Gras Fete Online Auction is now OPEN! Start browsing and submit your bids! It's all for a good cause - the Ret...
02/18/2026

The Mardi Gras Fete Online Auction is now OPEN! Start browsing and submit your bids! It's all for a good cause - the Rett Clinic at Children's Hospital Colorado. https://MardiGras2026.givesmart.com

Address

Morrison, CO

Website

Alerts

Be the first to know and let us send you an email when Rocky Mountain Rett Association posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Rocky Mountain Rett Association:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category