02/12/2026
✴️It’s Seizure Action Plan Awareness Week ✴️
It's an essential time to spread awareness about the importance of Seizure Action Plans (SAPs) and how they can make a difference in emergencies.
Seizures and epilepsy affect approximately 40% of individuals with Phelan-McDermid syndrome, so it is important to create a Seizure Action Plan and share it with your family, friends, caregivers, medical team, therapists, and others.
Seizures are medical emergencies, and a personalized SAP acts as a safety guide during these critical moments. It provides tailored guidelines on how to respond during a seizure based on the individual's medical history. SAPs should be updated at least once a year.
What goes in a Seizure Action Plan?
✳️Seizure information (seizure type, duration, frequency)
✳️Triggers and rescue medications
✳️Relevant medical history and other medications
✳️Seizure first aid and when to call 911
✳️Post-seizure care
Create or update your Seizure Action Plan today! Link to templates in the comments.
And don’t forget to check out the Consensus recommendations on Epilepsy in Phelan McDermid syndrome in the comments.
Let’s work together to spread awareness, improve access to care, and support those affected by seizures and epilepsy.
