Watch 4 Wegeners

12/15/2025

A study identified calprotectin and soluble CD163 as possible biomarkers of inflammation, disease activity, and relapse risk in AAV. https://buff.ly/mS1M2Rd

12/15/2025

This is a horrible disease and people suffer and die waiting for a diagnosis.

Near-death kidney and lung failure. Ten years of misdiagnosis. Endless appointments far from home.

Christine MacFadyen’s fight for answers took her across provinces, through an ICU stay, and into a decade-long search for the truth behind her symptoms — a rare form of vasculitis called GPA.

Now living with chronic pain, fatigue, and the losses that come with a life-altering illness, Christine relies on her loved ones, her online support groups, and her own resilience to take each day “one step at a time.”

👉 Read the full story at vasculitisfoundation.org/christine-macfadyens-journey-navigating-life-with-a-rare-disease/

11/26/2025

11/26/2025

Physicians experienced in treating AAV generally agree on which disease symptoms are granuloma-driven, a survey study found. https://buff.ly/frDwVyh

11/21/2025

Explore how the PedsVPPRN registry is transforming pediatric vasculitis research and improving care for children.

11/15/2025

Please, please share in honor of my Sarah ❤️🌷

About the Course Go Back What is the Navigating Your Vasculitis Journey course? This course is not a support group. Learn More About Our Support Groups It is a live (will not be recorded), six-week virtual (via Zoom) course where people who have been diagnosed with vasculitis explore behavioral stra...

11/10/2025

This is a screenshot, because, from this page, I cannot find this article. You can go ancavasculitisnews.com or the link is shared on my personal page. Please share.

11/10/2025

Updated treatment guidelines from the British Society for Rheumatology favor rituximab over cyclophosphamide for active, relapsing AAV. https://buff.ly/F8EkNsO

10/23/2025

Without incentives, pharmaceutical companies don’t benefit from developing rare disease drugs. Except these incentives are at stake. See how Pam Squire is helping: https://buff.ly/9TGkMqs

10/23/2025

A cardiac MRI can detect heart muscle scarring in adults with ANCA-associated vasculitis, even in those who aren't having disease symptoms. https://buff.ly/fGvVI54