NS Pharma Inc.

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NS Pharma Inc.

We are a highly focused, research-driven biopharmaceutical company working in rare diseases. If this is a medical emergency, please dial 911. NS Pharma, Inc.

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11/28/2025

We’re proud to sponsor Duchenne Today: Inside the Experience - a community symposium and reception hosted by The Duchenne Program at UMass Chan Medical School. 💙

This year’s symposium unites families, clinicians, and researchers for meaningful conversations about life with Duchenne muscular dystrophy; highlighting the real experiences, challenges, and progress shaping care today.

📅 Date: Tuesday, December 2, 2025
📍 Location: The Beechwood Hotel, 363 Plantation St, Worcester, MA

Through discussions on adulthood, mental health, unmet needs, and access to care, the symposium aims to deepen understanding and inspire meaningful progress for those living with Duchenne.

11/24/2025

Finding information on effective management options for Duchenne can be difficult, but we're here to make this easier for you and your loved ones, so you can make the best decisions.

Typical management strategies include:

Steroids – to help limit inflammation
Physical therapy – to address orthopedic issues
Heart & lung medications – to support vital muscle function

In addition, gene therapy and exon-skipping therapies are currently the only known ways to help the body increase levels of functional dystrophin, slowing the progression of DMD.

Learn more about DMD here: https://ow.ly/lwyr50XwNKO

11/21/2025

We’re thrilled to invite Indiana families living with Duchenne muscular dystrophy to a special gathering — the Best Friendsgiving Ever!

📅 Saturday, November 22, 2025
🕓 4:00 PM – 7:00 PM
📍 Local 416 Firefighters Union Hall, 748 Massachusetts Ave., Indianapolis, IN

Join us for an evening full of gratitude, community, and connection, complete with delicious food, fun activities, and a chance for families, caregivers, and friends to share together. Each person living with Duchenne (and their families) will also receive a special Advent calendar! Travel scholarships are available so no family misses out.

Thank you as always to Laura McLinn and Best Day Ever for organizing this amazing event!

👉 Register today: https://www.bestdayeverfoundation.com/events

11/20/2025

Today we celebrate International Children’s Day - a day to recognize the strength, courage, and limitless potential of children everywhere. 💙

At NS Pharma, our work is driven by a shared commitment to improving the lives of children and families affected by rare diseases. Every breakthrough, every conversation, and every step forward begins with hope, and with the children who inspire us every day.

11/18/2025

We’re proud to sponsor Austin’s Hope and their mission to bring hope and support to families impacted by Duchenne Muscular Dystrophy 💙

The Night of Hope Gala raises funds to help families living with Duchenne through mobility equipment, home modifications, and acts of kindness that improve everyday life.

📅 Date: Saturday, November 22, 2025
📍 Location: Retreat 21, 11433 Industrial Parkway, Marysville, OH 43040

Enjoy an unforgettable evening of cocktails, hors d’oeuvres, and live music as we come together to support the Duchenne community.

Learn more and get involved at: austinshope.org

11/14/2025

We’re excited to attend the CureDuchenne Workshop in Boston, MA! 💙

This event brings together families, clinicians, and researchers dedicated to improving outcomes for those living with Duchenne muscular dystrophy. It’s a meaningful opportunity to learn from experts, share experiences, and connect with the Duchenne community.

📅 Date: Saturday, November 15, 2025
🕘 Time: 8:00 AM – 4:00 PM
📍 Location: The Westin Waltham, 70 3rd Ave, Waltham, MA 02451

👉 Learn more and register: https://cureduchenne.org/event/workshop-boston-ma/

11/12/2025

Did you know Leber congenital amaurosis type 1 (LCA1) is caused by mutations in the GUCY2D gene, which disrupts normal retinal function? There are currently no approved treatments, but we're making progress.

We're proud to collaborate with Atsena Therapeutics to develop ATSN-101, an investigational gene therapy designed to restore visual function for people living with LCA1. This partnership reflects our shared commitment to advancing innovative treatments for inherited retinal diseases.

Learn more about our work in LCA1:
https://ow.ly/9fvO50XpYSk

11/07/2025

We’re excited to be in Chicago with our friends from CureDuchenne for another special community dinner!

This evening is designed for caregivers and families impacted by Duchenne and Becker muscular dystrophies. These dinners are always a wonderful opportunity to connect, share stories, and find support together.

🗓️ Date: November 8
⏰ Time: 6:00 PM – 9:00 PM
📍 Location: Chicago Prime Steakhouse, 1444 E Algonquin Rd, Schaumburg, IL 60173

👉 Reserve your spot today:
https://ow.ly/A4Mt50XnBNa

11/06/2025

A big thank you to everyone who visited our poster presentation at the AANEM Annual Meeting last week, and to our brilliant colleagues Mara Wood, Michelle Previtera, and Denise Quigley for sharing their expertise and insights!

If you missed the presentation, you can view the poster here: https://ow.ly/q98550XnBEi

Progress in rare diseases happens through collaboration, curiosity, and connection - and brought all three to life. Thanks to American Association of Neuromuscular & Electrodiagnostic Medicine - AANEM for hosting such a meaningful event.

We look forward to the next one!

11/05/2025

We’re very proud to sponsor Hope for Gus and their Everest to End Duchenne trek! 🏔️

This incredible journey to Everest Base Camp unites families, advocates, and adventurers to raise awareness and funds for Duchenne muscular dystrophy (DMD) research. Each step taken reflects the determination of those living with Duchenne, and our shared commitment to finding a cure.

Learn more and support this inspiring mission: https://everesttoendduchenne.org

Address

140 E Ridgewood Avenue
Paramus, NJ
07652

Telephone

+18666774276

Website

https://www.nspharma.com/

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