Bailey's Unique Journey

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Bailey's Unique Journey

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02/16/2024

Happy Transplant Day to my precious Bailey Faith. ❤️ We have reached the one-year mark of Baileys Journey!

12/25/2023

I wanted to take a moment to express my deepest gratitude for all of the prayers, support, and gifts. Your unwavering love and encouragement have been a source of strength for Bailey and our family. Merry Christmas and Happy New Year!

Can someone check on my favorite niece Nadia Melissa to see if she’s okay!

12/17/2023

Santa Claus came to see Bailey! He also left her a goodie filled stocking 🥰 Thank you Santa! 🎅

12/16/2023

Hello Everyone!

Bailey is going on 2 months of being in the hospital and unfortunately we will be spending the Holidays here as well. We have made her a wishlist to keep her spirits lifted. We thank you for all the prayers and suppport! Happy Holidays! 💚

Bailey’s Treasures - Amazon Gift List -

12/12/2023

Bailey and Orbit taking a nap.

02/17/2023

Poor baby girl!!!

02/15/2023

TODAY is the DAY!! We start the Bone Marrow Transplant. Thank you to everyone for continued support 😊

01/05/2023

Words can not express our thankfulness for your continuous support. Bailey is a fighter and she will win in the end! Please continue to pray for her and the family as she will begin her journey soon. Thank you again and God bless you all. Support Bailey. 💜

12/27/2022

Please Continue to Share & Support Bailey’s Unique Journey. 🙏❤️ https://buj.fundsnow.org/

12/22/2022

Support Bailey. https://buj.fundsnow.org/

12/21/2022

In August, Bailey my 8-year-old granddaughter, went to her pediatrician since she wasn’t feeling well. Her doctor ordered a series of blood tests to see what could be the problem. When the results came in, her doctor had Bailey’s grandmother rush her to Huntsville Hospitals Women’s and Children’s to be immediately seen by St. Jude’s Research Team. After many more blood tests, procedures, supportive care, as well as being admitted to the Pediatric Intensive Care Unit, it was discovered Bailey has Fanconi Anemia.

Bailey is one of a handful of children who have been diagnosed with inherited Fanconi Anemia in Huntsville, Alabama. This is a rare disease of the bone marrow that will require a bone marrow transplant. This is a very serious and life-threatening disease. Bailey must be watched closely and continue to have this supportive care to support her life until the bone marrow transplant is able to be arranged/matched. The bone marrow transplant will be a lengthy process.

This procedure is very intense and requires her to travel to Lucile Packard Children’s Hospital Stanford, Palo Alto, California, and be an inpatient starting January 7, 2023, for an extensive period of time. Since her first admission, Bailey has required constant supervision of several blood transfusions, platelets transfusions, and several antibiotics.

She is unable to attend school due to the risks involved with this disease. She requires constant supervision, and the family will need additional support to provide for her care. She will have many hospitalizations depending on her blood levels and other medical needs. She may look outwardly healthy to most, but she is very susceptible to many infections and only looks healthier due to the supportive treatments and infusions she is receiving.

Fanconi anemia is a rare genetic disorder, involving all three blood cell lines. It is the most common cause of inherited bone marrow failure characterized by pancytopenia. Additional symptoms can include shortness of breath, chest pain, and dizziness.

Please Support Bailey by clicking the link below and sharing her story. Thank you all for your generous support. https://buj.fundsnow.org/

Address

725 Welch Road
Stanford, CA
94304

Telephone

+12567149909

Website

https://buj.fundsnow.org/

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