11/07/2025
CASY Cultural Autism Studies at Yale (ethnography project led by Dr. Dawn Prince-Hughes) is delighted to welcome Reese Ramponi, APRN on Monday, December 15, 2025, 5-6 p.m. EST (2 p.m. PST, 10 p.m. GMT). There is no cost to attend, and international participants are invited to attend. RSVP online though our free Meetup group https://www.meetup.com/projectcasy/events/311893452/
TOPIC: Self-Diagnosis, Official Diagnosis, & Autistic Validity
DESCRIPTION: Do I need an 'official' diagnosis? Is it safe to have autism documented in my medical record? What if I recognize autism in myself but don’t have access to formal evaluation?
In this community-centered talk, we’ll explore the landscape of autism diagnosis today — from medical gatekeeping and insurance challenges to identity, safety, and self-determination. Together, we will explore:
- The legitimacy of self-diagnosis and self-identification within autistic culture
- Who gets left out when we rely on the “gold standard” of medical diagnosis
- How diagnosis can act as a gatekeeping tool (and why that harms marginalized communities)
- The real pros and cons of getting an official diagnosis (e.g., services, medical records, access issues)
- Why someone may choose to seek a diagnosis — and why not getting one is equally valid
- How community, peer validation, and autistic culture can replace institutional approval
Whether you’re autistic, questioning, a caregiver, a clinician, or someone who wants to better understand how self-diagnosis fits into autistic culture, this conversation is for you.
BRIEF BIO: Reese Ramponi, APRN (they/she) is an Autistic/ADHD Psychiatric Nurse Practitioner, educator, and consultant. After moving from Alaska to the East Coast in 2009, Reese studied Religion and Psychology at Dartmouth College before completing Yale’s Psychiatric-Mental Health Nurse Practitioner program in 2018. With over a decade of experience in q***r and neurodiversity advocacy, Reese has worked as a photographer, healthcare educator, and consultant. Their clinical expertise spans neurodiversity-affirming care, ketamine therapy, existential therapy, and gender identity development in youth and young adults. Reese also facilitates trainings at conferences and healthcare facilities and runs retreats for neurodivergent therapists. Learn more https://linktr.ee/reese.ramponi
ABOUT Cultural Autism Studies at Yale (CASY): An 'ethnography' is an exploration of how a group of people express themselves in a cultural way. Autistic people have a growing kind of culture, and each autistic experience is a vital part of it. Dr. Dawn Prince-Hughes is an anthropologist, ethnographer, primatologist, and author who is autistic. Join her for an exploration of the importance of autistic self-expression and the culture that grows from it. Those who wish to share their content are free to do so on our private Facebook groups (see below), organically contributing to a growing autistic culture.
Links to online events will also be shared on these private Facebook groups: CASY Cultural Autism Studies at Yale (recommended for autistic adults) and SOCIAL CONNECTIVITY FOR AUTISM (recommended for allies, professionals, and family members).
CREDITS: The preparation of this material was financed under an agreement with the CT Council on Developmental Disabilities (CTCDD). CASY Sparks membership and events are free. CASY Sparks is sponsored in part by The Daniel Jordan Fiddle Foundation https://djfiddlefoundation.org/ Adult Autism Research Fund, and Dr. Roger Jou https://www.youtube.com/c/DrRogerJou