03/05/2026
The cost of chronic illness in the U.S. is….expensive
Took a trip down memory lane today and found my medical bills from 2019, the year my health became a huge problem.
I had hardly any records from the first 26 years of my life aside from immunization records, birth records, and MRI results from high school.
Then 27 hit and it felt like my body crumbled.
ER visits, urgent care visits, cardiology work ups, rheumatology appointments, labs, OBs, primary care, functional medicine drs and everything in between.
1 year, close to 30,000 and no answers.
Actually there was one, hypothyroidism.
But for the pain, the fatigue, the bloating, the headaches, the reactions to foods I used to love , the constant nausea, the gradual inability to keep up with an average pace of life. No answers.
Those come years later after thousands more.
This is with health insurance (that cost not factoring in).
I found an appeal letter I wrote when I applied for financial assistance for an ER bill and was denied in which I wrote verbatim “our bill is 26% of our annual income”
Then there was a chunk of bills on which I wrote the history of $20 payments I was making on various accounts to keep them out of collections.
This is part of what people mean when they say the system is broken. Sub par care with a luxury price tag.
Being sick here is ridiculously expensive.
Getting answers is more expensive.
Getting good care can add another layer of expense.
I know I’m one of the lucky ones and there are others with expenses far greater than mine that they need just to survive.
TLDR: don’t ask your chronic illness friends when they are going to buy a house, they’ve probably put down multiple down payments to their local hospital network.