PANS Pandas ACT NJ

PANS Pandas ACT NJ A community of parents advocating for meaningful legislative action on post-infectious neuroimmune disorders (PANS/PANDAS).

For decades, families affected by PANS/PANDAS have said the same thing:Something happened after strep.Now, National Geog...
03/12/2026

For decades, families affected by PANS/PANDAS have said the same thing:
Something happened after strep.

Now, National Geographic is highlighting new research showing how strep infections can disrupt immune signaling and, in some cases, trigger autoimmune reactions that affect the brain.

The article explains that Group A Streptococcus can trigger immune responses that do not always resolve when the sore throat goes away (and we know one doesn’t even need acute signs of infection). Sometimes, through a process called molecular mimicry, the immune system can become confused and start attacking healthy tissue, including parts of the nervous system.

The article specifically mentions PANDAS as a post-streptococcal autoimmune condition marked by the onset of OCD, tics, or both.

Science is starting to confirm what many families have known for years.
As we learn more about how infections affect the immune system and the brain, we have a better chance of recognizing these problems early and treating them properly.

When we understand how infections can affect both immune and brain health, we get closer to preventing years of misdiagnosis, wrong psychiatric placements, and needless suffering.

The conversation is changing, and that is a sign of progress.
Repost from

https://www.nationalgeographic.com/health/article/strep-throat-autoimmune-disease-chronic-fatigue

This is what hope looks like. 🧡At age 4, everything changed.OCD. Separation anxiety. School refusal. Rage.He was labeled...
03/12/2026

This is what hope looks like. 🧡

At age 4, everything changed.
OCD. Separation anxiety. School refusal. Rage.

He was labeled with OCD, anxiety, and ADHD at age 5.
But his parents knew something wasn’t right.

After a long history of strep and ear infections, they asked questions. They pushed. They requested a throat swab and strep titers. The pediatrician listened.

Positive swab. Extremely elevated titers.
Proper diagnosis: PANDAS.

Today:
70% back to baseline.
Back in school.
Continuing to improve.
On the path to full recovery. 🧡

This is why listening to caregivers matters.
This is why stigma around mental health symptoms is dangerous.
When psychiatric symptoms are automatically labeled behavioral or primary mental illness, children can be missed.

Caregivers often have to fight for testing, referrals, and recognition. Access to diagnosis and treatment should not depend on how loudly a parent can advocate.

Mental health symptoms can have medical causes.
Infection-triggered neuroinflammation is real.
Healing is possible when we Look. for root causes. 🧡
Repost: .foundation

Children and young adults with PANS/PANDAS can heal with early diagnosis and treatment, but inaccessibility to proper diagnosis and available treatments have created a crisis situation for affected NJ children and their families.🚨

Bills S598 and A3246 would require insurance coverage for the diagnosis and prescribed treatment of PANS and PANDAS in New Jersey and would provide MUCH needed relief to affected New Jersey children, young adults and their families.

🔗Link in bio for Bill language.

❤️💙🩺

Thank you Senator Bramnick  for co-sponsoring Bill S598! You heard our stories and joined our village with such enthusia...
03/10/2026

Thank you Senator Bramnick for co-sponsoring Bill S598! You heard our stories and joined our village with such enthusiasm! 💪🏻 🏛️📜🖋️🙏🏻

Families across New Jersey are deeply grateful for your leadership and support as we work to make essential insurance coverage for the diagnosis and treatment for PANS/PANDAS a reality. 🩺 🙏🏻

🚨Did you know that what can look like a mental health crisis might actually be a medical one‼️?

Anxiety, OCD, rage, school refusal, depression, tics, food restriction and more—can be triggered by infection and inflammation.
It’s called PANS/PANDAS 🧠🔥 and it’s a form of autoimmune encephalitis.

Children and young adults can heal with early diagnosis and treatment, but inaccessibility to proper diagnosis and available treatments have created a crisis situation for affected NJ children and their families.🚨

Bills S598 and A3246 would require insurance coverage for the diagnosis and prescribed treatment of PANS and PANDAS in New Jersey and would provide MUCH needed relief to affected New Jersey children, young adults and their families.

🔗Link in bio for Bill language.


❤️💙🩺

“A rare condition can send kids into fits of rage. Treatment could help — if insurance covers it.”By Olivia GiegerVTDigg...
03/05/2026

“A rare condition can send kids into fits of rage. Treatment could help — if insurance covers it.”
By Olivia Gieger
VTDigger | February 13, 2026

The article follows Vermont families navigating sudden onset neuropsychiatric symptoms, the search for answers, and the barriers many encounter when physicians recommend immune-directed treatments such as IVIG.

For some children, treatment targeting the immune system has helped reduce severe symptoms. For others, insurance denials leave families stuck in appeals while children continue to struggle.

The story also explores the broader debate in medicine, the evolving science around PANS and PANDAS, and legislative efforts to address insurance coverage for medically necessary treatment.
Repost:

Read the full article:
https://vtdigger.org/2026/02/13/a-rare-condition-can-send-kids-into-fits-of-rage-treatment-could-help-if-insurance-covers-it/

THIS!!!!  🥳🙏🏻🙏🏻🙏🏻🙏🏻Thank you  for recognizing the dire need for IVIG treatment for our suffering children! We can only h...
02/14/2026

THIS!!!! 🥳🙏🏻🙏🏻🙏🏻🙏🏻
Thank you for recognizing the dire need for IVIG treatment for our suffering children!
We can only hope other insurers follow appropriately in your footsteps! 🩺

Aetna recognizes PANS and PANDAS in its medical policy and supports IVIG treatment as medically necessary when established clinical and diagnostic criteria are met. https://www.pandasppn.org/aetna

Repost

02/04/2026

📣STATE LEGISLATION UPDATE📣

Progress for Washington state! 📜

Repost
Hooray 🎉 🙌

House Bill 2196 was just SUCCESSFULLY VOTED out of the House Healthcare committee with a DO PASS👍

This is truly MONUMENTAL for Washington state and we couldn’t have done it without our bill sponsors 🙏 .low and the others .daviswa

We now head to the Rules Committee where we must wait to have someone pull our bill for a FLOOR VOTE by 2/17 🗓️

Keep pushing WASHINGTON 💪

New Year = New Session = New Bill Numbers! 📅✨ Our bills just reset— S598 (formerly  )) and A3246 (formerly  ) just dropp...
02/01/2026

New Year = New Session = New Bill Numbers! 📅✨

Our bills just reset— S598 (formerly )) and A3246 (formerly ) just dropped!

Let’s get to work for NJ children, young adults and their families dealing with the ravages of PANS/PANDAS!

Infections can trigger inflammation in the brain, leading to mental health and behavioral symptoms that look psychiatric but require a medical lens.
NJ families are in crisis—often silently—facing:

🚨A medical condition often mistaken for purely psychiatric

🚨Severe changes in in their child’s mental health

🚨Misunderstood and misdiagnosed symptoms.

S598 and A3246 would require insurance coverage for diagnosis and prescribed treatment of PANS and PANDAS in New Jersey and would provide MUCH needed relief to affected New Jersey children, young adults and their families.

Link in bio for Bill language

🎉 THANK YOU to everyone who contacted New Jersey Senator Lagana’s office last week!Because of your advocacy and upon hea...
12/17/2025

🎉 THANK YOU to everyone who contacted New Jersey Senator Lagana’s office last week!

Because of your advocacy and upon hearing our personal stories—not only is Senator Lagana posting S4444 to the Senate Commerce Committee in the new year—he is going to CO-SPONSOR it! 🎉
He’s committed to helping us get it done! ✍️🏛️

We are deeply grateful for today’s powerful Zoom 💻 and for Senator Lagana’s immediate recognition of the urgency of health insurance coverage for the treatment of PANS/PANDAS. 🦠 🧠 🔥

This is noteworthy, positive momentum and our hearts are full! 🫶🏻

Together, look at what we’ve accomplished! 🎉🙏🏻

❤️💙🩺
basalgangliaencephalitis

📣 We are seeking a New Jersey family (or families) with a PANS/PANDAS diagnosis who have been denied health insurance co...
12/16/2025

📣 We are seeking a New Jersey family (or families) with a PANS/PANDAS diagnosis who have been denied health insurance coverage for prescribed treatment(s) and are currently fighting for coverage — and who would be willing to share their story in a video. 🎥💙

A supportive state Senator would like to use these stories in a press conference or press release to help get S4444 posted to the Senate Commerce Committee — so it can be placed on the agenda. 🏛️🗂️ 💪🏻

If you would like to share your experience, please email (No DMs):
📧 ajohnson@policyconsult.com.
Thank you for considering. We know it’s not easy to put yourself out there.😔💔

Your voice could help create real change for NJ families. 🤍🙏🏻

❤️💙🩺

🚨⚡️New Jersey residents, please join our urgent call to action! ⚡️🚨Assembly Bill 5325 (A5325) and Senate Bill (S4444) —w...
12/09/2025

🚨⚡️New Jersey residents, please join our urgent call to action! ⚡️🚨

Assembly Bill 5325 (A5325) and Senate Bill (S4444) —which would require insurance coverage for the treatment of PANS and PANDAS—are currently pending before the Assembly Financial Institutions and Insurance Committee and the Senate Commerce Committee, respectively.

We are asking New Jersey residents to PLEASE contact the offices of the following Committee Chairs to:

✅ express the urgent need for their passage

✅ respectfully request consideration and a favorable report by these Committees, so that they can move forward in the legislative process!
(This is a critical step‼️)

✅ Please note that the passage of these bills would provide much needed relief to affected New Jersey children and families.

➡️🏛️Assemblyman Freiman (Bill A5325), (908) 829-4191 or asmfreiman@njleg.org 

District 16

➡️🏛️Senator Lagana (S4444), (201) 576-9199 or
SenLagana@njleg.org 
District 38

If you are a constituent living in either of their districts, please be sure to share that as well! (🔗Link in bio to find your district if you are unsure.)

🔗 in bio for an email template for ease to be easily personalized.✍️
💡 REMEMBER to edit the template to include the appropriate info for Chair Freiman OR Chair Lagana provided in parenthesis —and remove the bold text, accordingly.

☎️💻 Just two calls or emails per person could make a huge difference in the lives of New Jersey children and families if we work collectively.

We NEED and are so grateful for your help!

❤️💙🩺 #
autoimmuneencephalitis basalgangliaencephalitis

Ours is not a lofty goal—it’s a critical one‼️Because what looks like a mental health crisis might actually be a medical...
12/02/2025

Ours is not a lofty goal—it’s a critical one‼️

Because what looks like a mental health crisis might actually be a medical one.

Anxiety, OCD, rage, school refusal, depression, tics, food restriction-can be triggered by infection and inflammation.
It’s called PANS/PANDAS.

And children and young adults can heal—with early diagnosis and treatment.

🚨 Inaccessibility to proper diagnosis and available treatments have created a crisis situation for affected NJ children and their families.

🙏🏻To the legislators who heard our stories and joined our village: families across New Jersey are deeply grateful for your leadership and support as we work to make essential insurance coverage a reality. 🧠 🩺 Thank you for sponsoring + co-sponsoring Bill S4444
Sen. James Beach (D-6)
Sen. Parker Space (R-24)
Sen. Owen Henry (R-12)
Sen. Troy Singleton (D-7)
Sen. Kristin M. Corrado (R-40)
Sen. Vin Gopal (D-11)

❤️💙🩺

Ours is not a lofty goal—it’s a critical one‼️Because what looks like a mental health crisis might actually be a medical...
12/02/2025

Ours is not a lofty goal—it’s a critical one‼️

Because what looks like a mental health crisis might actually be a medical one.

Anxiety, OCD, rage, school refusal, depression, tics, food restriction-can be triggered by infection and inflammation.
It’s called PANS/PANDAS.

And children and young adults can heal—with early diagnosis and treatment.

🚨 Inaccessibility to proper diagnosis and available treatments have created a crisis situation for affected NJ children and their families.

To the legislators who heard our stories and joined our village: families across New Jersey are deeply grateful for your leadership and support as we work to make essential insurance coverage a reality. 🧠 🩺 🙏🏻

Thank you for sponsoring + co-sponsoring Bill A5325
Asm. Dan Hutchison (D-4)
Asm. Michael Venezia (D-34)
Asw. Annette Quijano (D-20)
Asm. Cody D. Miller (D-4)
Asw. Luanne M. Peterpaul Esq. (D-11)
Asw. Margie Donlon M.D. (D-11)

❤️💙🩺

Address

Paramus, NJ
07652-07653

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