Crohn's & Colitis Foundation

Crohn's & Colitis Foundation Please report any posts that you believe violate our community guidelines. Repeated offenses may result in being muted or banned.
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The mission of the Crohn's & Colitis Foundation is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. Community Guidelines:

1) Overview: The Crohn’s & Colitis Foundation reserves the right to remove comments, images, or other content that violate our Community Guidelines. Personal attacks or hateful or objectionabl

e comments will be deleted. This includes language abusive, vulgar, obscene, racist, threatening, or harassing comments, libel, slander, and the use of offensive terms that target specific individuals or groups. Posts, images, and/or videos using such language will be removed.

2) Privacy: We welcome posting photos & videos of personal experiences. However, please do not post overly graphic photos. Do not post personal details or share personal information about others. Conversations that occur outside of this page are the responsibility of the individuals concerned.

3) Links: Do not post anything that advertises or sells products and/or services. Do not post links to research that hasn’t been published by a peer-reviewed research journal. Spam posts will be removed.

4) Fundraising: We know many individuals participate in fundraising activities – either personal or through the Foundation or other organizations. However, no posts promoting an individual or team of fundraisers may be shared on this page.

5) Consult a Doctor: We are not medical professionals and cannot offer medical advice. The information shared on this page is meant to be for educational purposes only and should not replace the care of your physician.

6) Contact: This page is managed by Foundation staff members. If you need to contact an administrator, please send us a direct message or email socialmedia@crohnscolitisfoundation.org

Step therapy can delay access to the treatments that people living with Crohn’s disease and ulcerative colitis urgently ...
04/22/2026

Step therapy can delay access to the treatments that people living with Crohn’s disease and ulcerative colitis urgently need. Today’s Congressional hearing put a spotlight on how step therapy can derail IBD treatment and cause dangerous delays in patients getting timely, doctor-prescribed care. We are grateful to Representative Lucy McBath for highlighting the barriers step therapy creates for real patients. Take action now: Tell your members of Congress to co-sponsor the Safe Step Act ➡️ https://bit.ly/4e41tCc

This National Volunteer Week, Foundation social media ambassador Kimberly Hooks—who lives with ulcerative colitis—shares...
04/22/2026

This National Volunteer Week, Foundation social media ambassador Kimberly Hooks—who lives with ulcerative colitis—shares her front-row view of hope from our 2026 Volunteer Leadership Summit in Denver. Read her reflections on the power of volunteer leaders and how you can get involved: https://bit.ly/4stQsNW

04/21/2026

This National Volunteer Week, Kaylaa’ White—who lives with IBD, serves on the Foundation’s National Council of College Leaders, and regularly uses her voice on Capitol Hill for the Foundation to advocate for access to care—shares a special message of gratitude for all volunteers.

If you already volunteer, please share your story on social media and inspire others—and if you’re interested in getting involved and helping fuel this mission, sign up here: https://bit.ly/4t7fpzL

04/20/2026

This National Volunteer Week, we’re honoring our 14,000 volunteers whose passion and commitment help us move us closer to cures and a better quality of life for everyone living with IBD.​ Watch this special thank-you message from CEO Michael Osso. If you already volunteer, please share your story on social media and inspire others—and if you’re interested in getting involved and helping fuel this mission, sign up here: https://bit.ly/4t7fpzL

The Foundation has played a role in every major research and treatment breakthrough in IBD. We are deeply grateful to ou...
04/19/2026

The Foundation has played a role in every major research and treatment breakthrough in IBD. We are deeply grateful to our dedicated volunteers, who have helped us reach these milestones and make this impact possible.

During National Volunteer Week, we’re shining a light on the many ways you make this impact possible—if you’re a current volunteer, we’d love for you to share your story on social media and inspire others in your community, and if you or someone you know is interested in volunteering and wants to learn how you can make a difference in the lives of 1 in 100 Americans living with IBD, visit: https://bit.ly/4t7fpzL

We are stronger together, and we can go further together for our IBD community.

Living with Crohn’s disease or ulcerative colitis? You don’t have to navigate it alone. 💙The Power of Two connects peopl...
04/18/2026

Living with Crohn’s disease or ulcerative colitis? You don’t have to navigate it alone. 💙

The Power of Two connects people with IBD to trained volunteer mentors for goal-focused conversations. Whether you're learning to manage your care as a young adult, looking to improve your eating habits, or considering ostomy surgery, mentors share their lived experience to provide real-world guidance and help you build confidence.

Applications are open for mentors and mentees—see if the new Power of Two is right for you: https://bit.ly/3CSjqn5

Proposed Medicare policy changes could put access to essential ostomy supplies at risk. The Foundation has been working ...
04/17/2026

Proposed Medicare policy changes could put access to essential ostomy supplies at risk. The Foundation has been working alongside a coalition of patient groups to ensure patient voices are heard in this important federal policy decision.

Join the United Ostomy Association of America's (UOAA) webinar, “Protecting Access to Ostomy and Catheter Supplies – What CMS Competitive Bidding Could Mean for You, “on April 21 at Noon ET to learn what this proposed change could mean for you, hear from key stakeholders, and explore how you can get involved in nationwide advocacy efforts.

Register here: https://bit.ly/4cprDwI

Welcome back, Takeda, as a National Silver Sponsor for Take Steps! Thanks to the generosity of sponsors like Takeda, the...
04/16/2026

Welcome back, Takeda, as a National Silver Sponsor for Take Steps! Thanks to the generosity of sponsors like Takeda, the Foundation has played a role in every major research breakthrough in IBD. https://bit.ly/3KRQTiu

“Stress activates the brain–gut axis, a two-way communication system between the mind and the digestive tract…stress can...
04/15/2026

“Stress activates the brain–gut axis, a two-way communication system between the mind and the digestive tract…stress can be a real biological trigger, not ‘just in someone’s head,’” says Dr. Alan Moss, the Foundation’s Chief Scientific Officer, in a new PEOPLE article on the connection between mental health and ulcerative colitis. In the piece, he unpacks how this vicious stress–flare cycle affects people living with IBD and why mental health support is essential to care. Read more for practical coping strategies—from stress management and sleep to exercise and therapy—to help break that cycle. https://bit.ly/4vyFLwl

Your physical health can affect your mental well-being. Here's how a UC diagnosis specifically might impact your psyche, and how you can manage the effects.

04/15/2026

Did you know people with IBD are 3 to 5 times more likely to experience anxiety and 2 to 4 times more likely to experience depression than the general population? In honor of World IBD Day on May 19, we’re shining a light on the challenges that often go unseen—like stress, pain, and relationships—because IBD is more than the gut.

Watch this video with Dr. Megan Riehl, GI Psychologist and Foundation Trustee, as she explains why caring for both mind and body is essential in managing IBD. That’s why we created the More Than the Gut Guide—a free resource filled with expert insights, evidence-based tools, and real stories from the IBD community.

📘 Download the guide today: https://bit.ly/41xGCjb

Every IBD journey is unique—especially for those who’ve faced cancer. The SAPPHIRE Registry is studying how past cancer ...
04/14/2026

Every IBD journey is unique—especially for those who’ve faced cancer. The SAPPHIRE Registry is studying how past cancer experiences connect with IBD care and outcomes. By taking part, you’ll help shape future research and support better care for the IBD community.

Learn more and see if you’re eligible: https://bit.ly/40TJOFA

04/13/2026

The Crohn’s & Colitis Foundation’s Greater New York Chapter proudly hosted the 33rd Annual Women of Distinction Luncheon today at the Waldorf Astoria! 🌟 This inspiring event celebrated extraordinary women making an impact in the fight against Crohn’s disease and ulcerative colitis, featuring a stunning Pre-Fall 2026 runway presentation by Oscar de la Renta.

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