From May 3–5, hundreds of advocates will gather in Washington, D.C. for Head to the Hill — NBTS’s signature advocacy event—sharing their stories with Congress and banding together for the brain tumor community nationwide.
If your state or congressional district isn’t represented, your members of Congress may not hear how brain tumors are impacting your community. Your story matters—and it can drive change.
🗣️ Step up. Speak out. Represent your state.
Register by April 6: BrainTumor.Org/HeadtotheHill
03/27/2026
Daniel M. thought staying engaged with research would give him a sense of control after being diagnosed with a brain tumor — he quickly realized how much progress in brain tumor research depends on federal funding.
Now he finds purpose advocating with NBTS at Head to the Hill.
You, too, can urge Congress to fund lifesaving research.
🏛️ This May 3-5, join volunteers from across the country at Head to the Hill in Washington, D.C.
Connect with the brain tumor community, meet with your district and state representatives, and advocate for key policies and robust, reliable funding.
💪 Be part of the change—register by April 6: BrainTumor.org/HeadToTheHill
03/27/2026
The National Brain Tumor Society was proud to join One Voice Against Cancer earlier this month on Capitol Hill for a Grassroots Lobby Day—advocating for the research and prevention funding patients depend on.
We’re urging Congress to prioritize cancer funding in FY2027:
✅ $51.3B for the National Institutes of Health
✅ $7.99B for the National Cancer Institute
✅ $1.5B for the Advanced Research Projects Agency for Health
✅ $482.9M for the Centers for Disease Control and Prevention cancer programs
Sustained federal investment drives breakthroughs—and saves lives.
03/26/2026
“I just felt like something wasn’t right.”
For many living with pituitary tumors, the journey to diagnosis is paved with years of being told that their symptoms — fatigue, weight gain, anxiety, headaches, or hormonal changes — are due to stress or aging.
Because the pituitary gland is responsible for so much, a pituitary tumor can create a massive ripple effect across the entire body.
Join us on Thursday, April 2nd at 7 p.m. ET for our monthly Grief Support Conversation.
The group welcomes anyone who has lost a loved one to a & provides the resources, space, & community to support individuals through their grieving process.
In one month, we’ll gather at The Battery Atlanta for the Georgia Brain Tumor Walk & Race — a morning where every step tells a story and every mile moves us closer to a cure.
Join the National Brain Tumor Society on April 25, 2026, for a family-friendly 5K filled with celebration, remembrance, and hope — all in support of brain tumor patients and their families.
Lace up. Show up. Let’s discover a cure, together. 💙
✅ Register today at BrainTumor.org/Georgia
03/25/2026
This , Rhiannon V. shares why she’s participating in the DFW Brain Tumor Walk & Race on Saturday, April 11.
💙Find your WHY and join us: BrainTumor.org/DFW
This week for , Rhiannon Voicu, team captain of Rhi’s Runners, shares her story and journey with the Texas Brain Tumor Community.
“I was diagnosed September 19, 2025 with a grade 4 brain tumor Diffuse Midline Glioma. It came as a massive shock as I had no symptoms before my hospitalization and I’m young (24), healthy, active, and a nurse.
I was hospitalized on Labor Day weekend for vertigo, (I couldn’t lay flat), nausea/vomiting for 3 days, double vision, and poor balance. They found the tumor and I transferred to UT Southwestern for better care. I went through radiation and chemotherapy for 6 weeks and am now on Modesyo and Avastin. My 3 month MRI showed no increase in size and even some of it decreased!
I’m doing the walk because clinical research made Modesyo possible for my exact genetic mutation and has made my symptoms very mild! I also want to meet and support others affected by brain tumors because we can make a difference! I love my oncology team at UTSW and can’t thank everyone enough who has supported me!”
Find Community and share your WHY! Join us on April 11, 2026, at the DFW Brain Tumor Walk & Race. Register today at www.BrainTumor.org/DFW
03/24/2026
🔗 Register now to join us Sun, May 3, to Tue, May 5, at Head to the Hill in Washington, D.C. — sign up by April 6: BrainTumor.org/HeadToTheHill
🌟 Over three impactful days, you’ll connect with others affected by brain tumors, train with experts, and share your story with Congress.
Together, we’ll urge lawmakers to fund research and support policies that serve the brain tumor community.
💪 Advocacy is year-round and complements NBTS’s walks, rides, and races.
Make an impact today — join the movement!
03/23/2026
“We just need a voice.”
Some years, Amanda has been the only advocate from Mississippi to attend Head to the Hill, ensuring that her state’s lawmakers hear first-hand about the urgent, unmet needs of the brain tumor community.
Join Amanda and volunteers from across the country this May as we come together to urge Congress to support critical brain tumor research funding and policies that support patients and care partners.
Register today: BrainTumor.org/HeadToTheHill
🧠 Head to the Hill
🗓 May 3–5, 2026
📍 Washington, D.C.
No previous advocacy experience is needed—we’ll provide the training and support you need every step of the way.
03/22/2026
Through Fundraise Your Way with the National Brain Tumor Society, you can host an event or start an online fundraiser to honor a loved one and support the brain tumor community.
Your event can be anything you’re passionate about:
⛳ Golf tournament
⚾ Gray Game
🍺 Brewery bash
🎲 Game night
🎨 Craft party
🏓 Pickleball tournament
Every event raises critical funds and awareness to help conquer and cure brain tumors.
Learn more at BrainTumor.org/FYW or drop an emoji in the comments for the event you’d be passionate about hosting! ⬇️⬇️⬇️
03/21/2026
This Women’s History Month, NBTS honors women who have broken barriers in neurosurgery and advanced brain tumor research.
Today, we recognize Dr. Frances Conley. In 1977, she became the fifth woman certified by the American Board of Neurological Surgery.
By 1988, she made history as the first woman in the U.S. to be a tenured full professor of neurosurgery at a medical school.
Her research explored anticoagulation in metastatic brain tumors and the impact of low-grade infections on primary brain tumors, helping deepen understanding of tumor behavior.
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We believe we can move the needle faster and drive more new discoveries by influencing and funding research, and actually bringing together policy makers, researchers, clinicians doctors and industry organizations to collaborate and share information in order to find better treatments and a cure for brain tumors. We are the only brain tumor organization that has an active public policy agenda, and we directly advocate to policymakers to give brain tumor patients a voice in Washington, D.C.
We are intimately connected with top brain tumor researchers, academics and clinicians. Some of the top brain tumor experts are scientific advisors on our programs, and we hire PhDs to help create informative content and translate new research developments into language that brain tumor patients and their families can understand and act on.
We don’t just write blank checks. We drive a thoughtful research agenda and hold our researchers’ feet to the fire by monitoring their progress and having them report on findings to the community to justify funding.
We support more than 23 signature, regional walks, races and rides and many other community and scientific events, so our mission is strong.
OUR IMPACT
Money raised by the generous donations of our supporters has specifically funded groundbreaking discoveries and programs including:
Funding and leading research initiatives with the foremost brain tumor experts in the world,
Treatment discovery and development initiatives,
Clinical trials with leading biopharmaceuticals companies to increase drug development and create new options for treatment,
Critical platforms and processes for sharing cutting-edge medical and research information,
Advocacy and public policy initiatives to influence government legislation, regulations, and policy,
And finally, investing in our talented, unique and influential staff in order to drive these research and public policy advancements.
WHY INVEST IN THE NATIONAL BRAIN TUMOR SOCIETY
It takes the combined knowledge, expertise and dedication of many individuals and organizations to fight brain tumors and develop new treatments. This includes academic researchers, clinicians (neuro-oncologists, neuro-radiologists, neurosurgeons, etc.), biopharmaceutical companies, patients, survivors, caregivers, philanthropists, policy makers and regulators. When you give to one medical institution, you are helping just that one organization’s efforts. But, when you give to NBTS, you are investing in the combined power of the entire brain tumor community. Funding will go to many organizations and research efforts, giving brain tumor patients the best chance for better treatments.
This multi-pronged, community-based approach will help find treatments faster while promoting better information sharing and collaboration between experts around the world to find a cure for brain tumors. Only NBTS can convene these various forces through our programs and mission agenda in order to create rapid progress toward a cure.
