11/09/2025
Luckily today more and more people and providers are aware of the dangers of Lyme.
WHEN LYME KILLS: The New York Times tells the story how the tragic death of Jacksonville Jaguars head coach Liam Coen's mother Beth at the age of 46 shaped his life
"Roughly a decade before her death, Beth Coen returned home from a teachers’ conference in Nantucket, Mass., with a bullseye on her neck, the sign of a tick bite that likely occurred while she was at a cranberry bog. She was treated for Lyme disease and, for years, had it under control.
Things took a turn in 2004. Beth suffered from extreme exhaustion and had immense pain in her legs and back among a laundry list of debilitating symptoms that were physically and mentally draining. Doctors were stumped. Maybe chronic fatigue syndrome. Maybe depression. They prescribed painkillers until they could figure it out.
Eventually, Beth was diagnosed with chronic Lyme disease and referred to a specialist in Boston. But the disease returned with such vengeance that she had to leave her job as a teacher.
The final year of her life was devastating. The hope for an improved quality of life diminished and, eventually, disappeared. She often told Tim she couldn’t do it anymore. She talked of ending her life multiple times, only for Tim to talk her out of it."..
“That disease just ate her up,” Tim says. “It got to the point where she felt she was holding Liam and me back. That’s what caused the end. I told Liam when it happened a lot of people are going to say that was a selfish act, but she did that for us.”
https://www.nytimes.com/athletic/6780341/2025/11/06/jaguars-head-coach-liam-coen-family-mom-death/
FLDA Note: This heartbreaking story highlights the perils of inadequate early treatment and the lack of effective remedies for late stage, persistent Lyme disease. Patients often experience tremendous pain, fatigue, and psychiatric symptoms such as depression. We must better support patients to avoid such tragic outcomes.
The Jaguars have supported Lyme disease awareness in the past by taking the Lyme Disease Challenge numerous years.